Newsletter editor for Bloomberg Government/ recovering health care journalist by day. Filmi and fitness fanatic all the time.https://bsky.app/profile/jeannieb.bsky.socialhttps://bsky.app/profile/jeannieb.bsky.social/post/3loybjiixwk23RARE DISEASES folks: medicaid work requirements were obviously the big news from last night release of the E&C reconciliation bill. But there’s also a pretty big win for rare disease drug makers and groups like @nordrare.bsky.social12 May 2025 15:21 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3loybjiixwk23https://bsky.app/profile/jeannieb.bsky.social/post/3lleibj7ouc2pHad a peaceful, gorgeous morning viewing the cherry blossoms over sunrise …then I checked my work inbox …27 Mar 2025 14:13 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lleibj7ouc2phttps://bsky.app/profile/jeannieb.bsky.social/post/3lhybu5ru4s2nThe mixed response from congressional Republicans to the Trump administration’s cuts for NIH F&A costs could signal reductions for the National Institutes of Health down the line when lawmakers draft spending bills, Nancy Vu reports for @bgov.com https://news.bgov.com/bloomberg-government-news/health-research-funds-at-risk-as-gop-divided-on-trumps-cut-plan12 Feb 2025 13:31 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lhybu5ru4s2nhttps://bsky.app/profile/jeannieb.bsky.social/post/3lhn64b5xy22aOn the issue of NIH cutting indirect costs down to 15% (which has averaged 27% to 28% over time, according to their grants statement). What does this portend for the Trump 2.0's first budget proposal? some context 👇08 Feb 2025 03:24 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lhn64b5xy22ahttps://bsky.app/profile/jeannieb.bsky.social/post/3lheg3ihuis2xMore from @bgov.com’s Nancy Vu on RFK jr’s nomination moving to the Senate floor No floor vote scheduled, but Thune has generally been moving to confirm Trump’s cabinet picks swiftly (he laid out a pathway for it last month) https://news.bgov.com/bloomberg-government-news/rfk-jr-health-secretary-nomination-moves-forward-in-senate?context=search&index=004 Feb 2025 15:53 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lheg3ihuis2xhttps://bsky.app/profile/jeannieb.bsky.social/post/3lhefenl52c2xSeveral senators made statements after the vote. Cassidy was not one of them. However, he does have a statement on X.04 Feb 2025 15:40 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lhefenl52c2xhttps://bsky.app/profile/jeannieb.bsky.social/post/3lh26pj4m7c26Following up on RFK’s confirmation hearing comments in which he repeatedly said to senators that NIH spends so much money on infectious disease at the expense chronic disease. He told Sen. Collins yesterday (who is also chair of Appprops so obviously she knows how spending works)31 Jan 2025 14:14 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lh26pj4m7c26https://bsky.app/profile/jeannieb.bsky.social/post/3lgvl6yso3s22RFK jr said he wants to spend about 20% of NIH’s budget on replication. Reproducibility is a well known challenge in research and NIH for sure but…that’s more than $9 billion a year on reproducibility, more than any one IC gets NCI gets about $7.2billion annually29 Jan 2025 18:15 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lgvl6yso3s22https://bsky.app/profile/jeannieb.bsky.social/post/3lgv2ldph2k2v Whenever NIH makes grant policy changes, they typically issue a notice explaining what’s up and why. But it looks like the freeze on public statements means they can’t talk about the impact of the federal funding freeze. Last update I see is Jan 13. https://grants.nih.gov/policy-and-compliance/notice-of-policy-changes#202529 Jan 2025 13:17 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lgv2ldph2k2vhttps://bsky.app/profile/jeannieb.bsky.social/post/3lguzravfh22vHappy covering RFK jr nomination hearings day (part one) to anyone who’s participating. We’ve got Nancy Vu & Ian Lopez on the ground for @bgov.com + Madison Muller for Bloomberg News (Neither are on Bluesky yet, but friendly reminder that I always love a good news tip!)29 Jan 2025 13:03 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lguzravfh22vhttps://bsky.app/profile/jeannieb.bsky.social/post/3lgovautsyc2nLisa does a great job breaking down why a freeze on NIH grant reviews (among other things) is a really big deal that could have a domino effect and delaying medical research. 👇👇 [contains quote post or other embedded content]27 Jan 2025 02:26 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lgovautsyc2nhttps://bsky.app/profile/jeannieb.bsky.social/post/3lgourwbggs2fDo sanctions still count if you misspell the name of the country you’re sanctioning? …or is Columbia, Mo., (or S.C) in for one heckuva surprise? (To be fair, POTUS spelled it correctly in his post)27 Jan 2025 02:18 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lgourwbggs2fhttps://bsky.app/profile/jeannieb.bsky.social/post/3lfzxjf7lec24Important issue here that could impact coverage/access to GLP-1s, if it’s considered a treatment for obesity (which has been classified as a disease since 2013 ) vs taking it for vanity reasons (hello MMA coverage bans) [contains quote post or other embedded content]18 Jan 2025 18:41 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lfzxjf7lec24https://bsky.app/profile/jeannieb.bsky.social/post/3lfxycdeds22aNIH Director Monica Bertagnolli and NCI Director Kimryn Rathmell officially stepped down today as expected. Bertagnolli was the first woman to run NCI ever, and only the second Senate-confirmed woman to run NIH.17 Jan 2025 23:49 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lfxycdeds22ahttps://bsky.app/profile/jeannieb.bsky.social/post/3lfxtx7mexs2e🧵As the Biden administration wraps up, my colleagues on the @bloomberglaw.com health team have conducted a flurry of exit interviews: 1) Califf reflects on his second tour as FDA commissioner. Nyah Phengsitthy has the story https://news.bloomberglaw.com/health-law-and-business/fdas-califf-applauds-workforce-talent-ahead-of-trumps-return17 Jan 2025 22:31 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lfxtx7mexs2ehttps://bsky.app/profile/jeannieb.bsky.social/post/3lfxsav6yds2eHello! Going to try to be better about posting on here17 Jan 2025 22:01 +0000at://did:plc:l3yimrbgrpty7unslbaa3yep/app.bsky.feed.post/3lfxsav6yds2e