In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic. https://mecfsscience.org/https://bsky.app/profile/mecfsscience.orghttps://bsky.app/profile/mecfsscience.org/post/3mlsazivw3n2i1) 🇳🇱 The Dutch research agency ZonMw announced € 1.5 million in funding for 4 new Long Covid studies. It includes a project by Dr. Rob Wüst that will investigate physical changes (muscle, blood, autonomic function) in people with severe Long Covid who are homebound. 14 May 2026 07:07 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3mlsazivw3n2ihttps://bsky.app/profile/mecfsscience.org/post/3mlptvso4xs2b1) 🇬🇧 Good news from the UK: the government is investing 4.75 million pounds in the study "Sequence ME & Long Covid" It will allow the sequencing of 6000 ME/CFS samples previously collected through DecodeME. The project is led by the University of Edinburgh and Action for ME. 13 May 2026 08:07 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3mlptvso4xs2bhttps://bsky.app/profile/mecfsscience.org/post/3mlnrg42xkd2u1) There was an issue that some data/screenshots from the presentations of the Berlin conference could not be made public yet. We have therefore deleted all our posts about it. Apologies for the error. 12 May 2026 12:17 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3mlnrg42xkd2uhttps://bsky.app/profile/mecfsscience.org/post/3mlicdoacie231) For researchers: only a week left to submit abstracts for the ISLC-PAIS Conference. The conference is organised by the International Society for Long COVID and Post-Acute Infection Syndromes (ISLC-PAIS) in Amsterdam from 26 to 29 August. Deadline for abstracts is 15 May. 10 May 2026 08:04 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3mlicdoacie23https://bsky.app/profile/mecfsscience.org/post/3ml6u3jwu5k2mThis conference starts tomorrow at 10:00 CEST 👇 [contains quote post or other embedded content]06 May 2026 13:55 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3ml6u3jwu5k2mhttps://bsky.app/profile/mecfsscience.org/post/3ml66kwllir2o1) 1) Interesting interview of Dr. Audrey Ryback by David Tuller. Her recent study showed that there are likely two age peaks for when people get ME/CFS. It helps to characterise ME/CFS as a unique clinical entity. 06 May 2026 07:29 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3ml66kwllir2ohttps://bsky.app/profile/mecfsscience.org/post/3ml3qqc2q4c2vHere's the paper where Dr. Kohlgruber explains the technique (TCR-MAP) she uses to study the receptors of T-cells. Complex but looks interesting. https://nature.com/articles/s41587-024-02248-6 [contains quote post or other embedded content]05 May 2026 08:17 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3ml3qqc2q4c2vhttps://bsky.app/profile/mecfsscience.org/post/3ml3pxogk5z2o1) The Selin lab has received Solve ME/CFS grant to continue its work on T-cell receptors in ME/CFS. They have formed a collaboration with Harvard immunologist Ayano Kohigruber to study what the T-cells are responding to. 05 May 2026 08:03 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3ml3pxogk5z2ohttps://bsky.app/profile/mecfsscience.org/post/3mkz7exrrzq231) An analysis of rare DNA variants by AstraZeneca using the UK Biobank showed that people who self-reported having ME/CFS, had more rare DNA variants that disrupted the gene BTN2A1. This gene also came up in the common DNA variants analysed by DecodeME.04 May 2026 08:01 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3mkz7exrrzq23https://bsky.app/profile/mecfsscience.org/post/3mkwownmrkz2w"You mourn yourself while stile alive. And others move on as if you have already died." Beautiful film on severe ME/CFS by Anil Van Der Zee. It's part of an art exhibition by ME/CFS patients in Amsterdam. http://youtube.com/watch?v=XhrAhGkrGuQ03 May 2026 08:01 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3mkwownmrkz2whttps://bsky.app/profile/mecfsscience.org/post/3mkukta7npc2zHave a feeling of being followed by a lot of (seemingly) fake accounts recently here on Bluesky. Anyone else has a similar experience or a potential explanation for it?02 May 2026 11:42 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3mkukta7npc2zhttps://bsky.app/profile/mecfsscience.org/post/3mku54vmmvb2o1) There's a new review on Long Covid by Mark Faghy and (many familiar) co-authors. I wanted to zoom in on their section on post-exertional malaise (PEM). I'm a bit skeptical, for example, about their statement that 50-80% of Long Covid patients experience PEM. 02 May 2026 07:37 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3mku54vmmvb2ohttps://bsky.app/profile/mecfsscience.org/post/3mkrnycykdv2i1) This graph shows medications that ME/CFS patients tried before seeing a specialist at the Mayo clinic. 68% had at least 1 medication potentially prescribed for ME/CFS. Most common were serotonin-norepinephrine reuptake inhibitors, gabapentin, and tricyclic antidepressants. 01 May 2026 08:01 +0000at://did:plc:ith7dzcppw7ru2enoauywkld/app.bsky.feed.post/3mkrnycykdv2i