We are the Healthcare Engagement Team at The Brain Tumour Charity (UK). As UK qualified HCPS our role is to be the liaison link between Primary, Secondary care and The Third Sector.https://bsky.app/profile/healthcareengage.bsky.socialhttps://bsky.app/profile/healthcareengage.bsky.social/post/3mvzcv44jr22jPlease join BNOS for their online patient and carer event in November. This was a great success last year and found to be insightful by many members of the community.21 Sep 2026 08:41 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mvzcv44jr22jhttps://bsky.app/profile/healthcareengage.bsky.social/post/3mvkipdqy6s2lWe have launched our new dedicated healthcare professionals webpages, developed through feedback from HCPs and refined in focus groups. We hope this will allow you to find information quickly and easily. https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/support-professionals/for-healthcare-professionals/15 Sep 2026 11:15 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mvkipdqy6s2lhttps://bsky.app/profile/healthcareengage.bsky.social/post/3mvkimwujss2lWe are delighted to launch our new webpage about prehabilitation. Huge thank you to everyone involved. https://www.thebraintumourcharity.org/brain-tumour-diagnosis-treatment/prehabilitation-for-brain-tumours/15 Sep 2026 11:14 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mvkimwujss2lhttps://bsky.app/profile/healthcareengage.bsky.social/post/3mumpfzxxqk2zOver 500 children and young people aged 19 and under are diagnosed with a brain tumour each year in the UK. September is hashtag#ChildhoodCancerAwarenessMonth, a time to raise awareness of the realities facing children diagnosed with cancer as well as remember all those we’ve lost.03 Sep 2026 14:55 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mumpfzxxqk2zhttps://bsky.app/profile/healthcareengage.bsky.social/post/3mlnsdluods2oHappy International Nurses Day! We'd like to say thank you to all the incredible nurses who help the brain tumour community live longer and better lives Jill, a Clinical Nurse Specialist (CNS), shares her thoughts on the importance of having access to a CNS. ⁣ ⁣12 May 2026 12:33 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mlnsdluods2ohttps://bsky.app/profile/healthcareengage.bsky.social/post/3mjezkhacek2pWe're delighted NICE have approved Vorasidenib to treat people 12+ with IDH-mutated, low grade gliomas. The drug has shown to significantly slow tumour growth without negatively impacting quality of life. www.thebraintumourcharity.org/news/research-news/vorasidenib-approved-for-nhs-use-in-england/ https://www.thebraintumourcharity.org/news/research-news/vorasidenib-approved-for-nhs-use-in-england/?utm_source=linkedin&utm_medium=organic_social&utm_campaign=policy&utm_term=vorasidenib_update&utm_content=post13 Apr 2026 13:58 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mjezkhacek2phttps://bsky.app/profile/healthcareengage.bsky.social/post/3mgoyndt5es2wThe Scottish Medicines Consortium (SMC) has approved Vorasidenib for use by NHS Scotland to treat people aged 12 or older with IDH-mutated, low grade gliomas. Our CEO, Dr Micehele Afif, said "This is a moment of real celebration for the Scottish brain tumour community. Click below for more. https://www.thebraintumourcharity.org/news/research-news/vorasidenib-approved-for-use-in-scotland/?utm_source=linkedin&utm_medium=organic_social&utm_campaign=policy&utm_term=post&utm_content=scottish_annoucement10 Mar 2026 08:53 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mgoyndt5es2whttps://bsky.app/profile/healthcareengage.bsky.social/post/3mdi47aleq22dHere at Six Ways we made a difference in 2025 👇 Have a look in the comments at the amazing ways we have made a difference over the last 12mths. From launching our Translational and Quality of Life awards to a host of discoveries that have helped expand our understanding of brain tumours.28 Jan 2026 10:52 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mdi47aleq22dhttps://bsky.app/profile/healthcareengage.bsky.social/post/3mccn3d3wks26Are you aged between 18-25 and have been affected by a brain tumour diagnosis, whether that be your own or a loved one? Applications