Securing Data. Advancing Knowledge. Transforming Care. @ATHN.org.https://bsky.app/profile/athnnews.bsky.socialhttps://bsky.app/profile/athnnews.bsky.social/post/3mukkvsnkpk2vNew ATHN research in Haemophilia: The ATHN 2 Factor Switching Study found no new inhibitors among evaluable, previously treated people with hemophilia A or B following a factor product switch. 🔗 Read the study: https://onlinelibrary.wiley.com/doi/10.1111/hae.70228 #ATHN #Hemophilia #RealWorldData02 Sep 2026 18:29 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mukkvsnkpk2vhttps://bsky.app/profile/athnnews.bsky.social/post/3mtyn5ifk5k2tHow do you balance bleeding risk with the very real risk of thrombosis in women and girls? Join Sweta Gupta, MD, MS, & Eman Abdelghani, MD, at #ATHNDataSummit for “May the Factor Be With Her: Navigating Thrombosis in Women & Girls.” Register: https://athn.org/events/data-summit.html #Thrombosis #BleedingDisorders26 Aug 2026 15:21 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mtyn5ifk5k2thttps://bsky.app/profile/athnnews.bsky.social/post/3mtjfwpq5c22gPhysicians: help shape what comes next in bleeding disorders care. Join the #ATHNDS26 Physician Think Tank to exchange ideas, tackle real-world clinical questions and help set priorities for future research and care. Register now: https://athn.org/events/data-summit.html20 Aug 2026 14:02 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mtjfwpq5c22ghttps://bsky.app/profile/athnnews.bsky.social/post/3mt2mdpploc2yHow do prior authorization requirements affect patient care? Join us for an inside look at new data evaluating clinical and administrative challenges at HTCs nationwide. Register NOW: https://athn.org/events/data-summit.html14 Aug 2026 16:47 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mt2mdpploc2yhttps://bsky.app/profile/athnnews.bsky.social/post/3mst5dfqkms2jWhat can natural history data teach us about Glanzmann thrombasthenia? Join Dr. Sridhar at #DataSummit26 for a look at how real-world data can deepen our understanding of this rare bleeding disorder and help shape future research and care. 🔗 https://athn.org/events/data-summit.html11 Aug 2026 17:30 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mst5dfqkms2jhttps://bsky.app/profile/athnnews.bsky.social/post/3mrupq3ivac2wNew interim ATHN 16 data show that eptacog beta effectively controlled breakthrough bleeds in people with hemophilia A and inhibitors receiving emicizumab, with most bleeds resolved after a single dose and no new safety concerns. tinyurl.com/ATHN16-Eptacog30 Jul 2026 15:06 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mrupq3ivac2whttps://bsky.app/profile/athnnews.bsky.social/post/3mqka3tfku22pFollowing participants over time reveals what single studies can't. At #ISTH2026, ATHN shared one of its first analyses linking ATHN 8 and ATHN Transcends, demonstrating increased prophylaxis use over time in people with moderate hemophilia. #RealWorldEvidence #BleedingDisorders #ATHN13 Jul 2026 17:35 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mqka3tfku22phttps://bsky.app/profile/athnnews.bsky.social/post/3mpybhcc4vk2uAttending #ISTH2026? Join ATHN for our oral and poster presentations highlighting the latest research in hemophilia, von Willebrand disease, rare coagulation disorders, and real-world evidence. We look forward to seeing you in Paris, July 11–15! #ATHN #ISTH2026 #Hemostasis06 Jul 2026 14:11 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mpybhcc4vk2uhttps://bsky.app/profile/athnnews.bsky.social/post/3mp77atcdss27New publication! Congratulations to the ATHN 16 investigators and research team on the publication of Safety and real-world effectiveness of eptacog beta with emicizumab prophylaxis: an interim analysis of ATHN 16 in Blood Vessels, Thrombosis & Hemostasis. Read the article: tinyurl.com/yrnf374u26 Jun 2026 14:55 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mp77atcdss27https://bsky.app/profile/athnnews.bsky.social/post/3mp2d2ab4tc2gHoliday Reminder. ATHN Transcends central laboratories may have modified schedules around the Fourth of July holiday. Please review the recent email communication and contact support@athn.org with any questions.24 Jun 2026 16:20 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mp2d2ab4tc2ghttps://bsky.app/profile/athnnews.bsky.social/post/3mokycxjdfs2hCongratulations