Soft heart. Steel spine. Soft-Grit Spoonie talking about 🧠 DID 🩺 medical trauma 🥄 chronic illness survival Dark humor + real talk + spoonie solidarity. You’re safe here. DM is always openhttps://bsky.app/profile/softgritspoonie.bsky.socialhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlu3rrabus2v#psychsky #psychology #anxiety15 May 2026 00:38 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlu3rrabus2vhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlttpmfhak2rThey say "laughter is the best medicine" too bad it's not a prescription14 May 2026 22:14 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlttpmfhak2rhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mltpoloep22fMy neurologist doesn't think it was a seizure that I had because it only lasted maybe 5 seconds14 May 2026 21:02 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mltpoloep22fhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlre7frc6s2gAnyone else randomly cry over who you used to be before you became disabled or chronically ill? 😢13 May 2026 22:31 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlre7frc6s2ghttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlrawn53hk2gThe hardest part of chronic illness isn't always the pain itself. It's waking up every day realizing this is your normal. #chronicpain #chronicillness13 May 2026 21:32 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlrawn53hk2ghttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlqqnidbns2gMy neurologist office just called. I guess they're concerned cuz they squeezed me in for a virtual visit tomorrow at 2:00.13 May 2026 16:41 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlqqnidbns2ghttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlqo6ve7lc2gI messaged my Dr yesterday about my seizure still haven't heard back you would think they would be more concerned that someone just randomly has a seizure.13 May 2026 15:57 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlqo6ve7lc2ghttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlmmxtrlrk2zI think I just had focal or partial aware seizure12 May 2026 01:25 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlmmxtrlrk2zhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlmdogn3zc2kMy favorite game to play is "Will this be a 5 minute nap or a 5 hour one??"11 May 2026 22:38 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlmdogn3zc2khttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlmbzeu3p22xWhat type of posts would you like to see from me???11 May 2026 22:09 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlmbzeu3p22xhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlm5hzlvxc2mDisabled people are in the biggest minority group. anyone can become a member of at any time.11 May 2026 20:47 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlm5hzlvxc2mhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mllnps2k2k2nUgh, I have a headache that starts at the base of my skull and then wraps around my head like a helmet. I tried massaging the inion but it is very painful to touch.11 May 2026 16:05 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mllnps2k2k2nhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlllrdjmvc22Sometimes it's hard to tell if people are checking me out or just staring at my wheelchair 🤣11 May 2026 15:30 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlllrdjmvc22https://bsky.app/profile/softgritspoonie.bsky.social/post/3mljx2n4d522dNot every disability is visible10 May 2026 23:47 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mljx2n4d522dhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mljlruxm422d"disabled" is NOT a bad word.10 May 2026 20:25 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mljlruxm422dhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mljljvxquk2dGoody's headache powder is a goddess send!!10 May 2026 20:21 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mljljvxquk2dhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mljl3cdamc2dI am a person, not just a diagnosis10 May 2026 20:13 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mljl3cdamc2dhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mljk4ioltc22Chronic illness sleep is like regular sleep minus the sleep10 May 2026 19:56 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mljk4ioltc22https://bsky.app/profile/softgritspoonie.bsky.social/post/3mljh3qnqrk22The only thing my neurologist is interested in treating is my migraines10 May 2026 19:01 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mljh3qnqrk22https://bsky.app/profile/softgritspoonie.bsky.social/post/3mljgmgnhak22Chronic pain patients are not faking their pain. They are faking feeling fine.10 May 2026 18:53 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mljgmgnhak22https://bsky.app/profile/softgritspoonie.bsky.social/post/3mljfidcb4k22Fainting I've been having what the Drs labeled "swallow syncope"when I eat or drink. It actually stopped right after my surgeries (hysterectomy and shunt replacement)10 May 2026 18:33 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mljfidcb4k22https://bsky.app/profile/softgritspoonie.bsky.social/post/3mlje32oie22iIt's another day with BP in the 90's and feeling like absolute shit. FML10 May 2026 18:07 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlje32oie22ihttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlj75k54q22iGood morning #spoonie and #chronicillnrss friends. This is your reminder to eat something, drink some water and take all necessary medication10 May 2026 16:39 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlj75k54q22ihttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlhpataqz22mI had a hysterectomy last year at the end of October, I am a wheelchair user. My abdomen feels like it has 1,000 rubber bands around it and they are cutting into it cuz I overused my abdomen muscles today how do I use a handicap bar without straining when I get out of my chair??10 May 2026 02:22 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlhpataqz22mhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlhnvn7ptk2nChronic pain is when your body goes, "and here's today's flare. Bought to you by absolutely nothing."10 May 2026 01:58 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlhnvn7ptk2nhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlhgjxmfcc27What is one word that describes how you feel right now? No explanations just one word.09 May 2026 23:46 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlhgjxmfcc27https://bsky.app/profile/softgritspoonie.bsky.social/post/3mlgh2gxvbs2iGood morning friends!!! Happy Saturday. This is your reminder to eat something, stay hydrated, and take any and all necessary medication.09 May 2026 14:23 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlgh2gxvbs2ihttps://bsky.app/profile/softgritspoonie.bsky.social/post/3mlemmlqzjc2iDisabled people deserve access to all the same places that able-bodied already have access to08 May 2026 20:57 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3mlemmlqzjc2ihttps://bsky.app/profile/softgritspoonie.bsky.social/post/3ml7lf3utik2b#disabilitysky #disabledsky06 May 2026 20:52 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3ml7lf3utik2bhttps://bsky.app/profile/softgritspoonie.bsky.social/post/3ml76ti3h622bMy BF said it's my job today to count how many times that creepy RV comes by. Twice since we've been home...06 May 2026 17:07 +0000at://did:plc:k7dbfvslwrrmfpbz4pz2p6hr/app.bsky.feed.post/3ml76ti3h622b