Project group leader @ MPI Dortmundhttps://bsky.app/profile/thorstenwagner.bsky.socialhttps://bsky.app/profile/thorstenwagner.bsky.social/post/3mh2aa3riac25🫁 Had my lung capacity measured recently. Nurse asks with concern: "Have you started smoking?" Me: "No, but I recently started smoking crack." Dead silence. Pen hovering mid-air. Pure confusion. She did not put that in my chart. 💀14 Mar 2026 20:08 +0000at://did:plc:fv4tdvbqfmteo3fb5lymutia/app.bsky.feed.post/3mh2aa3riac25https://bsky.app/profile/thorstenwagner.bsky.social/post/3mg65qwy3i226is here someone who knows speech synthesis with XTTS v2 really well?03 Mar 2026 16:09 +0000at://did:plc:fv4tdvbqfmteo3fb5lymutia/app.bsky.feed.post/3mg65qwy3i226https://bsky.app/profile/thorstenwagner.bsky.social/post/3mg3xxjootk2f1/2 I'm part of the ANQUR clinical trial by QurAlis – testing QRL-201, a drug designed to restore a protein called STATHMIN-2 that most ALS patients lose. Interim data published last week show promising results. https://www.quralis.com/news/quralis-demonstrates-effects-on-disease-progression-and-target-engagement-in-anqur-clinical-trial-of-qrl-201-a-first-in-class-precision-medicine-in-development-for-sporadic-als/02 Mar 2026 19:20 +0000at://did:plc:fv4tdvbqfmteo3fb5lymutia/app.bsky.feed.post/3mg3xxjootk2fhttps://bsky.app/profile/thorstenwagner.bsky.social/post/3mfx6vbsnds2l1/5 ALS takes a lot. But it doesn't take curiosity. A new thread: how I stay motivated – through projects that are meaningful, or simply fun 🧵28 Feb 2026 21:41 +0000at://did:plc:fv4tdvbqfmteo3fb5lymutia/app.bsky.feed.post/3mfx6vbsnds2lhttps://bsky.app/profile/thorstenwagner.bsky.social/post/3mfokzryo72241/6 Living with ALS also means this: learning to count your privileges. A thread. [contains quote post or other embedded content]25 Feb 2026 11:24 +0000at://did:plc:fv4tdvbqfmteo3fb5lymutia/app.bsky.feed.post/3mfokzryo7224https://bsky.app/profile/thorstenwagner.bsky.social/post/3mfmrl52zis2gNo ventilation is necessary (yet). [contains quote post or other embedded content]24 Feb 2026 18:16 +0000at://did:plc:fv4tdvbqfmteo3fb5lymutia/app.bsky.feed.post/3mfmrl52zis2ghttps://bsky.app/profile/thorstenwagner.bsky.social/post/3mfesju7ons2aOne first decision after diagnosis was that I would continue: continue to work, continue to have fun, continue to laugh, continue to hope. Luckily I was always a person with a quite digital life. Using eye tracking you can still do a lot. Especially as a software developer. [contains quote post or other embedded content]21 Feb 2026 14:12 +0000at://did:plc:fv4tdvbqfmteo3fb5lymutia/app.bsky.feed.post/3mfesju7ons2ahttps://bsky.app/profile/thorstenwagner.bsky.social/post/3mf7gurht4c2tIn September 2024, I was diagnosed with ALS. Today, I can no longer speak, I am confined to a wheelchair, and I can no longer move my arms. It's really shitty. I will write here soon about how I am coping with this and how I am trying to stay cheerful. #ALS19 Feb 2026 11:00 +0000at://did:plc:fv4tdvbqfmteo3fb5lymutia/app.bsky.feed.post/3mf7gurht4c2thttps://bsky.app/profile/thorstenwagner.bsky.social/post/3mf7gurht4c2tIn September 2024, I was diagnosed with ALS. Today, I can no longer speak, I am confined to a wheelchair, and I can no longer move my arms. It's really shitty. I will write here soon about how I am coping with this and how I am trying to stay cheerful. #ALS19 Feb 2026 11:00 +0000at://did:plc:fv4tdvbqfmteo3fb5lymutia/app.bsky.feed.post/3mf7gurht4c2t