I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.https://bsky.app/profile/iamals.bsky.socialhttps://bsky.app/profile/iamals.bsky.social/post/3mlz32hxcfs2i🚨 ACT for ALS now has 60 cosponsors! We said it before, and we’ll say it again: our advocacy works. 💪 Let’s keep pushing for historic ALS research funding and access to potential therapies. Take action: bit.ly/fundALS 17 May 2026 00:09 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mlz32hxcfs2ihttps://bsky.app/profile/iamals.bsky.social/post/3mlw5yuqen62gThank you FOX 5 DC, NBC10 Boston, WCAX, ABC, and CBS for helping share our community’s stories 💙 Every story shared helps people impacted by ALS feel less alone and brings more allies into this movement.15 May 2026 20:23 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mlw5yuqen62ghttps://bsky.app/profile/iamals.bsky.social/post/3mlvve653ue2p"This flag is a way to honor my mom. It means we keep saying her name. It means I find my bravery, climb the grief mountain, and hold myself accountable. ⁣ ⁣ Knowing a stranger in D.C. might read my mom's name means she remains, in some ways, and we continue to heal." - Stacie Winslow15 May 2026 17:49 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mlvve653ue2phttps://bsky.app/profile/iamals.bsky.social/post/3mlu2aaqupj2pIt’s official: Wisconsin and Texas declared May ALS Awareness Month 👏 Huge thanks to this community for making it happen. Help bring it to your state: bit.ly/StateRes 15 May 2026 00:11 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mlu2aaqupj2phttps://bsky.app/profile/iamals.bsky.social/post/3mlt5zatw6m25Couldn’t make it to D.C.? Experience the Gathering online. Watch the full livestream: bit.ly/gatheringstream14 May 2026 15:46 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mlt5zatw6m25https://bsky.app/profile/iamals.bsky.social/post/3mlrhehdswl2iThe first Comedy Crew of 2026 kicks off tomorrow! 🎤 Humor helps us find lightness in the weight of ALS. Join the waitlist for a chance to be part of this or future Comedy Crews: bit.ly/crew26 13 May 2026 23:28 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mlrhehdswl2ihttps://bsky.app/profile/iamals.bsky.social/post/3mlrbmd42s422Looking for a photo of your flag? 💙 Sign up for our newsletter to be first to receive the public link when it’s available: bit.ly/News4ALS 13 May 2026 21:45 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mlrbmd42s422https://bsky.app/profile/iamals.bsky.social/post/3mloddq2gul2kLast week in D.C., our Veterans Team honored Health Legislative Assistants with custom @brothagency figurines in recognition of their advocacy for Veterans living with ALS. 🇺🇸 Thank you to the offices of Reps. Calvert, @crow.house.gov & @sewell.house.gov for your continued leadership on ALS.12 May 2026 17:38 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mloddq2gul2khttps://bsky.app/profile/iamals.bsky.social/post/3mllx4pak2h2kThe 2026 I AM ALS Flag Ceremony showed the strength of the ALS community. And Congress is paying attention. We're at 44 cosponsors already! Let’s keep the momentum going and reauthorize ACT for ALS. bit.ly/fundALS 11 May 2026 18:54 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mllx4pak2h2khttps://bsky.app/profile/iamals.bsky.social/post/3mljyjvpf6y2iRead Linda Buhr’s reflection on ALS and the sea of blue flags I AM ALS plants on the National Mall each May — symbols of lives, loss, and hope. It's on the blog at https://bit.ly/4dyu55E11 May 2026 00:14 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mljyjvpf6y2ihttps://bsky.app/profile/iamals.bsky.social/post/3mlh2yn3xau2iCommunity—thank you for an INCREDIBLE Community Gathering & Awareness Event 💙 We laughed, cried, shared, planted flags in the D.C. rain, watched TWO films, met with Congressmembers, reunited with friends, & made our mark. This work is possible because YOU show up. However that looks, thank you.09 May 2026 20:20 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mlh2yn3xau2ihttps://bsky.app/profile/iamals.bsky.social/post/3mle7otz6sr2gThank you to the advocates, allies, & friends who joined us at the premiere of Ring Every Bell & screening of Stitching Strength. Thank you to panelists Dr. Bedlack, Deb Winters, Dan Tate & our late Ambassador Eric Dane for the support. Ring Every Bell will be available soon 👀08 May 2026 17:06 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mle7otz6sr2ghttps://bsky.app/profile/iamals.bsky.social/post/3mldtmq6wwm2hHappy Gathering Day 3! 💙 Today, we’re continuing to share ALS stories on the National Mall in front of the SEA of 6,000+ blue flags planted by incredible volunteers. Joining from home? Share your story: bit.ly/story-26 08 May 2026 13:30 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mldtmq6wwm2hhttps://bsky.app/profile/iamals.bsky.social/post/3mlchzx76tn2hThank you for making history today at the 5th Annual I AM ALS Community Gathering & Awareness Event 💙 6,000+ flags. Hundreds of inividuals impacted by ALS. One movement to end ALS. Together, we honored loved ones, built community, and took a stand against ALS. THIS is what community looks like.08 May 2026 00:30 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mlchzx76tn2hhttps://bsky.app/profile/iamals.bsky.social/post/3ml77urjcsj2hWe are so grateful to @Pam Belluck and @nytimes for telling our community’s