PRV reauthorization, Give Kids a Chance Act, Race for Children Act. Mom to 2 awesome humans, missing Jacob (10), problem: patents don’t incentivize pediatric drug development.https://bsky.app/profile/nancygoodman.bsky.socialhttps://bsky.app/profile/nancygoodman.bsky.social/post/3lefh55zmi22yWe went into action. Social media stories blew up the internet. We were covered by CNN, ABC, MSNBC, STATNews, Newsweek, Rolling Stones, The Bulkward. We had one more chance. At 11:50 pm, 12/20/24, the last hour of this Congress, the Senate UC’ed our bills. Rand Paul objected. The vote failed.28 Dec 2024 21:29 +0000at://did:plc:ac5ycrau72kuggushhoz3klh/app.bsky.feed.post/3lefh55zmi22yhttps://bsky.app/profile/nancygoodman.bsky.social/post/3lefgtpxts22yWe were elated on December 17th when Congress included our pediatric cancer drug development bills, the reauthorization of the pediatric priority review voucher program and the Give Kids a Chance Act, in the federal end-of-year funding bill. We were so close to victory.28 Dec 2024 21:24 +0000at://did:plc:ac5ycrau72kuggushhoz3klh/app.bsky.feed.post/3lefgtpxts22yhttps://bsky.app/profile/nancygoodman.bsky.social/post/3ldsciioqts2tYes. I’m glad. But kids with cancer are still suffering. When it is their turn to get the care they need? [contains quote post or other embedded content]21 Dec 2024 06:45 +0000at://did:plc:ac5ycrau72kuggushhoz3klh/app.bsky.feed.post/3ldsciioqts2thttps://bsky.app/profile/nancygoodman.bsky.social/post/3ldjvrinfnk2iGREAT NEWS! Congress’ end-of-year bill includes our bills: PRV & Give Kids a Chance Act! It also includes Innovations, AKACA, & Kids 2.0! Goal: passage by December 20!17 Dec 2024 22:36 +0000at://did:plc:ac5ycrau72kuggushhoz3klh/app.bsky.feed.post/3ldjvrinfnk2i