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<rss version="2.0"><channel><description>🔸 Alzheimer&#39;s caregiver&#xA;🔸 Unpaidcarer&#xA;🔸 Blogger: DementiaWho.com&#xA;🔸 Caring for mum with Alzheimer&#39;s 10yrs 💜</description><link>https://bsky.app/profile/dementiawho.bsky.social</link><title>@dementiawho.bsky.social - Dementia Who!</title><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3mfmiq735j22y</link><description>Day 7 Ramadan: Feeling wonderful today, happy and revitalised, sun has been out all day, not sure if its that or not, but hadn&#39;t realised how down in the dumps i&#39;d actually been feeling. Deep breaths, face to the sun, lovely! Hope you&#39;ve had the sun and a lovely day too!</description><pubDate>24 Feb 2026 15:38 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3mfmiq735j22y</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3md4bk7v2g22g</link><description>Hi, I’m Kat, &#xA;It’s the anniversary of my mum’s death this week &amp; I&#39;ve made quite a terrifying step of sharing my first YouTube video about starting again 1 year later&#xA;&#xA;I&#39;d appreciate you taking a look. Promise kept, finally&#xA; #grief #caregiving&#xA;fyi @massagefordementia.co.uk &#xA;https://youtu.be/CBF_LtS6e5k?si=awXTec7a8Z69i-lW</description><pubDate>23 Jan 2026 17:56 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3md4bk7v2g22g</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m7fdfx3qdk24</link><description>This week is #NationalGriefAwarenessWeek. I’ve been thinking about how difficult it’s going to be to carry grief across Christmas &amp; New Year celebrations.&#xA;I&#39;ve written about things that could help as mum started to decline in Xmas &amp; I lost her in the New Year&#xA;https://dementiawho.com/coping-with-grief-this-christmas/</description><pubDate>07 Dec 2025 10:43 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m7fdfx3qdk24</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m7cu7ied322t</link><description>There are days when “I’m okay” is the only answer I can give.&#xA;&#xA;Talking about grief can open up more than people expect.&#xA;They don’t see the holding back, the editing, the effort to stay composed.&#xA;&#xA;This is what grief actually looks like.&#xA;#NationalGriefAwarenessWeek #griefjourney</description><pubDate>06 Dec 2025 11:05 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m7cu7ied322t</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m735sxblts22</link><description>It’s #NationalGriefAwarenessWeek , so I wanted to talk about the parts of grief that rarely get mentioned, especially after caring for a loved one with dementia.&#xA;The reality is you cope with the support you have, or you reach a point where you need more help.</description><pubDate>03 Dec 2025 09:36 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m735sxblts22</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m6reu57ats26</link><description>Gwent Carer&#39;s Hub are offering their annual carer activity packs, they have limited availability so its on a first come first serve basis. We got one last year full of art supplies, but I don&#39;t know what&#39;s in this years.  Well worth trying to get one!</description><pubDate>29 Nov 2025 12:15 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m6reu57ats26</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m6f2p6hogs2d</link><description>Just watched Chris Hemsworth: A Road to Remember, documentary about taking his dad, who’s living with Alzheimer’s, on a road trip. It shows how reminiscence therapy &amp;social connection can be very powerful emotional tools, read my review&#xA;Watch it on Disney+&#xA;https://dementiawho.com/chris-hemsworth-a-road-to-remember/</description><pubDate>24 Nov 2025 14:41 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m6f2p6hogs2d</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m5xsdcp5qh26</link><description>Alzheimer&#39;s and dementia mortality at highest level since 2000 https://www.bbc.com/news/articles/crklgzdx6n0o</description><pubDate>19 Nov 2025 08:07 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m5xsdcp5qh26</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m5veza7juk2b</link><description>Yes, No, Maybe... Where Do You Stand On The Top 12 Arguments In Adult Social Care? | The King&#39;s Fund https://www.kingsfund.org.uk/insight-and-analysis/long-reads/current-arguments-adult-social-care-reform</description><pubDate>18 Nov 2025 09:03 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m5veza7juk2b</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m5veowltkr2n</link><description>Dementia care without locked doors? Inclusion is becoming more common : Shots - Health News : NPR https://www.npr.org/sections/shots-health-news/2025/11/17/nx-s1-5600877/dementia-alzheimers-care-housing-senior-living-inclusion-segregation</description><pubDate>18 Nov 2025 08:58 