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<rss version="2.0"><channel><description>To those lacking effective treatment options: We hear you. And we are relentlessly driving toward much-needed solutions. #MELAS #MitochondrialDisease</description><link>https://bsky.app/profile/tisentotx.bsky.social</link><title>@tisentotx.bsky.social - Tisento Therapeutics</title><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mvx5paywv32n</link><description>Today is the last day of #WorldMitoWeek2026 – but the impact and momentum keep growing, and more people are finding connection, support, and hope. #PuttingMitoOnTheMap #MitochondrialDisease #Biosky</description><pubDate>20 Sep 2026 12:03 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mvx5paywv32n</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mvvm3io4v52k</link><description>We’re thrilled to see so many buildings lit up green for #MitochondrialDiseases tonight! This vibrant global display raises awareness, sparks important conversations, and shows support for the mito community. #WorldMitoWeek2026 #PuttingMitoOnTheMap @MitoAware #Biosky</description><pubDate>19 Sep 2026 21:15 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mvvm3io4v52k</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mvsezb3b7u23</link><description>Progress for #MitochondrialDisease depends on collaboration. That’s why we’re dedicated to listening to and partnering with patients, families, clinicians, advocates, and patient orgs. Together, we’re #PuttingMitoOnTheMap. #WorldMitoWeek2026 @MitoAware #Biosky</description><pubDate>18 Sep 2026 14:30 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mvsezb3b7u23</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mvpioa5n522p</link><description>#PuttingMitoOnTheMap starts with people – speaking up, sharing info, elevating patient voices. We’re proud to support the advocacy groups across the globe who are working tirelessly to ensure mito is recognized. #WorldMitoWeek2026 #MitochondrialDisease #Biosky</description><pubDate>17 Sep 2026 10:58 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mvpioa5n522p</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mvn5esax7i23</link><description>#MitochondrialDisease can affect any organ, at any age, with a wide range of symptoms, making it one of the most challenging conditions to recognize. But better awareness creates opportunities for meaningful and lasting change. @MitoAware #WorldMitoWeek2026 #PuttingMitoOnTheMap #Biosky</description><pubDate>16 Sep 2026 12:30 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mvn5esax7i23</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mvlk7znmtl2y</link><description>#DidYouKnow: There are hundreds of #MitochondrialDiseases, many of which are individually rare. Collectively, approximately 1.5 million people worldwide live with mito. We’re focused on #MELAS. #WorldMitoWeek2026 #PuttingMitoOnTheMap #Biosky https://www.tisentotx.com/mito-diseases#melas</description><pubDate>15 Sep 2026 21:15 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mvlk7znmtl2y</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mvkrala4ls2n</link><description>It’s #WorldMitoWeek2026! We’re energized by the opportunity to join the global advocacy community to raise awareness of these challenging diseases. This year we’re focused on #PuttingMitoOnTheMap, making mito more visible globally and connecting people across borders. #Biosky</description><pubDate>15 Sep 2026 13:48 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mvkrala4ls2n</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mv3obt3quq2u</link><description>Check out this #UMDF video to hear Brooke’s #MELAS story, told by her parents Bronya and Neil. Her long journey to a correct diagnosis began after a stroke-like episode as an adult. Brooke’s story inspires our work. #MitochondrialDisease #WeHearYou #ICYMI #Biosky www.umdf.org/melas/</description><pubDate>09 Sep 2026 13:45 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mv3obt3quq2u</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mueudttxwg23</link><description>Meet Patricia, living with #MELAS, in the #UMDF “Our MELAS Story” video series. We are dedicated to understanding what matters most to those with this rare #MitochondrialDisease so we can work to improve the lives of people like Patricia. #WeHearYou #Biosky www.umdf.org/melas/ #ICYMI</description><pubDate>31 Aug 2026 12:02 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mueudttxwg23</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mtw5yjqvru24</link><description>Chelsea has faced many challenges on her journey with #MELAS, and her mom Alysia supports and advocates for her every step of the way. Hear the Hauner