The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealthhttps://bsky.app/profile/lymenews.bsky.socialhttps://bsky.app/profile/lymenews.bsky.social/post/3mba6urymk224Looking for a meaningful gift that truly makes a difference? Give someone you care about the gift of membership with LymeDisease.org. Your donation supports essential advocacy, education, and research. www.lymedisease.org/donate-2/30 Dec 2025 20:28 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3mba6urymk224https://bsky.app/profile/lymenews.bsky.social/post/3mayr3dogjc24LymeDisease.org represents you—the Lyme patient and your loved ones. Your support powers everything we do for patients and families. Support the organization that supports you. DONATE before December 31st to be tax-deductible this year. www.lymedisease.org/donate-2/27 Dec 2025 21:33 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3mayr3dogjc24https://bsky.app/profile/lymenews.bsky.social/post/3mah4y2czik2n💚Honor Someone You Love This Holiday Season💚 This time of year reminds us how deeply our loved ones shape our lives—those who walk beside us and those we carry in our hearts. 🎁 Make a tribute gift today: www.lymedisease.org/donate-honor/20 Dec 2025 21:18 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3mah4y2czik2nhttps://bsky.app/profile/lymenews.bsky.social/post/3mah4jp5m222nGrowing evidence suggests that Alzheimer’s disease may be shaped not only by age and genetics, but by the immune system’s long-term memory of previous infections. READ MORE https://www.lymedisease.org/infections-may-rewire-brain/20 Dec 2025 21:10 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3mah4jp5m222nhttps://bsky.app/profile/lymenews.bsky.social/post/3mah4hagbus2nIf you want to watch a replay of the HHS Lyme Roundtable meeting, read a summary, or browse the transcript, we've got you covered. READ MORE: https://www.lymedisease.org/summary-transcript-roundtable/20 Dec 2025 21:09 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3mah4hagbus2nhttps://bsky.app/profile/lymenews.bsky.social/post/3mah4cw6vzk2nHHS Secretary RFK Jr. shared a reality this community has long known: research has been underfunded and misunderstood for decades, leaving families without answers. "Patients wait day after day, year after year." READ MORE https://www.lymedisease.org/lyme-roundtable-hope-caution/20 Dec 2025 21:06 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3mah4cw6vzk2nhttps://bsky.app/profile/lymenews.bsky.social/post/3mah4ackgks2nHHS Secretary Robert F. Kennedy Jr. convened a long‑awaited roundtable on Lyme disease. The event brought together patients, clinicians, and researchers in Washington, D.C., while a national (and international) audience tuned in live via YouTube. READ MORE https://www.lymedisease.org/hhs-roundtable-new-era/20 Dec 2025 21:05 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3mah4ackgks2nhttps://bsky.app/profile/lymenews.bsky.social/post/3m7vqboon522nA New Hampshire family’s battle with tick‑borne illness inspired this young woman to use her platform to spotlight prevention and education. READ MORE https://www.lymedisease.org/sophia-sargent-lyme/13 Dec 2025 23:15 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m7vqboon522nhttps://bsky.app/profile/lymenews.bsky.social/post/3m7vqa223uc2nFor decades, patients with neurological Lyme symptoms have been told their struggles were “stress” or “anxiety.” Now, groundbreaking research reveals how Bartonella can infiltrate the brain’s own immune cells. This disrupts hundreds of genes. READ MORE https://www.lymedisease.org/bartonella-brain-immune-system/13 Dec 2025 23:14 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m7vqa223uc2nhttps://bsky.app/profile/lymenews.bsky.social/post/3m7vpzdqaos2nAn amendment from New Jersey Congressman Chris Smith has cleared the House as part of the Fiscal Year 2026 defense bill. It directs the US GAO to investigate whether Cold War‑era military bioweapons programs used ticks to spread Lyme disease. READ MORE https://www.lymedisease.org/lyme-bioweapon-amendment/13 Dec 2025 23:11 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m7vpzdqaos2nhttps://bsky.app/profile/lymenews.bsky.social/post/3m7vpoxa7ak2nA