I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.https://bsky.app/profile/iamals.bsky.socialhttps://bsky.app/profile/iamals.bsky.social/post/3mz6kgklrtm23REMINDER—Flag submissions are open for 2027! The deadline isn’t until March 1, 2027, but don’t wait. Our volunteers will be preparing your flags all year long. Request your flag today → bit.ly/flags-27 (case-sensitive)31 Oct 2026 14:55 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mz6kgklrtm23https://bsky.app/profile/iamals.bsky.social/post/3mz4bqmzuwx2nLinda Buhr sent this video message to her Congressmember last year. Tomorrow is never guaranteed in ALS. But she told her lawmaker she was going to dance with her son at his wedding. Just last weekend, 17 months later, she made it happen. 💙 BIG congratulations to the Buhr family!30 Oct 2026 17:14 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mz4bqmzuwx2nhttps://bsky.app/profile/iamals.bsky.social/post/3myzmfvoy3n2eThis Sunday, Kellie, Will, Jenny, and Howie become the first EVER to run the NYC Marathon for I AM ALS 🎉 They've raised $125K+, beating their goal by over $50K. Every dollar unlocks more federal funding for ALS research. Cheer them on below ↓29 Oct 2026 15:47 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myzmfvoy3n2ehttps://bsky.app/profile/iamals.bsky.social/post/3myzj4aabzu2jFederal Agency Community Team (FACT) member Raphael presented at the @fda.gov Rare Disease Framework Hybrid Public Meeting to help speed up the pathway to cures. Join him and other like-minded individuals on the I AM ALS FACT team: bit.ly/join-FACT 29 Oct 2026 14:48 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myzj4aabzu2jhttps://bsky.app/profile/iamals.bsky.social/post/3myxqisolgy2oNovember is National Family Caregivers Month. ALS caregivers carry so much, but they don't have to carry it alone. Connect, swap advice, and find community at our free virtual Caregiver Conversations: Nov. 4, 8 p.m. ET: bit.ly/NCM-1 Nov. 18, 8 p.m. ET: bit.ly/NCM-228 Oct 2026 21:55 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myxqisolgy2ohttps://bsky.app/profile/iamals.bsky.social/post/3myx4dheaym2eI AM ALS Peer Mentors are trained community members impacted by ALS themselves. Every ALS journey is different. But when you apply to get matched, our ALS Support Team finds you a mentor who understands YOUR experience and can help you navigate it. Sign up today: bit.ly/ALSpeers28 Oct 2026 15:54 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myx4dheaym2ehttps://bsky.app/profile/iamals.bsky.social/post/3myun26h6fh2q“…inspired a community, a community that continually renews itself, welcomes new advocates, develops new leaders, and ensures that every generation is ready to fight for the next breakthrough.”—Troy Fields Thank your lawmakers for reauthorizing ACT for ALS! 🔗: bit.ly/A4A-TY27 Oct 2026 16:15 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myun26h6fh2qhttps://bsky.app/profile/iamals.bsky.social/post/3myuhbprd222w🚨 ACT for ALS UPDATE 🚨 The president has about 10 days (minus Sundays and holidays, etc.) to sign the ACT for ALS, or it becomes law automatically. This happened because of YOUR actions! While we wait, thank your legislators: bit.ly/A4A-TY 27 Oct 2026 14:32 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myuhbprd222whttps://bsky.app/profile/iamals.bsky.social/post/3mysozdsj7j2eThere is no cure for ALS, but multidisciplinary clinics have been shown to extend survival and improve quality of life. The ALS Better Care Act would strengthen these clinics by improving Medicare reimbursement and help accelerate ALS clinical trials. Tell your lawmakers: bit.ly/ALSbettercare26 Oct 2026 21:45 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mysozdsj7j2ehttps://bsky.app/profile/iamals.bsky.social/post/3mysn7t3wad2eJoining an I AM ALS community team is a great way to build lasting friendships, make an impact, and help end ALS. Work with your favorite sports team, meet your legislator, advocate for more accessible clinical trials. There are SO many ways to make a difference. Find a team: bit.ly/vol4ALS26 