Working to improve outcomes for neonatal & pediatric-acquired hypoxic brain injury. Powered by hope and coffee. Current advocacy spice level: 🌶️🌶️🌶️🌶️/🌶️🌶️🌶️🌶️🌶️ #HopeforHIE #NeoSky #NeuroSky #PatientAdvocacyhttps://bsky.app/profile/betsypilon.bsky.socialhttps://bsky.app/profile/betsypilon.bsky.social/post/3mlbrrh4qa22qIt’s a great day in the Great Lakes (and inland lakes) when the neighborhood dock and lifts go in! 🚤 🎉07 May 2026 17:51 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3mlbrrh4qa22qhttps://bsky.app/profile/betsypilon.bsky.social/post/3mkyuq4ykhs25The #BenRector seat. IYKYK.04 May 2026 04:50 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3mkyuq4ykhs25https://bsky.app/profile/betsypilon.bsky.social/post/3mkyo3ziyq22pOn my way to the ONE Conference…and do you ever look at something so beautiful you just can’t believe you are so lucky to witness it? Today that was the Rockies from 30k feet.04 May 2026 02:52 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3mkyo3ziyq22phttps://bsky.app/profile/betsypilon.bsky.social/post/3mktouwqti22eMy kids are alright. Older one on his 8th grade DC trip commenting about how important protest rights are. Little 10 year old picked woman’s suffrage for a nonfiction topic and asked for matching suffragette sashes for her co-presenters. https://media.tenor.com/hHSYprr16VAAAAAC/mary-poppins.gif?hh=180&ww=24402 May 2026 03:22 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3mktouwqti22ehttps://bsky.app/profile/betsypilon.bsky.social/post/3mgjckxshnc2y08 Mar 2026 02:34 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3mgjckxshnc2yhttps://bsky.app/profile/betsypilon.bsky.social/post/3mfz6svjmd22eHand to heart.01 Mar 2026 16:45 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3mfz6svjmd22ehttps://bsky.app/profile/betsypilon.bsky.social/post/3mdgcppgmmk2z@aapneonatal.bsky.social @ameracadpeds.bsky.social [contains quote post or other embedded content]27 Jan 2026 17:44 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3mdgcppgmmk2zhttps://bsky.app/profile/betsypilon.bsky.social/post/3m6wpwcng5c2gNot sure about anyone else, but at @hopeforhie.org we don't do (and I quote) "wink wink, nudge nudge" partnerships in therapeutic advancement. If it doesn't work for, or include, our families, we don't endorse it. Full stop. Not enough coffee for that this morning.01 Dec 2025 15:17 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3m6wpwcng5c2ghttps://bsky.app/profile/betsypilon.bsky.social/post/3m6plk6qsvc2gSELECT ITEMS FROM HOPE FOR HIE'S CAFEPRESS STORE ARE 50% OFF TODAY! Grab some swag! https://www.cafepress.com/profile/HopeforHIE @hopeforhie.org28 Nov 2025 19:10 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3m6plk6qsvc2ghttps://bsky.app/profile/betsypilon.bsky.social/post/3m5p4booaoc2p15 Nov 2025 21:11 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3m5p4booaoc2phttps://bsky.app/profile/betsypilon.bsky.social/post/3m52wa2mszk2vI was asked if I wanted to attend mouse surgery next week. I think this may take my non-scientist HIE street cred over the top. 🐁🧠 #NeoSky #NeuroSky #NICU #HopeforHIE #HIE #BasicScience #PatientAdvocacy https://media.tenor.com/3BgW_vV-aX0AAAAC/cdl-cosmic-dream-lounge.gif?hh=498&ww=49807 Nov 2025 20:30 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3m52wa2mszk2vhttps://bsky.app/profile/betsypilon.bsky.social/post/3m2z5ywdryc2gFirst ever @hopeforhie.org leadership summit ✅12 Oct 2025 16:53 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3m2z5ywdryc2ghttps://bsky.app/profile/betsypilon.bsky.social/post/3m2tls6osmc2wWith some of my favorite 🧠 peeps. #CNSAM10 Oct 2025 11:44 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3m2tls6osmc2whttps://bsky.app/profile/betsypilon.bsky.social/post/3m24wu5u6ls2dSoaking up every moment of bonus summer. The water is holding at 74/75.01 Oct 2025 11:31 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3m24wu5u6ls2dhttps://bsky.app/profile/betsypilon.bsky.social/post/3lyl45xpjlk2k"I'm sick of living like this" is always met with flagrant responses of "THEN MOVE" instead of "let's change this together". Like, if you aren't sick of living like this, how morally broken are you???11 Sep 2025 15:52 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3lyl45xpjlk2khttps://bsky.app/profile/betsypilon.bsky.social/post/3lwvj3ywok22lAm I up at 4 am because there’s a four legged critter (likely a mouse) in our cabin? Yes. 😆 🐁21 Aug 2025 08:20 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3lwvj3ywok22lhttps://bsky.app/profile/betsypilon.bsky.social/post/3ltxwiqeq7223When the little one gets the whole wakeboarding thing like a champ. Perfect end to a manic Monday.15 Jul 2025 03:10 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3ltxwiqeq7223https://bsky.app/profile/betsypilon.bsky.social/post/3ltx72ja2ss2l10 years ago was really the start of my advocacy journey and finding a taste of success. The article below was published in July 2015 on the #NICHD website, elevating HIE awareness to a bigger audience. Read it below: go.usa.gov/3fp3M14 Jul 2025 20:10 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3ltx72ja2ss2lhttps://bsky.app/profile/betsypilon.bsky.social/post/3ltrfkxo6bc24Abandoned truck and trailer at our neighborhood boat ramp. 😆12 Jul 2025 12:51 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3ltrfkxo6bc24https://bsky.app/profile/betsypilon.bsky.social/post/3lrweihuf4c26Discovery of the VapoRub inventor whilst in Greensboro, NC.19 Jun 2025 01:24 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3lrweihuf4c26https://bsky.app/profile/betsypilon.bsky.social/post/3lrqon4v7mk2rHope in AVL! ☀️🩵16 Jun 2025 19:10 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3lrqon4v7mk2rhttps://bsky.app/profile/betsypilon.bsky.social/post/3lrnyteboc22vHappy Father’s Day to this absolutely stellar human.15 Jun 2025 17:34 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3lrnyteboc22vhttps://bsky.app/profile/betsypilon.bsky.social/post/3lrgo2cupgs2lOpe it’s me.12 Jun 2025 19:33 +0000at://did:plc:collffl6op2nxzru3oy34b7m/app.bsky.feed.post/3lrgo2cupgs2l