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<rss version="2.0"><channel><description>A patient led charity supporting and empowering those affected by CLL and SLL in the UK.</description><link>https://bsky.app/profile/cllsupport.bsky.social</link><title>@cllsupport.bsky.social - CLL Support</title><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mll2w67als2e</link><description>Two surveys are now open:&#xA;&#xA;🩺 One for people living with CLL/SLL in the UK&#xA;https://opinions.research-interactive.com/survey/selfserve/1c3c/260101?list=9&#xA;&#xA;❤️ One for their partners, family, and friends&#xA;https://opinions.research-interactive.com/survey/selfserve/1c3c/260400?list=9&#xA;&#xA;Your experiences will help shape future support.&#xA;#yourvoicematters</description><pubDate>11 May 2026 10:29 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mll2w67als2e</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mk42f5lw3c2o</link><description>The recordings from our recent Leeds Conference are now available to watch on our YouTube channel.&#xA;&#xA;https://www.youtube.com/playlist?list=PLiJKYfC3lB_VxlW8oJOGTZISWwDwtZVj0</description><pubDate>22 Apr 2026 17:44 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mk42f5lw3c2o</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mjurgphtfs2w</link><description>Opportunity to live your inner #strictly 🕺💃&#xA;&#xA;Email diogo.byrnetemudodecastro@plymouth.ac.uk for more information, or to take part.&#xA;&#xA;#latindanceclass&#xA;#cll #fatigue #research</description><pubDate>19 Apr 2026 20:15 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mjurgphtfs2w</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mjuosvyan22v</link><description>The Scottish Medicines Consortium (SMC) approved an additional treatment for CLL earlier this month, on 13th April. The combination therapy of acalabrutinib and venetoclax with or without obinutuzumab was approved for first line therapy in previously untreated patients with CLL.</description><pubDate>19 Apr 2026 19:29 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mjuosvyan22v</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mj5mdwhjik24</link><description>📣 Bookings are now open for our free to attend Birmingham Conference. &#xA;&#xA;Our keynote speaker is Dr Helen Parry, Honorary Consultant Haematologist at The Queen Elizabeth Hospital, Birmingham. Helen will be joined by Lewis Oxley, Specialist Dietician - Haematology and Oncology.</description><pubDate>10 Apr 2026 15:13 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mj5mdwhjik24</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3midvyoiejs2o</link><description>COULD DANCE HELP WITH FATIGUE IN CLL?  A research study recruiting in the South West of England.&#xA;&#xA;Email diogo.byrnetemudodecastro@plymouth.ac.uk for more information.&#xA;&#xA;#dance&#xA;#danceclasses &#xA;#fatigue &#xA;&#xA;💃🕺</description><pubDate>31 Mar 2026 09:57 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3midvyoiejs2o</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mhxccwwuek2k</link><description>The link to watch the livestream of today&#39;s conference has been emailed to everyone on our mailing list. Check your inbox 😊 The conference starts at 10am</description><pubDate>26 Mar 2026 09:32 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mhxccwwuek2k</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mgcdmfc4hc2o</link><description>On #WorldBookDay why not download a free copy of our information booklet.&#xA;&#xA;https://cllsupport.org.uk/information-support/further-information-resources/order-publications/&#xA;&#xA;#information #booklet</description><pubDate>05 Mar 2026 08:05 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mgcdmfc4hc2o</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mg6qk4vcjk2a</link><description>If you missed our recent webinar about the latest research into CLL and SLL, the recording is now available to watch on our YouTube channel&#xA;&#xA;https://youtube.com/playlist?list=PLiJKYfC3lB_UJlxEc35P5_KCuxINKVMDm&amp;si=Fu2RTi74rYSCyRJZ</description><pubDate>03 Mar 2026 21:45 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mg6qk4vcjk2a</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3melxckqkks2x</link><description>We are delighted to announce that we have received a grant of £30,000 from the Postcode Lottery Community Trust. This has been made possible by players of People&#39;s Postcode Lottery - thank you so, so much. 