for our two-year, Young Ambassador programme are open until 9th of February! Apply here: https://www.thebraintumourcharity.org/about-us/who-we-are/our-young-ambassadors/13 Jan 2026 13:13 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mccn3d3wks26https://bsky.app/profile/healthcareengage.bsky.social/post/3mccn3d3wks26Are you aged between 18-25 and have been affected by a brain tumour diagnosis, whether that be your own or a loved one? Applications for our two-year, Young Ambassador programme are open until 9th of February! Apply here: https://www.thebraintumourcharity.org/about-us/who-we-are/our-young-ambassadors/13 Jan 2026 13:13 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mccn3d3wks26https://bsky.app/profile/healthcareengage.bsky.social/post/3mbodftuax22oFree Lunchtime Webinar – Supporting Young Adults with Acquired Brain Injury - https://www.rcn.org.uk/news-and-events/events/supporting-young-adults-with-acquired-brain-injury-071125 Date: Monday 9 February 2026 Time: 11:30-13:00 Location: Online Hear directly from project members and forum leads05 Jan 2026 11:27 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3mbodftuax22ohttps://bsky.app/profile/healthcareengage.bsky.social/post/3ma4aoyo6pk27Yesterday, we launched 'The Cost of a Brain Tumour: The Economic Case for Urgent Action' in Parliament, setting out the financial burden created by years of slow progress on brain tumours - and why this is not inevitable with the right national leadership. Click below for the full report: https://www.thebraintumourcharity.org/get-involved/campaigning-for-change/what-were-campaigning/cost-of-a-brain-tumour/?utm_source=linkedin&utm_medium=organic_social&utm_campaign=financial_impact_report_2025&utm_term=policy_team&utm_content=launch_post16 Dec 2025 13:25 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3ma4aoyo6pk27https://bsky.app/profile/healthcareengage.bsky.social/post/3m7kdmq2pcc2kAre you tapping into your Oncology Pharmacy service? Teams are saying they will sit in on their oncology clinic and the service is invaluable for explaining about the potential risks/side effects, administration and interactions of medications.09 Dec 2025 10:30 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3m7kdmq2pcc2khttps://bsky.app/profile/healthcareengage.bsky.social/post/3m7a6juy4is2lExcellent new report from @tessajowellbcm.bsky.social "Towards Excellence - Building a Better Future for Children With Brain Tumours" Please do download and have a read of the work being carried out by TJBCM https://www.tessajowellbraincancermission.org/wp-content/uploads/2025/12/TJ-CoE-for-Children-Report-2025.pdf05 Dec 2025 09:32 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3m7a6juy4is2lhttps://bsky.app/profile/healthcareengage.bsky.social/post/3m4d7cssldc2vA study published in the journal Clinical Oncology this week highlights significant geographical differences facing brain tumour patients accessing a type of precision radiotherapy in the UK. https://www.clinicaloncologyonline.net/article/S0936-6555(25)00202-X/fulltext29 Oct 2025 10:08 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3m4d7cssldc2vhttps://bsky.app/profile/healthcareengage.bsky.social/post/3m3p6nfwp3k2sClosing date is October 26th there is still time to come and join us You’ll support healthcare professionals in providing high quality patient care in the Young Adult/Paediatric Neuro-Oncology field which will make a real difference to patients lives https://careers.thebraintumourcharity.org/jobs/internal/79baa465-d582-4005-a6b4-bebb82a6997721 Oct 2025 11:03 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3m3p6nfwp3k2shttps://bsky.app/profile/healthcareengage.bsky.social/post/3m32nvvto4c2gImagine how rewarding it would be to use your experience in Neuro-Oncology/Oncology to drive real improvements to service and patient care for Young Adults/Paediatrics affected by a brain tumour We've an opportunity to do just that please see below https://careers.thebraintumourcharity.org/jobs/internal/79baa465-d582-4005-a6b4-bebb82a6997713 Oct 2025 07:10 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3m32nvvto4c2ghttps://bsky.app/profile/healthcareengage.bsky.social/post/3m2oc4c6ils23On