I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.https://bsky.app/profile/iamals.bsky.socialhttps://bsky.app/profile/iamals.bsky.social/post/3munkcyuu5x2p🎂 Happy birthday, Howie Track! He’s raised $22K+ for Team I AM ALS while training for the TCS NYC Marathon. When Howie hits $40K, the I AM ALS community will receive a $20K match! 💙 Give him a birthday boost and help unlock the match: bit.ly/HowieIAA03 Sep 2026 22:57 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3munkcyuu5x2phttps://bsky.app/profile/iamals.bsky.social/post/3mumvlq2x632kFundraising for Week of Impact 2026? We’ll help you get started. 💙 Join our staff-led webinar for a walkthrough of setting up your DonorDrive campaign, fundraising messaging, and best practices to help you or your team reach your goal. RSVP: bit.ly/LearnWOI 03 Sep 2026 16:46 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mumvlq2x632khttps://bsky.app/profile/iamals.bsky.social/post/3mukzqufude2nALS Veterans are diagnosed at more than twice the rate of civilians. The Autonomy for Disabled Veterans Act would help Veterans afford accessibility upgrades to live safely and independently at home. Tell your lawmakers to pass the bill: bit.ly/VetAccess 02 Sep 2026 22:55 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mukzqufude2nhttps://bsky.app/profile/iamals.bsky.social/post/3mukptyrc5h2lGreat news! 🎉 Our virtual Tim Lowrey ALS Panel Series poster was accepted for presentation at the 2026 Annual NEALS Meeting! The series offers an authentic way to learn about ALS directly from the community. Request a panel: bit.ly/ALSPanel 02 Sep 2026 19:58 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mukptyrc5h2lhttps://bsky.app/profile/iamals.bsky.social/post/3muhvhai4fh2sIntroducing... I AM ALS WEEK OF IMPACT 2026 📣 One week. Countless ways to move the needle. Let’s fuel the movement to end ALS. Set up your page and start raising today: bit.ly/weekofimpact 01 Sep 2026 17:00 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3muhvhai4fh2shttps://bsky.app/profile/iamals.bsky.social/post/3muhobzaafh2fRaphael would love to see you at the I AM ALS Talent Show! 🎤✨ Sing, dance, tell a joke, show off your pet—or just come cheer everyone on! 📅 Sept. 17 | 5 PM ET 💙 Suggested donation: $10–$25 No talent required. RSVP: bit.ly/IAATalent 01 Sep 2026 14:52 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3muhobzaafh2fhttps://bsky.app/profile/iamals.bsky.social/post/3mufsnxzyjy27🚨 COMMUNITY—Congress is back, and we don’t have time to waste. The House AND Senate need to vote again to get ACT for ALS across the finish line before Sept. 30. Tell Congress: Schedule the vote. Finish the job. Pass ACT for ALS: bit.ly/fundALS 31 Aug 2026 21:05 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mufsnxzyjy27https://bsky.app/profile/iamals.bsky.social/post/3mucqmdwbxa2eThe House and Senate both voted to reauthorize ACT for ALS! 🎉 But our work isn’t done yet. Let’s keep the pressure on until ACT for ALS 2.0 is law. Thank your legislators for supporting ACT for ALS: bit.ly/A4A-TY 30 Aug 2026 15:50 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mucqmdwbxa2ehttps://bsky.app/profile/iamals.bsky.social/post/3muayd4jtlb2oWant to advocate for ALS but short on time? 💙 Become a consented constituent and let our Legislative Affairs Team contact your legislators on your behalf. We’ll research and write the ask so your representatives hear from you. Get started: bit.ly/ALSconstituents 29 Aug 2026 23:03 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3muayd4jtlb2ohttps://bsky.app/profile/iamals.bsky.social/post/3muao5oig2w2pYou’re invited! 🎉 Join us for an evening of entertainment for our wonderful community, by our wonderful community. Bring your best (or worst!) talent—or just come for a good time. 💙 Suggested donation: $10–25. Donations are not required to attend. Join us: bit.ly/IAATalent 29 Aug 2026 20:01 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3muao5oig2w2phttps://bsky.app/profile/iamals.bsky.social/post/3mu5gywb67r2i100 panels. One incredible milestone. 