session entitled Invisible Illness — Leading the Way with Lyme Disease will discuss federal priorities for Lyme disease and related chronic conditions. You can watch it live on YouTube via HHS Gov READ MORE https://www.lymedisease.org/hhs-lyme-roundtable-dec15/13 Dec 2025 23:05 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m7vpoxa7ak2nhttps://bsky.app/profile/lymenews.bsky.social/post/3m7dyrlumfc2oMany Lyme patients complete rigorous treatment yet remain unable to heal. In this podcast, naturopath and author Dr. Melanie Stein explains why this can happen--and what to do about it. READ MORE https://www.lymedisease.org/why-lyme-recovery-stalls/06 Dec 2025 22:00 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m7dyrlumfc2ohttps://bsky.app/profile/lymenews.bsky.social/post/3m7dypn6myc2oCognitive decline, mood changes, memory loss. Nicole Bell’s powerful story reveals how hidden infections and toxic exposures can shape devastating neurological conditions. READ MORE https://www.lymedisease.org/pathobiome-hicole-bell/06 Dec 2025 21:58 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m7dypn6myc2ohttps://bsky.app/profile/lymenews.bsky.social/post/3m7dyn4xenc2oA team from Georgia used CRISPR technology to design new ways to detect and treat Lyme. Their breakthrough earned honors at an international competition and a spotlight on 60 Minutes. READ MORE https://www.lymedisease.org/georgia-teens-crispr/06 Dec 2025 21:57 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m7dyn4xenc2ohttps://bsky.app/profile/lymenews.bsky.social/post/3m6sdf5xtps2oBrain fog isn’t just frustrating. It may hold clues... In this interview, Dr. Sean Miller discusses how infections like COVID‑19 and Lyme disease can accelerate Alzheimer’s‑like damage, and how the retina could provide a window into early detection. READ MORE https://www.lymedisease.org/do-eyes-hold-key-brain-fog/29 Nov 2025 21:22 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m6sdf5xtps2ohttps://bsky.app/profile/lymenews.bsky.social/post/3m6sd6ns4w22oThis year, we’re rallying support for MyLymeData, one of the largest patient-driven Lyme research projects in the world. If MyLymeData has helped you—or if you believe in the power of patient-centered research—please consider supporting us on #GivingTuesday DONATE: www.lymedisease.org/donate-2/29 Nov 2025 21:18 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m6sd6ns4w22ohttps://bsky.app/profile/lymenews.bsky.social/post/3m6scv5bkqk2oOn Thanksgiving we pause with gratitude for the incredible strength, resilience, and compassion within the Lyme community. Whether you are a patient, caregiver, advocate, researcher, or supporter, you are the heart of this movement. 💚29 Nov 2025 21:13 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m6scv5bkqk2ohttps://bsky.app/profile/lymenews.bsky.social/post/3m6alh6etvk2oThe 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences. This milestone report distills 10 years of patient-led research into powerful visuals and key findings. LEARN MORE https://www.lymedisease.org/mylymedata-2025-research-chart-book/22 Nov 2025 19:58 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m6alh6etvk2ohttps://bsky.app/profile/lymenews.bsky.social/post/3m6algpxqzc2oThe 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences. This milestone report distills 10 years of patient-led research into powerful visuals and key findings. LEARN MORE https://www.lymedisease.org/mylymedata-2025-research-chart-book/22 Nov 2025 19:58 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m6algpxqzc2ohttps://bsky.app/profile/lymenews.bsky.social/post/3m6aldfq3xc2oWhat does chronic Lyme really feel like? For many, it’s confusion, disbelief, and a level of illness that defies explanation. That’s why Lyme survivor and advocate Jesse Ruben wrote “Monster”—a raw anthem born in the middle of his own crisis. READ MORE https://www.lymedisease.org/podcast-doesnt-it-kill-you-the-lyme-lyric-that-stops-a-room-cold/22 Nov 2025 19:56 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m6aldfq3xc2ohttps://bsky.app/profile/lymenews.bsky.social/post/3m6al7um7222oIn