story and making ALS progress visible. THIS is progress—I AM ALS pushed for Tofersen, the FDA understood this need, and it paid off. We won’t stop bit.ly/NYT-tofersen06 May 2026 17:26 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3ml77urjcsj2hhttps://bsky.app/profile/iamals.bsky.social/post/3ml4qucfzs42j🚨 ACT FOR ALS UPDATE 🚨 ACT for ALS was reintroduced in the Senate. A step toward faster treatment access and better support—but momentum matters. Ask your Senator to cosponsor: bit.ly/fundALS 05 May 2026 17:52 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3ml4qucfzs42jhttps://bsky.app/profile/iamals.bsky.social/post/3ml2ggixfzb2aThis week, we need the people who write our laws to walk among the flags on the National Mall and see the names of those living with ALS—and those we’ve lost to this disease. Invite your members of Congress to the Flag Ceremony → bit.ly/FlagInvite 04 May 2026 19:40 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3ml2ggixfzb2ahttps://bsky.app/profile/iamals.bsky.social/post/3ml24r4gcdc2jEncouraging ALS news: a potential Accelerated Approval path for CNM-Au8. A reminder that ACT for ALS is making a difference—Expanded Access Program data is helping inform the FDA. Access now. Impact for all. bit.ly/cleneapp 04 May 2026 16:47 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3ml24r4gcdc2jhttps://bsky.app/profile/iamals.bsky.social/post/3mky5haaaox2wMay is ALS Awareness Month 💙 Awareness is at an all-time high thanks to the ALS community—but there’s more to do. Join us all month to connect, advocate, and help end ALS.03 May 2026 21:54 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mky5haaaox2whttps://bsky.app/profile/iamals.bsky.social/post/3mkxxic4hdd25Thank you Rep. Begich & @repgabevasquez.bsky.social for cosponsoring the CONNECT for Health Act 💙 Expanding telehealth access means fewer barriers to care for people living with ALS. Ask your legislator to cosponsor: bit.ly/ALSConnect 03 May 2026 20:07 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mkxxic4hdd25https://bsky.app/profile/iamals.bsky.social/post/3mkvt4fti532jACT for ALS was a huge win for the ALS community—expanding access to therapies and increasing ALS funding to historic levels. But it expires this September. We can’t afford to lose that progress. Tell your legislator to cosponsor ACT for ALS: bit.ly/fundALS 02 May 2026 23:43 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mkvt4fti532jhttps://bsky.app/profile/iamals.bsky.social/post/3mksycnivck2fACT for ALS is driving real progress for people like Erin, who's living with ALS—expanding access to therapies and accelerating research. It expires in September. Don’t let our progress end here. Ask your legislator to cosponsor: bit.ly/fundALS01 May 2026 20:38 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mksycnivck2fhttps://bsky.app/profile/iamals.bsky.social/post/3mkqc5yh2r22kAt some point, we will all need access to treatment. And about 1 in 4 of us will be diagnosed with a neurodegenerative disease in our lifetime. ACT for ALS reaches far beyond ALS. Tell your legislator to cosponsor: bit.ly/fundALS30 Apr 2026 18:57 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mkqc5yh2r22khttps://bsky.app/profile/iamals.bsky.social/post/3mkiqsfw55t25For Garrett—and every family impacted by ALS. We’ve rewritten the story together. Now let’s finish it and end ALS for good. Ask your rep to cosponsor: bit.ly/fundALS 27 Apr 2026 18:57 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mkiqsfw55t25https://bsky.app/profile/iamals.bsky.social/post/3mkimwf7dy72kThank you @pocan.house.gov & Austin Scott for sponsoring the Credit for Caring Act. Caregivers carry too much alone—this bill would help lighten the load. Let’s get it across the finish line: bit.ly/credit4care 27 Apr 2026 17:48 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mkimwf7dy72khttps://bsky.app/profile/iamals.bsky.social/post/3mkge7el3d72aNational Volunteer Month | Volunteer Spotlight 📣 Jennifer Robb advocates for the ALS community in legislative meetings and participates in clinical trials and an Expanded Access Program. Thank you for everything you do, Jennifer 💙26 Apr 2026 20:07 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mkge7el3d72ahttps://bsky.app/profile/iamals.bsky.social/post/3mkeaybgvmt25It takes a community. Thanks to Dan Tate, Dr. Jinsy Andrews, Brian Wallach, Sandra Abrevaya, Reps. Quigley & Calvert, Garrett May, and others pushing to reauthorize ACT for ALS. Keep it going: bit.ly/fundALS 📸: Stephen Voss 26 Apr 2026 00:04 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mkeaybgvmt25https://bsky.app/profile/iamals.bsky.social/post/3mkdvjn3fw22iWe need better race & ethnicity data from government and healthcare systems to close gaps facing Arab Americans and other communities. Join the Many Shades of ALS Community Team and push for a more representative ALS landscape: bit.ly/ManyShades 25 Apr 2026 20:39 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mkdvjn3fw22ihttps://bsky.app/profile/iamals.bsky.social/post/3mkbffycsb42hACT for ALS is expanding access to promising therapies and accelerating the path to a cure. We’re so close to ending ALS—but we need your help. Ask your representative to cosponsor: bit.ly/fundALS 24 Apr 2026 20:45 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mkbffycsb42h