Oct 2026 21:13 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mysn7t3wad2ehttps://bsky.app/profile/iamals.bsky.social/post/3myqfy7aiqb2eWant to help us pass more critical ALS legislation? Become a Consented Constituent today! It's low-commitment and low-effort. With just 2 minutes of your time, you can help move the needle for ALS! Join the movement: bit.ly/ALSconstituents 25 Oct 2026 23:58 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myqfy7aiqb2ehttps://bsky.app/profile/iamals.bsky.social/post/3mypkr5fwsi2sALS can be overwhelming and isolating. At I AM ALS, you can find community and the support you need. The I AM ALS Peer Support Program offers helpful information, resources, and a listening ear. We also check in to make sure you’re taken care of. Request support: bit.ly/peerintake25 Oct 2026 15:51 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mypkr5fwsi2shttps://bsky.app/profile/iamals.bsky.social/post/3myn2hl73zk2sCaregivers! November is National Family Caregivers Month, and we're centering YOUR experiences. Join us for two caregiver-led conversations: Nov 4, 8 PM ET | Getting Started: bit.ly/NCM-1 Nov 18, 8 PM ET | Navigating the Journey: bit.ly/NCM-2 See you there! 24 Oct 2026 15:54 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myn2hl73zk2shttps://bsky.app/profile/iamals.bsky.social/post/3mymy4s52xm2kI AM ALS CEO Andrea Goodman on the historic news of renewing ACT for ALS, with 5 more years of impact. Thank your legislators for making this possible: bit.ly/A4A-TY (case-sensitive) Thank you Fox 5 DC for covering this powerful story!24 Oct 2026 15:12 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mymy4s52xm2khttps://bsky.app/profile/iamals.bsky.social/post/3myktki5o7i2c“ALS is what I have, not who I am.” — Neil | living with ALS ACT for ALS offers hope and an accelerated path to finding cures for thousands of people like Neil. Let Congress know how much we appreciate their partnership in getting it renewed → bit.ly/A4A-TY23 Oct 2026 18:45 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myktki5o7i2chttps://bsky.app/profile/iamals.bsky.social/post/3myilamwhda2iOur stories are the foundation of everything we've achieved together. When we share our experiences, we give ALS a human face and send a message no one can ignore: we need a cure NOW. Help us end ALS. Share your ALS story today: bit.ly/story-2622 Oct 2026 21:11 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myilamwhda2ihttps://bsky.app/profile/iamals.bsky.social/post/3myigtcvjoh2c🚨 ACT for ALS UPDATE! Thanks to the I AM ALS community's advocacy, Congress has passed ACT for ALS. But our work isn't done yet. Let's protect the federal ALS research dollars we advocated for. Tell Congress to prioritize ALS funding this December: bit.ly/ALSFY-27 22 Oct 2026 19:52 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myigtcvjoh2chttps://bsky.app/profile/iamals.bsky.social/post/3myfqj24go22qCurrent policy requires Veterans to have lived with ALS for 8 years for their spouses to receive DIC benefits. Most people with ALS live only 2-5, so families don’t qualify. Let’s fix this injustice. Tell your lawmakers to cosponsor the Justice for ALS Veterans Act: bit.ly/ALSvets 21 Oct 2026 18:07 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myfqj24go22qhttps://bsky.app/profile/iamals.bsky.social/post/3myau7cdfog2vOur advocacy has changed what’s possible in ALS, one small action at a time. Join this movement and help end ALS in a few minutes: (1) sign up for our newsletter, (2) get quick online actions, (3) do them your way. Sign up TODAY: bit.ly/news4ALS 19 Oct 2026 19:30 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myau7cdfog2vhttps://bsky.app/profile/iamals.bsky.social/post/3myarvx24ic2kA NEW STEP FORWARD! 💡 CNM-Au8, available through ACT for ALS-funded expanded access programs, has been submitted to the FDA. If approved, it could reach everyone in the U.S. living with ALS in 2027. People with ALS don’t have time to wait.19 Oct 2026 18:49 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myarvx24ic2khttps://bsky.app/profile/iamals.bsky.social/post/3myaqjb23yk2cOur incredible community member Dave Hardin put a fun twist on the Ice Bucket Challenge earlier this month! Great food, freezing water dumped out of tractors, and funds and awareness raised for ALS. 