this interview, Dr. Brian Balin discusses how microbes like Lyme, Bartonella, and Chlamydia pneumoniae have been found in Alzheimer’s brain tissue—and what this means for millions living with chronic illness. READ MORE https://www.lymedisease.org/lyme-may-trigger-alzheimers/22 Nov 2025 19:54 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m6al7um7222ohttps://bsky.app/profile/lymenews.bsky.social/post/3m6akthqr7c2oAfter 41 years of caring for patients, Dr. Richard Horowitz is closing his clinical practice. More than 22 advocacy groups across the U.S. recently came together to honor Dr. Horowitz with a Lifetime Achievement Award. READ MORE: https://www.lymedisease.org/advocates-honor-dr-horowitz/22 Nov 2025 19:47 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m6akthqr7c2ohttps://bsky.app/profile/lymenews.bsky.social/post/3m6akfwks722oA tick bite when she was six set off a chain of symptoms that went misunderstood for years. This eventually led to neurological and psychiatric struggles that nearly cost her everything. In her book Revival, she talks about the long road to recovery. READ MORE https://www.lymedisease.org/kaitlyn-oleinik/22 Nov 2025 19:39 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m6akfwks722ohttps://bsky.app/profile/lymenews.bsky.social/post/3m5oxxfmxhk2aA new study found that 92% of youth diagnosed with bipolar disorder in a Lyme-endemic area showed signs of tick-borne infections. These findings raise urgent questions about how we diagnose and treat psychiatric symptoms. READ MORE https://www.lymedisease.org/child-psychiatric-symptoms/15 Nov 2025 19:54 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m5oxxfmxhk2ahttps://bsky.app/profile/lymenews.bsky.social/post/3m5oxuucj5c2aDr. Melanie Stein’s journey from sudden paralysis to lasting recovery led her to uncover a deeper root cause of chronic illness—and a new path to healing. Here she shares the approach that helped her reclaim her health when nothing else worked. READ MORE https://www.lymedisease.org/morning-i-couldnt-walk/15 Nov 2025 19:52 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m5oxuucj5c2ahttps://bsky.app/profile/lymenews.bsky.social/post/3m57nsqinec2tPATHOBIOME PERSPECTIVES: New interview series, hosted by patient advocate Ali Moresco, premiers Tuesday, Nov. 11. LEARN MORE: https://www.lymedisease.org/pathobiome-perspectives/09 Nov 2025 17:42 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m57nsqinec2thttps://bsky.app/profile/lymenews.bsky.social/post/3m55rbgtz6c2tWant to stay in the loop on Lyme? Our FREE weekly newsletter brings you fresh stories, expert insights, and the latest news—all in one easy read. Get the November 8 edition here: conta.cc/3LxFh7308 Nov 2025 23:39 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m55rbgtz6c2thttps://bsky.app/profile/lymenews.bsky.social/post/3m55op3wqtc2tThe 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences. This milestone report distills 10 years of patient-led research into powerful visuals and key findings. LEARN MORE: https://www.lymedisease.org/mylymedata-2025-research-chart-book/08 Nov 2025 22:53 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m55op3wqtc2thttps://bsky.app/profile/lymenews.bsky.social/post/3m55okfg4yk2tFor Isabel Rose, what began as a carefree childhood leap into a leaf pile became the start of a medical nightmare. Read her account of how a tick bite at age 8 led to decades of misdiagnosis and chronic illness. READ MORE https://www.lymedisease.org/a-mothers-story-the-nightmare-in-the-leaf-pile/08 Nov 2025 22:50 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m55okfg4yk2thttps://bsky.app/profile/lymenews.bsky.social/post/3m4o3vmpcds2cLooking for connection, understanding, or just someone who gets it? Our online patient support group is a welcoming space where Lyme patients can share experiences, ask questions, and find encouragement from others who truly understand the journey. READ MORE https://www.lymedisease.org/lyme-disease-support-groups/02 Nov 2025 18:07 +0000at://did:plc:cu265orrcpybkfhwgowpfeas/app.bsky.feed.post/3m4o3vmpcds2c