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<rss version="2.0"><channel><description>Research programme funded by the Cystic Fibrosis (CF) Trust and LifeArc and hosted by University of Manchester. We are doctors and scientists looking to better understand CF exacerbations and improve the lives of people with CF. &#xA;www.pulse-cf.com</description><link>https://bsky.app/profile/pulse-cf.bsky.social</link><title>@pulse-cf.bsky.social - PULSE-CF Research Innovation Hub</title><item><link>https://bsky.app/profile/pulse-cf.bsky.social/post/3ma76fxybxk2w</link><description>CF-Tracker is in the Manchester Evening News. Important for pwCF to take care as we enter the winter flu surge!&#xA;@cysticfibrosis.org.uk &#xA;https://www.manchestereveningnews.co.uk/news/greater-manchester-news/people-living-one-condition-uniquely-33075946?utm_source=mynewsassistant.com&amp;utm_medium=referral&amp;utm_campaign=embedded_search_item_desktop</description><pubDate>17 Dec 2025 17:22 +0000</pubDate><guid isPermaLink="false">at://did:plc:5vdfk2df3ildqqhkunjvoaj2/app.bsky.feed.post/3ma76fxybxk2w</guid></item><item><link>https://bsky.app/profile/pulse-cf.bsky.social/post/3m3pgnvn6lk2j</link><description>This week we welcomed Hull Adult CF Centre to the CF-Tracker study! We have another 11 sites still in process, and plan to have many of these open before the end of the year!&#xA;You can follow progress on the @cysticfibrosis.org.uk Trials Tracker:&#xA;https://www.cysticfibrosis.org.uk/get-involved/clinical-trials/trialstracker/tt014530</description><pubDate>21 Oct 2025 13:27 +0000</pubDate><guid isPermaLink="false">at://did:plc:5vdfk2df3ildqqhkunjvoaj2/app.bsky.feed.post/3m3pgnvn6lk2j</guid></item><item><link>https://bsky.app/profile/pulse-cf.bsky.social/post/3lvo2rmsyik2t</link><description>We will be presenting about the PULSE-CF Hub and updating on how far we&#39;ve come in the last year! Looking forward to it.&#xA;&#xA;[contains quote post or other embedded content]</description><pubDate>05 Aug 2025 15:50 +0000</pubDate><guid isPermaLink="false">at://did:plc:5vdfk2df3ildqqhkunjvoaj2/app.bsky.feed.post/3lvo2rmsyik2t</guid></item><item><link>https://bsky.app/profile/pulse-cf.bsky.social/post/3lpc66h4vdc2w</link><description>Our first CF-Tracker study participant started the study today! First of many for this exciting @cftrustuk.bsky.social @lifearc.bsky.social funded Research Innovation Hub. Huge thanks to the team and to @nihr.bsky.social Manchester CRF!</description><pubDate>16 May 2025 13:48 +0000</pubDate><guid isPermaLink="false">at://did:plc:5vdfk2df3ildqqhkunjvoaj2/app.bsky.feed.post/3lpc66h4vdc2w</guid></item><item><link>https://bsky.app/profile/pulse-cf.bsky.social/post/3loqpnzk2y22e</link><description>CF-Tracker study now open on @cftrustuk.bsky.social Trials Tracker too!&#xA;https://www.cysticfibrosis.org.uk/get-involved/clinical-trials/trialstracker/tt014530?utm_campaign=2879077_CTAP%20Trial%20Tracker%20Alert%20May%202025&amp;utm_medium=email&amp;utm_source=Cystic%20Fibrosis%20Trust&amp;dm_i=3YSZ,1PPID,383FYL,6ODFY,1</description><pubDate>09 May 2025 15:13 +0000</pubDate><guid isPermaLink="false">at://did:plc:5vdfk2df3ildqqhkunjvoaj2/app.bsky.feed.post/3loqpnzk2y22e</guid></item><item><link>https://bsky.app/profile/pulse-cf.bsky.social/post/3loq5xcwqyk2d</link><description>The CF-Tracker study is NOW OPEN at our first site, Wythenshawe Hospital in Manchester!&#xA;You can find out more about the study below or on our website (www.pulse-cf.com)&#xA;vimeo.com/1049633163&#xA;https://vimeo.com/1049633163</description><pubDate>09 May 2025 09:56 +0000</pubDate><guid isPermaLink="false">at://did:plc:5vdfk2df3ildqqhkunjvoaj2/app.bsky.feed.post/3loq5xcwqyk2d</guid></item><item><link>https://bsky.app/profile/pulse-cf.bsky.social/post/3ljpjdglr5225</link><description>We think pollution might be an important reason why some people with CF become unwell, thats why we&#39;re looking into this as a cause of exacerbations in our CF-Tracker study. &#xA;In the meantime, great to see this Asthma+Lung event in Manchester, come and support!</description><pubDate>06 Mar 2025 12:41 +0000</pubDate><guid isPermaLink="false">at://did:plc:5vdfk2df3ildqqhkunjvoaj2/app.bsky.feed.post/3ljpjdglr5225</guid></item><item><link>https://bsky.app/profile/pulse-cf.bsky.social/post/3leqpmutvis2s</link><description>New CF paper out today on a new next generation CFTR modulator combination: equivalent to Kaftrio in terms of all the clinical markers, better sweat chloride correction and ONCE daily!&#xA;Approved by FDA just before Xmas&#xA;https://www.sciencedirect.com/science/article/pii/S2213260024004119</description><pubDate>02 Jan 2025 09:00 +0000</pubDate><guid isPermaLink="false">at://did:plc:5vdfk2df3ildqqhkunjvoaj2/app.bsky.feed.post/3leqpmutvis2s</guid></item><item><link>https://bsky.app/profile/pulse-cf.bsky.social/post/3ld7hlftgkk2f</link><description>Great job opportunity to work in CF Microbiome research as part of our amazing Research Innovation Hub @qubelfastofficial.bsky.social @geinarsson.bsky.social &#xA;More information on our website&#xA;https://www.pulse-cf.com/jobs-and-studentships</description><pubDate>13 Dec 2024 18:56 +0000</pubDate><guid isPermaLink="false">at://did:plc:5vdfk2df3ildqqhkunjvoaj2/app.bsky.feed.post/3ld7hlftgkk2f</guid></item><item><link>https://bsky.app/profile/pulse-cf.bsky.social/post/3lcl6jlpplu2x</link><description>We&#39;re pleased to launch PULSE-CF on Blue Sky. We will be updating on our research studies as they open and on some amazing job and PhD opportunities as these become available too. &#xA;Watch this space.....</description><pubDate>05 Dec 2024 17:20 +0000</pubDate><guid isPermaLink="false">at://did:plc:5vdfk2df3ildqqhkunjvoaj2/app.bsky.feed.post/3lcl6jlpplu2x</guid></item></channel></rss>