💛 On Sept 3, the Tim Lowrey ALS Panel Series will present its 100th and 101st panels of 2026! Thank you to everyone who shared their story, hosted a panel, or came ready to learn about ALS. Here’s to the next 100. Request a panel: bit.ly/ALSPanel 28 Aug 2026 13:15 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mu5gywb67r2ihttps://bsky.app/profile/iamals.bsky.social/post/3mu5dpbi4ww27Announcement: It's the Sandy Morris Day of Action! Four years ago today, we lost the incredible and beloved ALS advocate Sandy Morris. Let's honor Sandy the way she asked! Treat yourself, and contact Congress. Tell lawmakers: Reauthorize ACT for ALS! bit.ly/fundALS28 Aug 2026 12:16 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mu5dpbi4ww27https://bsky.app/profile/iamals.bsky.social/post/3mu3xx63aqt2eTogether, we’ve taken 10,000+ actions to reauthorize ACT for ALS! 💙 Our hard work has brought us closer than ever to protecting the research, access, and infrastructure we built together. Let’s keep the energy up for when Congress returns! Say thanks: bit.ly/A4A-TY 27 Aug 2026 23:13 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mu3xx63aqt2ehttps://bsky.app/profile/iamals.bsky.social/post/3mu3cgqms4a2uAn ALS diagnosis brings a hundred questions at once. That’s what our 1:1 ALS Support Team is here for. Our team includes certified peer support specialists personally impacted by ALS and licensed social workers. We’re here: bit.ly/GetALSSupport27 Aug 2026 16:48 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mu3cgqms4a2uhttps://bsky.app/profile/iamals.bsky.social/post/3mtzh3xxwfp2pEvery new cosponsor brings us one step closer to ensuring Veterans with ALS and their families receive the support they deserve. 💙 Let’s keep the momentum going! Ask your lawmakers to support and cosponsor the Justice for Veterans ALS Act: bit.ly/ALSvets 26 Aug 2026 23:06 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mtzh3xxwfp2phttps://bsky.app/profile/iamals.bsky.social/post/3mtwik7i44i2cFlag submissions are open for 2027! 💙 Honor someone living with ALS, a familial ALS gene carrier, or someone who has passed from ALS with a flag. Request yours today: bit.ly/flags-27 25 Aug 2026 18:54 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mtwik7i44i2chttps://bsky.app/profile/iamals.bsky.social/post/3mtp3yyhikj24Congress returns from recess soon, and we expect to have less than a month until ACT for ALS expires. Let’s keep it top of mind until it crosses the finish line. Thank your legislators today → bit.ly/A4A-TY 22 Aug 2026 20:21 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mtp3yyhikj24https://bsky.app/profile/iamals.bsky.social/post/3mtmdgu6gur2u 🎉 Huge thank you to Maggie Tassi and the Tassi family! About 130 guests came together last weekend and raised $10K+ to help advance key laws, ALS research funding, and access to promising therapies. Community-powered progress in action. 💙21 Aug 2026 17:56 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mtmdgu6gur2uhttps://bsky.app/profile/iamals.bsky.social/post/3mtki5lsivg2uNavigating ALS can feel a little less isolating when you can connect with people who understand. 💙 I AM ALS support groups are for people living with ALS, Veterans living with ALS, caregivers, family members, and those who have lost someone to ALS. Find your group: bit.ly/ALSgroups 21 Aug 2026 00:15 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mtki5lsivg2uhttps://bsky.app/profile/iamals.bsky.social/post/3mthxe6unay241 in 5 family caregivers face financial strain—and ALS can bring significant costs for families. The Credit for Caring Act would provide a tax credit to eligible family caregivers to help. Tell your legislators to support family caregivers TODAY: bit.ly/credit4care 20 Aug 2026 00:09 