Friday, while we were visiting the Neuro-Oncology team in Oxford, we visited the team at the Maggie's centre. It's always a pleasure being in such a lovely space that can be a sanctuary for so many living with cancer when they visit their hospital. Find out more here: www.maggies.org/our-centres/08 Oct 2025 09:07 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3m2oc4c6ils23https://bsky.app/profile/healthcareengage.bsky.social/post/3m2jdkbhzss2dWe have an exciting opportunity to join our Healthcare Engagement Team Are you currently working in TYA/Pediatrics & looking for a change? We have an exciting opportunity to join us working with all 49 Neuroscience centres across the UK Please share https://careers.thebraintumourcharity.org/jobs/6553839-senior-healthcare-engagement-nurse-ahp06 Oct 2025 09:50 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3m2jdkbhzss2dhttps://bsky.app/profile/healthcareengage.bsky.social/post/3lzq4av3sxk26We know the devastating impact receiving a brain tumour diagnosis can have, whether that be your own or a loved ones. Our support covers a wide range of inclusive and accessible services for everyone affected by a brain tumour, whether it’s low or high grade, adult or child. bit.ly/4gqh4JG26 Sep 2025 09:03 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3lzq4av3sxk26https://bsky.app/profile/healthcareengage.bsky.social/post/3lyzrbd7uws2iThere's a Patient and Carer edition of the BNOS 2025 conference 06/10/25 on Zoom 6.30 - 8.30pm Tickets on Eventbrite https://www.eventbrite.co.uk/e/bnos-2025-patient-and-carer-edition-tickets-1663136719699 Topics are on the Eventbrite link just scroll down to see. Please do sign up to attend and share with others who may find this useful.17 Sep 2025 11:47 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3lyzrbd7uws2ihttps://bsky.app/profile/healthcareengage.bsky.social/post/3lyfyei5o2k23Neuro-Oncology teams tell us that the number one thing they are asked about is finances and they're delighted to be able to signpost to our free benefits and money clinic: www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/benefits-clinic/ https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/benefits-clinic/09 Sep 2025 15:01 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3lyfyei5o2k23https://bsky.app/profile/healthcareengage.bsky.social/post/3ltmfpnbqb22kWe are delighted to announce that we have launched a brain metastases page on our website, co-produced with a Neuro-Oncology Clinical Nurse Specialist at Salford Royal NHS Foundation Trust https://www.thebraintumourcharity.org/brain-tumour-diagnosis-treatment/types-of-brain-tumour/brain-metastases/10 Jul 2025 13:10 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3ltmfpnbqb22khttps://bsky.app/profile/healthcareengage.bsky.social/post/3lwqkxrypwc24New Scottish guidelines aims to speed up brain tumour diagnosis. Read more here: https://www.thebraintumourcharity.org/news/policy-news/new-scottish-guidelines-aim-to-speed-up-brain-tumour-diagnosis/?utm_source=twitter&utm_medium=organic_social&utm_campaign=policy&utm_term=cancer_refferal_guidance_update&utm_content=link19 Aug 2025 09:10 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3lwqkxrypwc24https://bsky.app/profile/healthcareengage.bsky.social/post/3lv3q5xts2c2sOur Counselling Service Turns Three! We’ve delivered an incredible 8,808 sessions to 1,414 individuals navigating a brain tumour diagnosis, whether their own or a loved ones. A huge thank you to our amazing team of staff and volunteers! Find out more: https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/free-counselling-service/29 Jul 2025 08:52 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3lv3q5xts2c2shttps://bsky.app/profile/healthcareengage.bsky.social/post/3ltmfpnbqb22kWe are delighted to announce that we have launched a brain metastases page on our website, co-produced with a Neuro-Oncology Clinical Nurse Specialist at Salford Royal NHS Foundation Trust https://www.thebraintumourcharity.org/brain-tumour-diagnosis-treatment/types-of-brain-tumour/brain-metastases/10 Jul 2025 13:10 +0000at://did:plc:d2ctjmdds5nw3i5ksidtiffi/app.bsky.feed.post/3ltmfpnbqb22k