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m5veowltkr2n</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m5vek3r7fz2w</link><description>“I want people to see me, not my dementia” https://www.stir.ac.uk/news/2025/november-2025-news/i-want-people-to-see-me-not-my-dementia/</description><pubDate>18 Nov 2025 08:55 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m5vek3r7fz2w</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m5veh5hpiw27</link><description>“Every day is different”: Pauline Quirke’s son shares moving dementia update ahead of “emotional” challenge https://www.goodhousekeeping.com/uk/lifestyle/a69456515/pauline-quirke-dementia-son-challenge/</description><pubDate>18 Nov 2025 08:53 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m5veh5hpiw27</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m5sr3rx5c72l</link><description>Memory Matters Weekly is out.&#xA;&#xA;This week:&#xA;• A THC–CBD dementia trial showing measurable cognitive improvement&#xA;• A Mayo Clinic tool predicting Alzheimer’s risk years before symptoms&#xA;• New data showing lower-income and minority groups face more Alzheimer’s risk factors&#xA;&#xA;Read here:&#xA;https://buff.ly/e0BLprY</description><pubDate>17 Nov 2025 08:02 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m5sr3rx5c72l</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m5gis4typc24</link><description>Beyond excited to listen to this, check out the podcast below!&#xA;&#xA;[contains quote post or other embedded content]</description><pubDate>12 Nov 2025 11:01 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m5gis4typc24</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m5b3teykud26</link><description>New issue of Memory Matters Weekly is out.&#xA;💡 Walking 3000- 5,000 steps a day linked to slower Alzheimer’s decline&#xA;🧠 A discovery that could explain why loved ones are forgotten&#xA;👩🏽⚕️ The NHS’s new dementia research nurses&#xA;&#xA;Three stories linking science, care, and hope:&#xA;https://buff.ly/MejhIi3</description><pubDate>10 Nov 2025 07:26 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m5b3teykud26</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m56lvo6nks2c</link><description>I used to think helping meant doing everything. Now I know it also means knowing when to stop.&#xA;&#xA;“Safety without smothering” is a balance every caregiver faces, keeping a loved one with #dementia, safe without taking away who they are.&#xA;&#xA;New Blog : buff.ly/szgSF9R&#xA;&#xA;#Dementia #Caregivers #Independence&#xA;https://buff.ly/szgSF9R</description><pubDate>09 Nov 2025 07:35 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m56lvo6nks2c</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m4zmznu7km26</link><description>Show 1451: Rethinking Dementia: Is What We Believed about Alzheimer’s Wrong? | The People&#39;s Pharmacy&#xA;&#xA;&#34;Instead of focusing only on amyloid plaque in the brain, should we be rethinking dementia? Multiple interventions could protect cognition&#34; https://www.peoplespharmacy.com/articles/show-1451-rethinking-dementia-is-what-we-believed-about-alzheimers-wrong</description><pubDate>07 Nov 2025 08:12 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m4zmznu7km26</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m4zmqqcunm2r</link><description>Care home launches dementia-friendly disco for residents https://www.exmouthjournal.co.uk/news/25602424.exmouth-care-home-dementia-friendly-disco-launched/</description><pubDate>07 Nov 2025 08:07 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m4zmqqcunm2r</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m4zmpd7e5k23</link><description>How to keep dementia from robbing your loved ones of their sense of personhood – tips for caregivers https://theconversation.com/how-to-keep-dementia-from-robbing-your-loved-ones-of-their-sense-of-personhood-tips-for-caregivers-265477</description><pubDate>07 Nov 2025 08:07 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m4zmpd7e5k23</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m4zmktigmp26</link><description>Dedicated national network of Dementia Research Nurses launches&#xA;&#xA; &#34;will get nurses on the ground recruiting people from as many different communities and backgrounds as they can into clinical trials, providing support throughout their research journey&#34;  https://www.ucl.ac.uk/news/2025/nov/dedicated-national-network-dementia-research-nurses-launches</description><pubDate>07 Nov 2025 08:04 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m4zmktigmp26</guid></item><item><link>https://bsky.app/profile/dementiawho.bsky.social/post/3m4xbej3njz2r</link><description>‘Severance’ Actor John Turturro Opens Up About His Caregiving Journey https://www.aarp.org/caregiving/basics/caregiver-john-turturro/</description><pubDate>06 Nov 2025 09:38 +0000</pubDate><guid isPermaLink="false">at://did:plc:imiyfaursqt3jmiebnwpik44/app.bsky.feed.post/3m4xbej3njz2r</guid></item></channel></rss>