family’s powerful story in this #UMDF video: www.umdf.org/melas/ #MitochondrialDisease #Biosky #ICYMI</description><pubDate>25 Aug 2026 15:45 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mtw5yjqvru24</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mtgm437erp24</link><description>Meet the Sterchi family and find out how Steve and Jamie are supporting their son Brady in his #MELAS journey. The #UMDF video series shares Brady’s diagnostic odyssey and how this rare #MitochondrialDisease impacts the family’s daily lives. #Biosky www.umdf.org/melas/ #ICYMI</description><pubDate>19 Aug 2026 11:15 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mtgm437erp24</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3msxgsq7ac327</link><description>Last year, we partnered with #Mitocon to share stories of those impacted by #MELAS. It was a privilege to get to know Roberto and Anna, who have been married for 30+ years. See their story (Italian w/ English subtitles): youtu.be/mwkczr_QDxg #MitochondrialDisease #Biosky #ICYMI</description><pubDate>13 Aug 2026 10:30 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3msxgsq7ac327</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3msatgr2yiq2g</link><description>Last year, we partnered with #Mitocon to share stories of those impacted by #MELAS. We were honored to get to know Morena, retired nurse and mom, and learn more about her journey. Watch here (Italian w/ English subtitles): youtu.be/bFciPejLNPg #Mitochondrial Disease #Biosky #ICYMI</description><pubDate>04 Aug 2026 10:45 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3msatgr2yiq2g</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mradaknj362d</link><description>What’s on your #SummerReads list? We’re adding “The Donkey and the Cart” – by Charles A. Mohan Jr., founder of #UMDF, coming soon. We’re looking forward to learning more about UMDF’s grassroots beginnings &amp; honoring the legacy of his daughter Gina. #MELAS #MitochondrialDisease #SummerReads #Biosky</description><pubDate>22 Jul 2026 12:30 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mradaknj362d</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3movb2g5mkk25</link><description>That’s a wrap on #MitoMed! We’re grateful to the #UMDF for bringing everyone together, and we’re already looking forward to next year! #MitochondrialDisease #MELAS #WeHearYou #Biosky</description><pubDate>22 Jun 2026 16:01 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3movb2g5mkk25</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mopmplsti22t</link><description>Don’t miss the #MELAS Masterclass at #UMDF #MitoMed! Leading #MitochondrialDisease clinicians and researchers will educate about this #RareDisease, and an individual living with MELAS will share their lived experiences in an interview. #Biosky</description><pubDate>20 Jun 2026 10:14 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mopmplsti22t</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3moi5rj46a42l</link><description>We’re coming full circle at #MitoMed, presenting the results of the mitoARCH study we sponsored at last year’s conference. The study focused on cognitive health, an under-researched aspect of #MitochondrialDisease. Check out the poster tonight or tomorrow! #UMDF #Biosky</description><pubDate>17 Jun 2026 10:58 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3moi5rj46a42l</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3modsu7opwi2s</link><description>The #UMDF #MitoMed Conference is just around the corner! We’re highlighting our #MitochondrialDisease clinical program, including the fully enrolled Phase 2b PRIZM #MELAS study and the mitoARCH study we sponsored at last year’s conference. Stop by our booth to learn more! #WeHearYou #Biosky</description><pubDate>15 Jun 2026 17:32 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3modsu7opwi2s</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mnhyxt55zi2h</link><description>We had a wonderful few days at #Euromit2026 with many of the leading mitochondrial medicine researchers and clinicians around the world. Thanks for sharing your important work and learning about ours! #PRIZM #MELAS #MitochondrialDisease #Biosky @euromit-2026.bsky.social</description><pubDate>04 Jun 2026 16:06 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mnhyxt55zi2h</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mmye6yx5v62y</link><description>Bonjour, Angers! #Euromit2026 starts in two days, and we are energized! Visit us at our booth to learn more about our clinical program in #MitochondrialDisease, including our fully enrolled Phase 2b PRIZM study in #MELAS. #WeHearYou #Biosky @euromit-2026.bsky.social</description><pubDate>29 May 2026 10:45 