Tattooed | RRMS dx2006 | Primary Central Nervous System Burkitts Lymphoma (PCNSBL) dx2026 | Never give uphttps://bsky.app/profile/msandlymphomasux.bsky.socialhttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3mtyk6ziyqk2mMy Stem Cell infusion is now scheduled for Sept 22nd. My complete reboot is planned. This could be the end of cancer AND #MS for me for the foreseeable future. No-one knows the outcome yet, that's to come 🙏🏼 #burkittslymphoma #SCT #autologous26 Aug 2026 14:28 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mtyk6ziyqk2mhttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3mttldflqys2qI was involved in the development of this app with @jenibaykoca.bsky.social and the team, including, but not limited to @chiaraml.bsky.social. If you live with #MS give it a whirl, it helped me. It could help you too 😁👍🏼 [contains quote post or other embedded content]24 Aug 2026 15:05 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mttldflqys2qhttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3mtgub7qyo224Latest: https://otherrole.substack.com/p/matrix-chemotherapy-cycle-two?r=73ond9&utm_medium=ios #Lymphoma #MATRix #Chemotheraphy19 Aug 2026 13:41 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mtgub7qyo224https://bsky.app/profile/msandlymphomasux.bsky.social/post/3mt56deqcv22f“Probably in remission” but the cancer will return without completing stem cell transplant & scans complete. Quote from my consultant yesterday!!!!! Can’t get much better than that, with stem cell transplant imminently booked in & MRI in the morning !!!!!! 😁😀😊👍🏼👊🏼 #lymphoma #Burkitt #chemo #sct15 Aug 2026 17:14 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mt56deqcv22fhttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3mt2v2ycvpc2rProfoundly neutropenic… that’s pretty bad news today. Let’s hope that level rises over the coming days please. 🙏🏼 #Lymphoma14 Aug 2026 19:23 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mt2v2ycvpc2rhttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3msxkj7ce7k2aI’m at the absolute low point of #chemo cycle 4 today, with 2x blood transfusions tomorrow to drag me out of it. God I need it, I don’t function as a human at this point. #lymphoma got me at this stage, day 14, of the cycle.13 Aug 2026 11:36 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3msxkj7ce7k2ahttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3mssfz64gfc2pFor those dealing with lymphoma. I’ve created this custom BSky Feed for us: https://bsky.app/profile/did:plc:jbibpkevkfamh7nkcauc7vy6/feed/lymphoma-dqz4 Pin 📌 it to your home to see what the #lymphoma community is talking about. Use #lymphoma to contribute. 😊😁 [contains quote post or other embedded content]11 Aug 2026 10:32 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mssfz64gfc2phttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3mssd2ek6g22wLatest: https://otherrole.substack.com/p/burkitt-lymphoma #Burkitt #Lymphoma11 Aug 2026 09:39 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mssd2ek6g22whttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3msqb3eufjc23Good result. https://www.medscape.com/viewarticle/stem-cell-transplant-boosts-survival-primary-cns-lymphoma-2026a1000qln?src=&form=fpf #lymphoma #pcnsl #Burkitt10 Aug 2026 13:59 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3msqb3eufjc23https://bsky.app/profile/msandlymphomasux.bsky.social/post/3msq2ybu5oc2bSorted out a ruddy feed dint I. Fo shizzle https://bsky.app/profile/did:plc:jbibpkevkfamh7nkcauc7vy6/feed/lymphoma-dqz4 Surf.social sorted it right out. @marcimccue.bsky.social - top banana my friend, top banana 🍌 😂👍🏼😊 [contains quote post or other embedded content]10 Aug 2026 12:10 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3msq2ybu5oc2bhttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3msnt6rjhfs24Starting early in the garden in the sun! #WhyNot09 Aug 2026 14:45 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3msnt6rjhfs24https://bsky.app/profile/msandlymphomasux.bsky.social/post/3msl2kcbffc2uhttps://www.forbes.com/sites/williamhaseltine/2026/07/15/the-remarkable-success-of-car-t-for-lymphoma-ten-years-on/ #Lymphoma #CAR-T08 Aug 2026 12:19 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3msl2kcbffc2uhttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3msfs4vpk2s2qChange a letter, ruin a movie Trainspitting [contains