https://bsky.app/profile/lillianisabella.comhttps://bsky.app/profile/lillianisabella.com/post/3lnljskplrk2xMy op-ed about the federal government's termination of the ACHDNC was just published on @statnews.com! I was driven to write this because newborn screening changed the course of my life forever. Please read and repost. https://www.statnews.com/2025/04/24/achdnc-newborn-screening-advisory-committee-terminated-rfk-jr-trump/ #raredisease #raredisorder #newbornscreening24 Apr 2025 20:19 +0000at://did:plc:ls2mzpj2sbgj2yxmzk4teo7y/app.bsky.feed.post/3lnljskplrk2x