😊&#xA;&#xA;#peoplespostcodelottery &#xA;#thankyouforyoursupport</description><pubDate>11 Feb 2026 17:01 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3melxckqkks2x</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mdzg622nxc2l</link><description>On World Cancer Day, let’s honour those we’ve lost, support those living with cancer, and raise awareness for better prevention and treatment options. &#xA;&#xA;#WorldCancerDay #UnitedByUnique #bloodcancer #ChronicLymphocyticLeukemia</description><pubDate>04 Feb 2026 08:06 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mdzg622nxc2l</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mdn5ssbwqc2e</link><description>Link for people in the UK with CLL/SLL:&#xA;&#xA;https://app.onlinesurveys.jisc.ac.uk/s/cllsa/understanding-fatigue-in-people-living-with-chronic-lymphocyt-5&#xA;&#xA;Link for family/friends of a similar age in the UK who do not have CLL/SLL:&#xA;&#xA;https://app.onlinesurveys.jisc.ac.uk/s/cllsa/an-assessment-of-fatigue-in-people-who-do-not-have-chronic-ly-3</description><pubDate>30 Jan 2026 11:04 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mdn5ssbwqc2e</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3mckm64i7qk2b</link><description>This is a really important piece of research. Fatigue affects many people with CLL and SLL, but is often dismissed by doctors. &#xA;&#xA;If you haven&#39;t subscribed to receive our emails you can do so here: https://cllsupport.org.uk/newsletter-sign-up/</description><pubDate>16 Jan 2026 17:18 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3mckm64i7qk2b</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3m7vaizkj4s2h</link><description>The CLL community have lost an amazing advocate. We send our deepest condolences to Lelia&#39;s family and friends 💗&#xA;&#xA;Lelia really wanted the CLL Forum to flourish. We can pay no better tribute to Lelia at this time than to share the Forum&#39;s in memoriam post.</description><pubDate>13 Dec 2025 18:33 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3m7vaizkj4s2h</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3m7lawozkk22m</link><description>The recordings from our recent Newcastle conference are now available on our YouTube channel&#xA;&#xA;https://www.youtube.com/playlist?list=PLiJKYfC3lB_Vy7o2hkzaXQcGbEhKTRnPZ</description><pubDate>09 Dec 2025 19:14 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3m7lawozkk22m</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3m6kc34hsp223</link><description>Did you know our website aims to be more inclusive by using the Recite Me Assistive Toolbar?&#xA;&#xA;Visitors can personalise their experience and access content in the way that works best for them. &#xA;&#xA;#Inclusion #ReciteMe #Accessibility #AssistiveTools</description><pubDate>26 Nov 2025 16:37 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3m6kc34hsp223</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lzfqfaqilk26</link><description>In our 4th and final video for Blood Cancer Awareness Month we explore how CLL Support and our members can THRIVE.&#xA;&#xA;#BloodCancer &#xA;#BloodCancerAwarenessMonth &#xA;#CLL #SLL&#xA;#thrive&#xA;&#xA;youtu.be/EIgfY5kAz9I&#xA;https://youtu.be/EIgfY5kAz9I</description><pubDate>22 Sep 2025 06:04 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lzfqfaqilk26</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lyu4363jvc2v</link><description>In our 3rd video for Blood Cancer Awareness Month we explore how we REPRESENT people with CLL and SLL&#xA;&#xA;youtu.be/ftCBbo-jFw8&#xA;&#xA;#BloodCancerAwarenessMonth &#xA;#CLL &#xA;#SLL &#xA;#represent&#xA;https://youtu.be/ftCBbo-jFw8</description><pubDate>15 Sep 2025 05:45 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lyu4363jvc2v</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lxr4e7ran22y</link><description>World CLL Day provides us with a unique opportunity to unite with Patient Advocate colleagues worldwide, highlighting what it means to live with CLL.&#xA;&#xA;The theme for this year is &#34;UNDERSTAND, DECIDE, THRIVE.