to the first HTCs and investigators enrolling patients in the ATHN Transcends: INHIBIT Module! This important study will help advance our understanding of inhibitor development in children starting prophylaxis treatment. Learn more: tinyurl.com/ffd5f76b18 Jun 2026 13:58 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mokycxjdfs2hhttps://bsky.app/profile/athnnews.bsky.social/post/3mnx2q5tja22wBig ideas. Bold research. Real impact. Join the conversations shaping the future of bleeding disorders care, research, and data-driven discovery. Abstract Deadline: June 15 🔗 https://athn.org/events/data-summit.html #ATHNDS26 #Hemophilia #RareDisease #BleedingDisorders10 Jun 2026 15:48 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mnx2q5tja22whttps://bsky.app/profile/athnnews.bsky.social/post/3mnrxankvts2n⏰ Early registration for ATHN Data Summit 2026 ends June 18! Join us Oct. 21–22 in New Orleans for two days of discovery, collaboration, & innovation in blood disorders care as we celebrate 20 years of progress powered by data & driven by purpose. Register now and save at https://athn.org/events/data-summit.html08 Jun 2026 15:02 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mnrxankvts2nhttps://bsky.app/profile/athnnews.bsky.social/post/3mnf6xrzblk2l⏳ The countdown is on! Abstract submissions for #ATHNDS26 close on June 15. Share your discoveries, showcase your research, and join the scientific conversations advancing blood disorders care, research, and innovation. Submit your abstract today: athn.org/events/data-summit.html03 Jun 2026 13:16 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mnf6xrzblk2lhttps://bsky.app/profile/athnnews.bsky.social/post/3mmwvt2fs3s2xCall for Abstracts: ATHN Data Summit 2026. Share your discoveries. Advance future care. Submit your abstract highlighting research, ATHNdataset insights, quality improvement initiatives, and innovation across the blood disorders community. Deadline: June 15, 2026 Learn more: tinyurl.com/5n7bmxcc28 May 2026 20:55 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mmwvt2fs3s2xhttps://bsky.app/profile/athnnews.bsky.social/post/3mmwf5d7w4c2xNew research published in JPHO used the ATHNdataset to examine bleeding phenotypes in inherited platelet function disorders. Real-world data continues to advance understanding, support research, and help shape the future of blood disorders care. https://journals.lww.com/jpho-online/abstract/9900/bleeding_phenotypes_in_inherited_platelet_function.733.aspx28 May 2026 15:56 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mmwf5d7w4c2xhttps://bsky.app/profile/athnnews.bsky.social/post/3mmfa2dyzis2iEarly Registration for ATHN Data Summit 2026 has been extended through June 18! Join us Oct. 20–22 in New Orleans for research spotlights, real-world data insights, interactive discussions, specialty tracks, posters, networking & more as we celebrate 20 years of progress. #ATHNDS2621 May 2026 20:10 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mmfa2dyzis2ihttps://bsky.app/profile/athnnews.bsky.social/post/3mmckd2dm4c2k75 activated HTCs. 700+ participants enrolled. One nationwide effort advancing bleeding disorders research. 🩸 This #ClinicalTrialsDay, we thank the physicians, nurses, coordinators, data managers, researchers, & HTC teams helping turn participation, data, and collaboration into progress.20 May 2026 18:36 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mmckd2dm4c2khttps://bsky.app/profile/athnnews.bsky.social/post/3mmbz24n5jk2eAcross the #ATHN Network, physicians, nurses, coordinators, data managers, & research professionals are working together to advance discovery & improve care in bleeding disorders. This #ClinicalTrialsDay, we celebrate the people powering progress. #Hemophilia #ResearchRising20 May 2026 13:27 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mmbz24n5jk2ehttps://bsky.app/profile/athnnews.bsky.social/post/3mm7hqxtpyc2yRegistration Now for Georgia Clinical Trials Day 2026! 