Epilepsy and RNS advocate! 💜https://bsky.app/profile/kaileyh175.bsky.socialhttps://bsky.app/profile/kaileyh175.bsky.social/post/3leapw7tjhc2nhere’s a sneak peek of my purple Christmas tree!! 💜 i noticed that since last year, one house in my neighborhood did red for AIDS 🫶🏻27 Dec 2024 00:23 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3leapw7tjhc2nhttps://bsky.app/profile/kaileyh175.bsky.social/post/3ldcnp5b2is26can we all collectively agree not to compare #epilepsy to other medical conditions when advocating or spreading awareness? each experience with a medical condition is different 💜 [contains quote post or other embedded content]15 Dec 2024 01:23 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3ldcnp5b2is26https://bsky.app/profile/kaileyh175.bsky.social/post/3lcylj36pes2si once got accused of being on drugs (by another person with #epilepsy) because my pupils were dilated 🤦🏻‍♀️ i had just started another medication and got maybe 5-6 hours of sleep [contains quote post or other embedded content]11 Dec 2024 01:17 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lcylj36pes2shttps://bsky.app/profile/kaileyh175.bsky.social/post/3lcbfvt6xlc25if you shop on Poshmark and watch the lives, please be careful!! they are coming out with unnecessary graphics that strobe and move fast. shop carefully 💜01 Dec 2024 20:06 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lcbfvt6xlc25https://bsky.app/profile/kaileyh175.bsky.social/post/3lbxugcdqis2eif you’re an iPhone user and have auras before a #seizure, ask Siri to time it if you are alone! 💜💜28 Nov 2024 00:59 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbxugcdqis2ehttps://bsky.app/profile/kaileyh175.bsky.social/post/3lbvdg5iao22rif you have photosensitive #epilepsy, it may not be best to watch the movie Wicked as there were some flashing lights in the musical/movie 💜27 Nov 2024 00:49 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbvdg5iao22rhttps://bsky.app/profile/kaileyh175.bsky.social/post/3lbppga3nwc2cthis can be understandable in some cases but having #epilepsy itself can be traumatizing for anyone, especially parents and entire families. keep in mind, not everyone with epilepsy has siblings 💜 [contains quote post or other embedded content]24 Nov 2024 19:08 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbppga3nwc2chttps://bsky.app/profile/kaileyh175.bsky.social/post/3lbnj64x3ck2iif you haven’t yet, please join the #epilepsy feed! my boyfriend and i created it for #epilepsyawareness month for the community on here 💜🫶🏻 [contains quote post or other embedded content]23 Nov 2024 22:11 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbnj64x3ck2ihttps://bsky.app/profile/kaileyh175.bsky.social/post/3lbnigqlf522iyay!! for those wondering where @brainablaze.bsky.social has been in the #Epilepsy feed, we just added them!!! all of their posts will automatically show up 💜23 Nov 2024 21:58 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbnigqlf522ihttps://bsky.app/profile/kaileyh175.bsky.social/post/3lbjchfqems23the #epilepsy feed is officially up!!! yay!! my wonderful boyfriend @dkhmora.bsky.social helped create it! have fun raising #epilepsyawareness with me!! 💜 [contains quote post or other embedded content]22 Nov 2024 06:00 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbjchfqems23https://bsky.app/profile/kaileyh175.bsky.social/post/3lbiowyqvbs2jtaking your medication(s) for #epilepsy on time is crucial to prevent a seizure and SUDEP! have you ever missed your meds or forgot? 💜22 Nov 2024 00:11 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbiowyqvbs2jhttps://bsky.app/profile/kaileyh175.bsky.social/post/3lbds4fk6622tplanning on writing a blog post about here vs the other place- what main differences do you see or miss? #Epilepsy20 Nov 2024 01:25 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbds4fk6622thttps://bsky.app/profile/kaileyh175.bsky.social/post/3lbdj5fpts22gDYKT seizures can happen to anyone? it is estimated that 1 in 10 people can have a seizure during their lifetime! 💜19 Nov 2024 22:44 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbdj5fpts22ghttps://bsky.app/profile/kaileyh175.bsky.social/post/3lbdgxprd522rhaving a Canva pro subscription is not anything to be ashamed or embarrassed about. i just make small graphics to raise #epilepsy awareness time to time 💜🤷🏻‍♀️ [contains quote post or other embedded content]19 Nov 2024 22:05 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbdgxprd522rhttps://bsky.app/profile/kaileyh175.bsky.social/post/3lbdglu4hhk2ra HUGE thank you to @defiantandbeyond.bsky.social!! when i first downloaded this app, they were the first person to show up and i immediately recognized them! 💜💜19 Nov 2024 21:58 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lbdglu4hhk2rhttps://bsky.app/profile/kaileyh175.bsky.social/post/3lb6ubbhikk27new here!! i have #epilepsy and blog about it as well to bring awareness to the #disability 💜 this month is epilepsy awareness month and i would be great to meet others with the same disability 🥰18 Nov 2024 02:20 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lb6ubbhikk27https://bsky.app/profile/kaileyh175.bsky.social/post/3lb6p5clomc27epilepsy friends!!!!! i have an idea- what if we made an #epilepsy feed?! 💜18 Nov 2024 00:48 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lb6p5clomc27https://bsky.app/profile/kaileyh175.bsky.social/post/3lb6gj3xqme24while public #seizures are scary, i made these for #epilepsyawareness month!! Christmas themed screensavers that teach basic seizure first aid 💜 991 AND 999 are included!17 Nov 2024 22:14 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lb6gj3xqme24https://bsky.app/profile/kaileyh175.bsky.social/post/3lb6dgcaj6u24finally made the big change from X to this platform!! known as “that girl with epilepsy” on X! very excited to spread #epilepsy awareness on here 💜🫶🏻17 Nov 2024 21:18 +0000at://did:plc:nlfgi34puu74n452eq5kprbe/app.bsky.feed.post/3lb6dgcaj6u24