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mthxe6unay24https://bsky.app/profile/iamals.bsky.social/post/3mthntx2xn52tOJ Brigance was a leader, launching the Brigance Brigade Foundation to support countless people living with ALS, and we're so grateful for their partnership and referrals to I AM ALS's Peer Support Program. OJ brought so much compassion and strength to this community. We will miss him deeply.19 Aug 2026 21:19 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mthntx2xn52thttps://bsky.app/profile/iamals.bsky.social/post/3mtf4etk5bl2pBrian Wilson brought so much heart to the ALS community. Even while facing this disease himself, he thought of other Veterans navigating ALS, and made it his mission to make sure their stories were heard. We will miss Brian deeply, and we will hold his memory close as we carry his legacy forward.18 Aug 2026 21:01 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mtf4etk5bl2phttps://bsky.app/profile/iamals.bsky.social/post/3mterycihf524ACT for ALS passed the House AND Senate and is on its way to becoming law! 💙 The ALS community asked. Congress listened. Now, thank your legislators for helping move this historic legislation forward: bit.ly/A4A-TY 18 Aug 2026 17:55 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mterycihf524https://bsky.app/profile/iamals.bsky.social/post/3mt5k7274ki2lBIG things are coming for the ALS movement. 💙 Don’t miss upcoming opportunities to take action, connect with the ALS community and help move progress forward—one action at a time. Sign up for updates: bit.ly/News4ALS 15 Aug 2026 20:47 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mt5k7274ki2lhttps://bsky.app/profile/iamals.bsky.social/post/3mt2bloywij2pTim Lowrey wanted more people to learn about ALS. He turned that goal into a panel series for schools and workplaces. We miss Tim dearly, and we’re honored to continue the virtual conversations he started. 💙 Request a Tim Lowrey ALS Panel: bit.ly/ALSPanel 14 Aug 2026 13:35 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mt2bloywij2phttps://bsky.app/profile/iamals.bsky.social/post/3msxypypdyh2tA HUGE thank you to Erin Taylor, Erin Tatum, Allie Bruner, Maria Aleandra & I AM ALS Ambassador Tanea “Rebel” Brooks for using their platforms to advance ACT for ALS! 💙 Progress takes community—and we’re grateful you’re part of this one.13 Aug 2026 15:51 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3msxypypdyh2thttps://bsky.app/profile/iamals.bsky.social/post/3msvze6pwx52p🚨 BREAKING: New data show people w/ ALS lived longer when a key biomarker (NfL) declined or stabilized on an investigational treatment. Some of that evidence came through an NIH-sponsored EAP—which exists because I AM ALS advocated for and passed ACT for ALS. Help fund ALS research: bit.ly/ALSFY-27 12 Aug 2026 20:57 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3msvze6pwx52phttps://bsky.app/profile/iamals.bsky.social/post/3msvzcrk2ff2pA trip to the doctor shouldn’t stand between someone living with ALS and the care they need. Thank you, Rep. Mark Alford, for cosponsoring the CONNECT for Health Act to expand telehealth and remote patient monitoring. Urge Congress to support it: bit.ly/ALSConnect 12 Aug 2026 20:56 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3msvzcrk2ff2phttps://bsky.app/profile/iamals.bsky.social/post/3mstf5hfkyn27The ALS community showed up—and Congress acted. 💙 The House and Senate voted to reauthorize ACT for ALS. Now, thank your House member for their vote: bit.ly/TYReps 11 Aug 2026 19:50 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mstf5hfkyn27https://bsky.app/profile/iamals.bsky.social/post/3msqs2oc5ei27Experience becomes even more powerful when it’s shared. I AM ALS Peer Mentors turn what they’ve learned navigating ALS into support, perspective and connection for others. Find your Peer Mentor: bit.ly/ALSpeers 10 Aug 2026 19:03 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3msqs2oc5ei27