quote post or other embedded content]06 Aug 2026 10:05 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3msfs4vpk2s2qhttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3ms4uqujtzs2mPencilled in, 6 weeks tomorrow, Day -7, stem cell transplant conditioning will start. Meaning Sept 21st, Day 0, I should get my stem cells back. #aHSCT #Lymphoma #CurativeIntent #NeverGiveUp02 Aug 2026 20:58 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3ms4uqujtzs2mhttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3mrpzuuov4222For those dealing with lymphoma. I’ve created this custom thread for us. Pin 📌 it to your home to see what the #lymphoma community is talking about. Use #lymphoma to contribute. Created with surf.social. https://surf.social/feed/surf%2Fcustom%2F01kymwzpzf9yagxmreknbtanmp?utm_source=share&utm_medium=social&utm_campaign=surf_share28 Jul 2026 18:25 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mrpzuuov4222https://bsky.app/profile/msandlymphomasux.bsky.social/post/3mrpr4xr3nc24New PICC line in for Cycle 4 😀 No bed available in hospital for Cycle 4 😩 Some you win, some you lose. #RollWithThePunches #Chemo #Burkitts #Lymphoma #PCNSBL28 Jul 2026 15:48 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mrpr4xr3nc24https://bsky.app/profile/msandlymphomasux.bsky.social/post/3mrk5uzyxfk23Bingo! Got me in a nutshell, just like that. #PCNSL https://www.sciencedirect.com/science/article/pii/S003537872600455826 Jul 2026 10:20 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mrk5uzyxfk23https://bsky.app/profile/msandlymphomasux.bsky.social/post/3mrhdwprtw223@achronicvoice.com - my wife’s Substack through the lens of being my full time carer. Catering for challenges we both face through my progress with #MS and now added to that #BurkittsLymphoma. Hoping it might help 1 of your audience with their own challenges 🙏🏼 https://open.substack.com/pub/otherrole?r=73ond9&utm_medium=ios25 Jul 2026 07:31 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mrhdwprtw223https://bsky.app/profile/msandlymphomasux.bsky.social/post/3mr3vraevas2aStem Cell Collection completed today. Just had the call to say we far surpassed what was required. Intent was to collect 2.5m stem cells from my blood, we collected 4.67m cells. It’s phenomenal news!! That part of this process has been done with flying colours! #Lymphoma #Cancer20 Jul 2026 18:18 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mr3vraevas2ahttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3mqwlqwz6j222@bloodcanceruk.bsky.social @lymphomaaction.bsky.social @nnhla-natcan.bsky.social I was diagnosed with Burkitts Lymphoma 2mnths ago. MATRix regimen is aggressive. Done 3 cycles & stem cell collection on Monday. It’d be great to make contact with others. I have a MS too, just to add complexity 🤦🏻‍♂️18 Jul 2026 15:35 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mqwlqwz6j222https://bsky.app/profile/msandlymphomasux.bsky.social/post/3mqu4buudx226I now have no lines in my arms or neck. Misaligned PICC line out this afternoon, new shiny one one back in in 11 days. The liberation is incredible! 🤣😁😂👊🏼17 Jul 2026 15:53 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mqu4buudx226https://bsky.app/profile/msandlymphomasux.bsky.social/post/3mqp42er6hk2fThe next Substack write up by my wife of the chemotherapy battle we are both experiencing from differing perspectives: https://substack.com/@garlandcoaching/note/c-295064336?r=73ond9&utm_medium=ios&utm_source=notes-share-action15 Jul 2026 16:06 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mqp42er6hk2fhttps://bsky.app/profile/msandlymphomasux.bsky.social/post/3mqk6hkmgac27Cycle 3 done. CVC out. Home. 1 cycle to go with stem cell collection between and then Cycle 4 & Transplant. I can walk again too, without my stick for short distances. This is news! 👊🏼😁👍🏼13 Jul 2026 17:06 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mqk6hkmgac27https://bsky.app/profile/msandlymphomasux.bsky.social/post/3mqafgtxoqk2xPICC has become unusable so have had a CVC put in. A Central Venous Catheter makes me look like something out of a horror film, I’ve tried convincing medical staff it’s new neck decoration, but they’re not buying it! 😂🤣 https://my.clevelandclinic.org/health/treatments/23927-central-venous-catheter09 Jul 2026 19:44 +0000at://did:plc:beecslda3fari7bx46i3srk4/app.bsky.feed.post/3mqafgtxoqk2x