&#34;&#xA;&#xA;#worldcllday&#xA;#WCLLD25</description><pubDate>01 Sep 2025 07:47 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lxr4e7ran22y</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lxn2lyiwpk2w</link><description>You can find out more about our events on our website www.cllsupport.org.uk</description><pubDate>30 Aug 2025 17:05 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lxn2lyiwpk2w</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lurpuutgmk2i</link><pubDate>25 Jul 2025 09:20 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lurpuutgmk2i</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lukfei7hls2e</link><description>Article by Dr David Bartlett based on research into the benefits of exercise for people with CLL &#xA;&#xA;https://theconversation.com/exercise-could-ease-symptoms-for-people-with-chronic-lymphocytic-leukaemia-cll-new-study-261221</description><pubDate>22 Jul 2025 11:24 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lukfei7hls2e</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lu3trlr6ms2l</link><description>Huge congratulations and many thanks to Michelle Brotherton for completing a skydive last weekend in aid of CLL Support 🪂&#xA;&#xA;Michelle&#39;s JustGiving page can be found here: https://www.justgiving.com/page/michelle-brotherton-3?utm_medium=FR&amp;utm_source=CL&#xA;&#xA;#skydive&#xA;#skydiveforcharity</description><pubDate>16 Jul 2025 16:32 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lu3trlr6ms2l</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lttcrfrev22s</link><description>Good luck today on your Bantham Boomerang swim in aid of CLL Support Mark 🏊‍♂️🏊‍♂️&#xA;&#xA;[contains quote post or other embedded content]</description><pubDate>13 Jul 2025 07:06 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lttcrfrev22s</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3ltjinq22w222</link><description>Just got some amazing news to share! 🎉&#xA;&#xA;CLL Support has been awarded the PIF TICK certification - basically the gold standard for health information in the UK.</description><pubDate>09 Jul 2025 09:25 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3ltjinq22w222</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3ltf7tu3xhc2d</link><description>After successful conferences in Oxford, Exeter and Belfast this year, we take a break over the Summer. Our next conferences will be in Manchester and Newcastle upon Tyne. Save the dates in your diary now if you&#39;d like to attend.&#xA;&#xA;#cll #conferences</description><pubDate>07 Jul 2025 16:36 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3ltf7tu3xhc2d</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lsc6qoynuk27</link><description>Healthy changes start with little changes. Whether you want to lose weight, be more active, drink less alcohol or quit smoking, did you know the NHS has free tools and support through Better Health? www.nhs.uk/better-health/</description><pubDate>23 Jun 2025 18:14 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lsc6qoynuk27</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3ls7s6i75d22a</link><description>Our Summer newsletter is due out soon. If you haven&#39;t signed up to receive our free email newsletters and bulletins you can do so here: https://cllsupport.org.uk/newsletter-sign-up/</description><pubDate>22 Jun 2025 19:23 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3ls7s6i75d22a</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lrup7coyos2d</link><description>Find out more about Mark White&#39;s open water swim in aid of CLL Support on his JustGiving page:&#xA;https://www.justgiving.com/page/mark-white-5</description><pubDate>18 Jun 2025 09:31 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lrup7coyos2d</guid></item><item><link>https://bsky.app/profile/cllsupport.bsky.social/post/3lrs226zoy22s</link><description>The recordings from our recent joint conference with CLL Ireland are now available to watch on our YouTube channel&#xA;&#xA;https://www.youtube.com/playlist?list=PLiJKYfC3lB_UMSQ6wFEggC5_SKxZh6OaZ</description><pubDate>17 Jun 2025 08:07 +0000</pubDate><guid isPermaLink="false">at://did:plc:fxnlvrm4sdr5dstqakel27eh/app.bsky.feed.post/3lrs226zoy22s</guid></item></channel></rss>