📅 June 13 | Atlanta, GA Join clinical research leaders for conversations on innovation, workforce readiness & patient access. Featuring Policy & Clinical Research Expert David Vulcano. Seats limited. Register Now: https://tinyurl.com/ClinicalTrialsDayMtg19 May 2026 13:12 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mm7hqxtpyc2yhttps://bsky.app/profile/athnnews.bsky.social/post/3mm5fq5wdds26There’s something for everyone at #ATHNDS26. Data managers, physicians, nurses, researchers, APPs, & healthcare leaders will gather for sessions on research, clinical care, data quality, operations, emerging science, posters & networking. Early Bird registration ends May 25. Register now and save.18 May 2026 17:30 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mm5fq5wdds26https://bsky.app/profile/athnnews.bsky.social/post/3mlqu23itrs2gDuring #NWHW2026, we’re raising awareness about bleeding disorders in women & girls through data from #CommunityCounts. This infographic highlights key insights helping advance awareness, education, & care across the community. Spanish-language version available. Learn More: tinyurl.com/yn8c9jp913 May 2026 17:42 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mlqu23itrs2ghttps://bsky.app/profile/athnnews.bsky.social/post/3mlnv3rsrdk2u⏰ Just 2 weeks left to save with Early Registration for ATHN Data Summit 2026! Join us Oct. 21–22 for: 🔹 Research & ATHNdataset insights 🔹 EMR integration & innovation 🔹 Physician, nursing & data sessions 🔹 Posters & networking Early Reg closes May 25. Register NOW! #ATHNDataSummit202612 May 2026 13:23 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mlnv3rsrdk2uhttps://bsky.app/profile/athnnews.bsky.social/post/3mllh66oofk2vCelebrating #ThePowerOfNurses w/ Norma Wolf, MBA, MSN, RN, Director of the Community Counts Surveillance Project at ATHN. For nearly 30 years, Norma has advanced care, research, & surveillance for people living w/ blood disorders through collaboration with the CDC & ATHN Affiliates. #NursesWeek202611 May 2026 14:08 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mllh66oofk2vhttps://bsky.app/profile/athnnews.bsky.social/post/3ml6t5jlzgk2mCelebrating #NationalNursesWeek 💙 Meet Anna Wiseman, BSN, RN, CPN, CCRC—research nurse at @childrensmercy.org. Inspired by her own patient journey, she now bridges care + innovation for families in hematology—and goes the distance as a marathon runner. #ATHN #NursesWeek06 May 2026 13:38 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3ml6t5jlzgk2mhttps://bsky.app/profile/athnnews.bsky.social/post/3ml4ho6s7cc2gCall for Abstracts now open for the #ATHN Data Summit 2026. This is an opportunity to share research, data insights, and quality improvement work with the bleeding disorders community. Submit by June 15, 2026: support@athn.org Details: https://athn.org/events/data-summit.html05 May 2026 15:07 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3ml4ho6s7cc2ghttps://bsky.app/profile/athnnews.bsky.social/post/3mkse6k5t422s#ATHN HTC Spotlight: Thanks to Dr. Clay Cohen, Janine Starks, & team at Texas Children’s Hemophilia & Thrombosis Center for enrolling 28 participants in #ATHNTranscends. “Our patients are always willing to help future generations,” says Starks. Advancing research through trust, compassion, & care.01 May 2026 14:38 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mkse6k5t422shttps://bsky.app/profile/athnnews.bsky.social/post/3mknbmdmadc2t10 years of advancing care & connection in the VWD community 💙 Join the 2026 Severe VWD Conference—bringing patients, caregivers & experts together. Travel, hotel & meals available for eligible attendees. Learn more + register: https://www.vwdconnect.org/2026-national-conference #VWD #RareDisease #CommunityCare29 Apr 2026 14:09 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mknbmdmadc2thttps://bsky.app/profile/athnnews.bsky.social/post/3mk6dvkdtq22tJOIN US! At ATHN Data Summit 2026, the focus is on turning data into action: • Physician Think Tank – clinical insight • Nursing Track – advancing care delivery • Data Management & EMR Integration – stronger data, better decisions Join the conversation → https://athn.org/events/data-summit.html23 Apr 2026 15:40 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mk6dvkdtq22thttps://bsky.app/profile/athnnews.bsky.social/post/3mjoyvgmylk2oToday, we recognize the clinicians, researchers, and advocates moving care forward across the bleeding disorders community. ATHN supports this work through data, research, and collaboration to help improve the lives of patients and families.17 Apr 2026 13:13 +0000at://did:plc:faqlpkpdi63fsucljcsa26cy/app.bsky.feed.post/3mjoyvgmylk2o