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mmye6yx5v62y</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mmr3rvld4f2s</link><description>Next month we’re off to #UMDF #MitoMed Conference, which provides an opportunity for researchers &amp; drug developers like us to meet patients &amp; families. These interactions are critical for meaningful innovation, enabling deeper understanding of lived experiences. #WeHearYou #Biosky</description><pubDate>26 May 2026 13:26 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mmr3rvld4f2s</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mm4p2wlfcz2f</link><description>Looking forward to #Euromit2026 this month! As a Silver Sponsor, we’re proud to support 5 days of cutting-edge science and networking among those committed to improving outcomes for people with #MitochondrialDiseases like #MELAS. @euromit-2026.bsky.social #Biosky https://www.euromit2026.eu/program-overview/</description><pubDate>18 May 2026 10:45 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mm4p2wlfcz2f</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mkpoyqljqs2r</link><description>Check out this #Rareatives interview with our VP of Clinical Research, Chad Glasser! He discusses patient-informed #RareDisease trials, the recent #MELAS EL-PFDD meeting led by #MitoAction, and the completion of enrollment in our Ph2b PRIZM study. #Biosky https://rareatives.com/2026/04/29/tisento-therapeutics-chad-glasser-discusses-prizm-trial-zagociguat-development-for-melas/</description><pubDate>30 Apr 2026 13:14 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mkpoyqljqs2r</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mh6gpqaqx62y</link><description>It’s #BrainAwarenessWeek! Many #MitochondrialDiseases can have negative implications for brain health. That’s because the brain requires a massive amount of energy, which can only be sufficiently produced when mitochondria are functioning well. #UMDF #Biosky</description><pubDate>16 Mar 2026 12:15 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mh6gpqaqx62y</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mgpd4zk2ki2l</link><description>Learnings from #RareDisease #ClinicalDevelopment are shaping the future of medicine–  from sharpened trial design discipline and innovation to deepened collaborations with patients, families, and other stakeholders around the world. #WeHearYou #Biosky &#xA;https://www.the-scientist.com/what-rare-disease-research-teaches-us-about-the-future-of-precision-medicine-74100</description><pubDate>10 Mar 2026 12:01 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mgpd4zk2ki2l</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mfw6hzzy422g</link><description>Today is #RareDiseaseDay. We stand with the 300 million people globally who live with a rare disease, including those with rare #MitochondrialDiseases like #MELAS. Read stories of #RareDisease heroes: www.rarediseaseday.org/heroes/ #Biosky</description><pubDate>28 Feb 2026 12:01 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mfw6hzzy422g</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3mfjzmga3sd2v</link><description>There are 6,000+ rare diseases—and expertise and information are often scarce. In health systems designed for common diseases, rare diseases often face inequities. https://download2.rarediseaseday.org/2025/campaign_materials/Toolkits/Equity_Toolkit.pdf #RareDiseaseDay #HealthEquity #MitochondrialDisease #MELAS #Biosky&#xA;https://youtu.be/7J1oTfoIOGw</description><pubDate>23 Feb 2026 16:02 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3mfjzmga3sd2v</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3meizg3sux42j</link><description>The #MELAS Externally Led Patient-Focused Drug Development meeting is today! Hosted by #MitoAction, the event invites those affected by MELAS to share their experiences and be part of shaping #MitochondrialDisease care and treatment. https://www.mitoaction.org/join-the-cause/patient-focused-drug-development-meeting-on-melas/ #Biosky</description><pubDate>10 Feb 2026 13:00 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3meizg3sux42j</guid></item><item><link>https://bsky.app/profile/tisentotx.bsky.social/post/3me4h7tia2f2e</link><description>Next week, #MitoAction is hosting an Externally Led Patient-Focused Drug Development meeting dedicated to #MELAS. We’re proud to sponsor this important opportunity to elevate MELAS voices. Virtual event open to all! Register: https://www.mitoaction.org/join-the-cause/patient-focused-drug-development-meeting-on-melas/ #Biosky</description><pubDate>05 Feb 2026 13:03 +0000</pubDate><guid isPermaLink="false">at://did:plc:hy4ptr7gmkjmgvebjm2iphsv/app.bsky.feed.post/3me4h7tia2f2e</guid></item></channel></rss>