💙 Join the movement: bit.ly/ALS-next 19 Oct 2026 18:24 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3myaqjb23yk2chttps://bsky.app/profile/iamals.bsky.social/post/3my6lh24lsp2xCaregivers! You’re invited to two caregiver-led conversations with the I AM ALS community ✨ Getting Started | Nov 4 at 8PM ET bit.ly/NCM-1 Navigating the Journey | Nov 18 at 8PM ET bit.ly/NCM-2 Connect, ask questions, and learn from caregivers who have been there. RSVP today!18 Oct 2026 21:48 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3my6lh24lsp2xhttps://bsky.app/profile/iamals.bsky.social/post/3my6id3jybf2iCalling ALL ALS Advocates 📢 Small online actions add up to historic wins. With just a few minutes of your time, you can get us closer to a world without ALS! 💙 We need advocates from every state and district in this movement. Become a consented constituent today 👉 bit.ly/ALSconstituents 18 Oct 2026 20:52 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3my6id3jybf2ihttps://bsky.app/profile/iamals.bsky.social/post/3my4cqobg4l2bGO TEAM I AM ALS!! 🏁🏆⚡ Our powerhouse New York marathon runners breezed past their $75,000 goal by over $12,000 and counting, with over 2 weeks left until race day! Support our phenomenal TCS NYC Marathon 2026 team: bit.ly/Marathon-26 (case-sensitive)18 Oct 2026 00:07 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3my4cqobg4l2bhttps://bsky.app/profile/iamals.bsky.social/post/3my46o4xal62hThe I AM ALS community’s advocacy work is up for a Community Voice Award, and we need YOUR help to win! A win would help more people impacted by ALS find us. Vote by Oct 29: bit.ly/IAA-Anthem. Find “Push for Progress” and click “Celebrate”!17 Oct 2026 22:54 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3my46o4xal62hhttps://bsky.app/profile/iamals.bsky.social/post/3mxzrkj2j362rThe I AM ALS community is here to support you through the challenges of ALS. Need someone to talk to? We have a support group for you. Want 1-on-1 support? We’ll match you with a trained Peer Mentor or Peer Support Specialist impacted with ALS themselves. 🔗: bit.ly/GetALSSupport 16 Oct 2026 23:54 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mxzrkj2j362rhttps://bsky.app/profile/iamals.bsky.social/post/3mxypgsnnov2iThe thank yous continue! Volunteers, co-chairs, advocates, friends, and everyone who found us through the petition: you helped get ACT for ALS across the finish line—THANK YOU! 💙 Now thank your lawmakers for standing with the I AM ALS community: bit.ly/A4A-TY 16 Oct 2026 13:43 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mxypgsnnov2ihttps://bsky.app/profile/iamals.bsky.social/post/3mxwnno2c3e2xThe Healthy Brains Act would help us better understand the root causes of ALS and other neurodegenerative diseases. Once passed, it will launch the first-ever research program on environmental risk factors. Tell your legislators to support it → bit.ly/HBA-26 15 Oct 2026 18:06 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mxwnno2c3e2xhttps://bsky.app/profile/iamals.bsky.social/post/3mxwbqfdsfv2rWelcome our first-ever I AM ALS Honorary Board Member: Tanea "Rebel" Brooks!! “Advocacy for ALS is a major priority in my battle, and I plan to continue to fight the good fight with I AM ALS to find a cure and help others get access to treatment.”—Rebel bit.ly/withrebel 15 Oct 2026 14:33 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mxwbqfdsfv2rhttps://bsky.app/profile/iamals.bsky.social/post/3mxu44h755m2rCongratulations, community! 🎉 Thanks to YOUR advocacy, hard work, and unwavering support, our community’s Push for Progress campaign was chosen out of 2,500+ projects worldwide as a finalist for a 2026 Anthem Award! Click “Celebrate” here to vote for I AM ALS: bit.ly/IAA-Anthem 14 Oct 2026 17:47 +0000at://did:plc:4mz4itbxevb6eynzefo7x24k/app.bsky.feed.post/3mxu44h755m2r