Mum to girl with #Pans. Took 2.5 years and a huge battle to get to diagnosis! Battling ever since! Delays are damaging. Goal is to raise awareness to end present suffering and stop future suffering.https://bsky.app/profile/pansmum.bsky.socialhttps://bsky.app/profile/pansmum.bsky.social/post/3l4jergrhn42yPlease read this great blog about #Pans #Pandas It was wonderful to see awareness being raised in this way👇🏻 https://www.rcn.org.uk/news-and-events/Blogs/pans-pandas-a-mysterious-and-debilitating-paediatric-disorder-18052319 Sep 2024 15:36 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l4jergrhn42yhttps://bsky.app/profile/pansmum.bsky.social/post/3l4esbrwgiu2cPlease watch and share to raise awareness of horrific conditions #Pans #Pandas and the devastating impact they have on children and teens. Left untreated these conditions are carried to adulthood youtu.be/m-PDslLi1KQ https://youtu.be/m-PDslLi1KQ17 Sep 2024 19:54 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l4esbrwgiu2chttps://bsky.app/profile/pansmum.bsky.social/post/3l47q2a7apc2vGreater general #Awareness #Understanding needed of conditions #Pans caused by misdirected immune response to an unknown trigger and #Pandas triggered by strep A resulting in inflammation in the brain. Not rare! Rarely diagnosed.15 Sep 2024 19:31 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l47q2a7apc2vhttps://bsky.app/profile/pansmum.bsky.social/post/3l44jd3frng2pSuch unnecessary prolonged suffering, loss & sadness due 2 lack of appropriate treatment pathways. Prompt diagnosis & treatment is essential 2 prevent exacerbation of symptoms & gives best chance of recovery. Prompt treatment of subsequent flares also imperative!14 Sep 2024 12:53 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l44jd3frng2phttps://bsky.app/profile/pansmum.bsky.social/post/3l42mj3orvs25Still in 2024! All with #Pans #Pandas need to be recognized and receive appropriate care. Too much time has passed. Too many left to suffer!13 Sep 2024 18:44 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l42mj3orvs25https://bsky.app/profile/pansmum.bsky.social/post/3l3zx3odp2n25My daughter developed eating restriction as part of her #Pans due to fear of choking, being too full leading to possible illness & fears of contamination. If your child develops food avoidance or restriction with other changes please consider #Pans #Pandas13 Sep 2024 12:21 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3zx3odp2n25https://bsky.app/profile/pansmum.bsky.social/post/3l3zjueydby25‘successfully researching and treating children with PANS for years’👇🏻#PansPandasHour13 Sep 2024 08:24 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3zjueydby25https://bsky.app/profile/pansmum.bsky.social/post/3l3zjqrq5hd26https://www.twinkl.co.uk/news/parents-paediatric-acute-onset-neuropsychiatric-syndrome13 Sep 2024 08:22 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3zjqrq5hd26https://bsky.app/profile/pansmum.bsky.social/post/3l3ydvz6w7525Sadly these symptoms are all too common with #Pans #Pandas The child's world becomes so small as does that of the parent/s & can have far reaching consequences for any siblings and extended family. Not rare!12 Sep 2024 21:05 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3ydvz6w7525https://bsky.app/profile/pansmum.bsky.social/post/3l3ycu22fie2hhttps://senresourcesblog.com/2023/10/02/have-you-heard-of-pans-or-pandas/comment-page-1/#comments12 Sep 2024 20:46 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3ycu22fie2hhttps://bsky.app/profile/pansmum.bsky.social/post/3l3xxj66kar2fEducation is key👇🏻Educational resources for educational professionals #PANS #PANDAS https://panspandasuk.org/support-resources/for-educational-professionals/12 Sep 2024 17:23 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3xxj66kar2fhttps://bsky.app/profile/pansmum.bsky.social/post/3l3xondvhco2iRemember to consider #Pans #Pandas 👇🏻12 Sep 2024 14:44 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3xondvhco2ihttps://bsky.app/profile/pansmum.bsky.social/post/3l3xh7tqrif2lNow 6.7K members in #PANS #PANDAS UK support group. Numbers will continue to rise as awareness grows. Awareness is key to correct treatment pathway but sadly that pathway along with recognition is often lacking leaving families suffering & even completely in the dark https://panspandasuk.org/what-are-pans-and-pandas/12 Sep 2024 12:32 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3xh7tqrif2lhttps://bsky.app/profile/pansmum.bsky.social/post/3l3xgbpohdu2hIt’s important to know the signs of #PANS #PANDAS12 Sep 2024 12:15 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3xgbpohdu2hhttps://bsky.app/profile/pansmum.bsky.social/post/3l3xa2lehi52lOpen letter from PANS PANDAS UK to new Health Minister Wes Streeting. Families suffering #Pans #Pandas have long advocated for change. Needs to be an end to the prolonged suffering that currently occurs due 2 lack of recognition, education, diagnosis, treatment & support. Not rare, rarely diagnosed!12 Sep 2024 10:23 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3xa2lehi52lhttps://bsky.app/profile/pansmum.bsky.social/post/3l3vjyhupwr2nI urge all working in education to join @PANSPANDASUK teacher training in this academic year to support children with illnesses #Pans #Pandas that can greatly impact education and attendance. Awareness is key to correct understanding and support #education https://www.eventbrite.co.uk/e/supporting-children-with-pans-and-pandas-in-educational-settings-tickets-34174857819711 Sep 2024 18:16 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3vjyhupwr2nhttps://bsky.app/profile/pansmum.bsky.social/post/3l3vjrypu4726Everything starts with awareness without which the correct treatment can neither be sought or given.Awareness is the key 2 change & with the growth of that awareness resistance 2 change must cease!Further generations should not be allowed 2 succumb 2 #Pans #Pandas11 Sep 2024 18:12 +0000at://did:plc:jsr57gb5cmddmx33oolaxjll/app.bsky.feed.post/3l3vjrypu4726