PhD, MND/SMA Research programme manager @My Name'5 Doddie Foundation All views my own #ALS #MND #SMA #RareDisease 📍 Edinburghhttps://bsky.app/profile/dibbouk.bsky.socialhttps://bsky.app/profile/dibbouk.bsky.social/post/3m6zb33nafs2oDoddie Aid is back!!! Do it for you, do it your way, and help fund crucial MND research 💙💛 And for researchers, join our amazing community! Sign up for our new ✨researcher league✨ and show your colleagues how it's done (it's all friendly competition... isn't it?) 💪 [contains quote post or other embedded content]02 Dec 2025 15:29 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3m6zb33nafs2ohttps://bsky.app/profile/dibbouk.bsky.social/post/3m3ukfo73r22sNew paper from @tomgillingwater.bsky.social: Federica Genovese's fantastic PhD, showing reversible prenatal primary cilia defects in the Taiwanese mouse model of SMA. Lots of work still to be done to understand how low levels of SMN lead to the cellular defects we know; this project is part of it🙌 https://insight.jci.org/articles/view/192835?utm_source=submission_site&utm_medium=email&utm_campaign=notice-of-publication23 Oct 2025 14:17 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3m3ukfo73r22shttps://bsky.app/profile/dibbouk.bsky.social/post/3lt4txqvjac2fVery proud to be a part of this community 💙💛 One that brings together people affected by MND, their friends and families, our supporters and fundraisers, and also our researchers ~ thank you! [contains quote post or other embedded content]04 Jul 2025 08:43 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3lt4txqvjac2fhttps://bsky.app/profile/dibbouk.bsky.social/post/3lm7o6ofd3226👩‍🔬 Join Dr Olivia Bird and me on the 15th of April at 12pm and ask us all your questions about our grant calls! 📣 Please share with researchers in your network who may be interested in applying, early career researchers included 🌟 [contains quote post or other embedded content]07 Apr 2025 09:41 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3lm7o6ofd3226https://bsky.app/profile/dibbouk.bsky.social/post/3ll4mxwwmvk2oOur Discovery Network Award is open for applications again: join a highly collaborative network of fantastic researchers and receive up to £1 million over 3 years! Please share - and get in touch if you have any questions/would like to discuss a project proposal #MND #ALS #AcademicSky [contains quote post or other embedded content]24 Mar 2025 11:16 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3ll4mxwwmvk2ohttps://bsky.app/profile/dibbouk.bsky.social/post/3lkoptg2utk2p⚠️⚠️⚠️ Our Advancing Treatments Award is open for expressions of interest again! Get in touch with the research team at the Foundation if you have a project in mind/questions! 💛💙 #MND #ALS #AcademicSky more announcements soon 🤫 [contains quote post or other embedded content]18 Mar 2025 22:30 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3lkoptg2utk2phttps://bsky.app/profile/dibbouk.bsky.social/post/3ljmqqxrqhs2iThe fact that the UK still doesn't do newborn screening for SMA is nothing short of scandal. We have treatments we've known for years need to be administered as soon as possible. Spinal muscular atrophy in the UK: the human toll of slow decisions - The Lancet https://www.thelancet.com/journals/lancet/article/PIIS0140-6736%2825%2900048-0/fulltext05 Mar 2025 10:16 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3ljmqqxrqhs2ihttps://bsky.app/profile/dibbouk.bsky.social/post/3ljkuwtrmpk2jLegends! ❤️‍🔥 [contains quote post or other embedded content]04 Mar 2025 16:25 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3ljkuwtrmpk2jhttps://bsky.app/profile/dibbouk.bsky.social/post/3lhjdlsymls2wWhat is the most exciting ALS/MND discovery research you've read recently/you're working on that is *not* focused on TDP43 or RNP biology? Please share some suggestions and papers!! #ALS #MND #AcademicSky06 Feb 2025 14:52 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3lhjdlsymls2whttps://bsky.app/profile/dibbouk.bsky.social/post/3lgie73kdd22yGold.24 Jan 2025 12:05 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3lgie73kdd22yhttps://bsky.app/profile/dibbouk.bsky.social/post/3lfl77qlrvk2aMy Name'5 Doddie is on Bluesky! 💙💛 Give us a follow ⬇️ [contains quote post or other embedded content]12 Jan 2025 21:48 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3lfl77qlrvk2ahttps://bsky.app/profile/dibbouk.bsky.social/post/3lergrrl6sk2xLovely winter day to get started with #DoddieAid2025 - get moving this January, and join our challenge while supporting crucial research into Motor Neuron Disease #WeirInThisTogether doddieaid.com/how-to-join02 Jan 2025 15:55 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3lergrrl6sk2xhttps://bsky.app/profile/dibbouk.bsky.social/post/3lbujrfz6ps2pWe’re officially launching Doddie Aid 2025, with the announcement that My Name’5 Doddie Foundation has so far committed £18 million to vital motor neuron disease research 🔬 Sign ups are now live, click below to get involved and download the new app 👇 doddieaid.com #DoddieAid25 #DoddieAid #MND #ALS26 Nov 2024 17:10 +0000at://did:plc:bki25ph5scgxxrjvxnvlsinv/app.bsky.feed.post/3lbujrfz6ps2p