Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.https://bsky.app/profile/coffeeandresearch.bsky.socialhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtuyqvo6ac2bThere have been a number of petitions going around about an Indigo Alert. This one has a pretty solid foundation. Please share and consider signing. https://www.ourcommons.ca/petitions/en/Petition/Details?Petition=e-7703&fbclid=IwdGRjcAT5-iVwZG9mBWZkaWQWUNJ2uSJ9zZjYurHDGdsTh3UIWJyp7GV4dG4DYWVtAjExAHNydGMGYXBwX2lkCjY2Mjg1NjgzNzkAAR5MCQDgu2vQSzeAiA2sv9i6Juqq85NFRfDT-i1jkdE-HBMX6Ty-ooDBsD-wrw_aem_qmatyFAp7_I4ZNKkyb7dcg25 Aug 2026 04:38 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtuyqvo6ac2bhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtu2ti4sic2qJust a casual reminder in an era of ai with all the current dealings going on between Canada and the US. That and an upcoming referendum vote in Alberta. There is no social media platform that has your back when it comes to algorithms that feed you information. /124 Aug 2026 19:43 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtu2ti4sic2qhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mttndv4mr22gOne argument worth considering amidst all the current buy Canadian sentiment is the fact that Canada has a real shot at becoming a global leader in mobility and accessibility tech, resources and tools. Infrastructure alone however doesn't build a strong potential economic sector, visibility /124 Aug 2026 15:42 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mttndv4mr22ghttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtti4cahvc23Dads of disabled and neurodivergent kids are a very under supported population. New support opportunity thread 🧵: Fathers of children with disabilities are often left out of the caregiving narrative, leading many to feel isolated and unseen in their role. /124 Aug 2026 14:08 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtti4cahvc23https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtmtljx2kc2lBuilt By Deaf People, For Deaf People, Google's New Technology https://www.forbes.com/sites/keelycatwells/2026/08/20/built-by-deaf-people-for-deaf-people-the-new-era-of-american-sign-language-technology/?21 Aug 2026 22:45 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtmtljx2kc2lhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtkexmj6fc2lOBI Public Talk — Beyond the Diagnosis: The Future of Neurodiversity https://braininstitute.ca/news-events/2026/future-of-neurodiversity20 Aug 2026 23:18 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtkexmj6fc2lhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mt67ewftwk2tOld video but an entertaining story. Awhile back, I saw a post from @dr_jonathan_stea about the University of Alberta’s free science literacy course. People kept commenting things like, “NDP voters should take this course but of course they won’t.”16 Aug 2026 03:06 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mt67ewftwk2thttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mt3gbyrqbs22Canada has been pushing forward with the national #autism strategy through the establishment of the National Autism Network. They recently put out a survey to ask people how they wish to stay engaged with the work. You can share your thoughts here: https://nan-rna.ca/tell-us-how-you-want-to-be-involved/15 Aug 2026 00:31 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mt3gbyrqbs22https://bsky.app/profile/coffeeandresearch.bsky.social/post/3msrokgrpuc2sCanada doesn’t have a national plan for kids and youth in policy. There’s a bill sitting in the House right now that would fix that and most people have never heard of it. Bill S-212 is a national strategy for children and youth.11 Aug 2026 03:33 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3msrokgrpuc2shttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mshfngxxuc2lThis week’s interview is now online. What has the community learned in the wake of an autistic young man’s disappearance? https://www.cbc.ca/listen/live-radio/1-1-alberta-at-noon/clip/16230326-what-learned-community-disappearance-death-parker07 Aug 2026 01:27 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mshfngxxuc2lhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3msc3lmy6722lI will be on CBC Alberta at Noon tomorrow to talk about how communities can support disabled, autistic and neurodivergent families to help keep them safe. Tune in.04 Aug 2026 22:43 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3msc3lmy6722lhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3msbvradids2pThe bad ai images people share to complement their point should give us all pause to fact check or just dig a little deeper before accepting what we see as just, “good enough”.04 Aug 2026 20:59 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3msbvradids2phttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mrymm5lgu222The future of this country will be shaped not only by the challenges we face today, but how we invest in the children who will inherit them. Parliament must move swiftly to pass Bill S-212 and create a national strategy for children and youth. https://www.hilltimes.com/2026/07/30/past-due-a-plan-for-children-and-youth-in-canada/512966/01 Aug 2026 04:21 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mrymm5lgu222https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mrym2uqy4s22We judge people quickly; when someone walks in wearing a safety vest, holding a stethoscope, speaking with confidence, we instantly decide if they know what they’re doing. Online, it’s even more intense and complicated to navigate. That gut reaction gets packaged and sold to us on purpose. /101 Aug 2026 04:11 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mrym2uqy4s22https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mrx7l2p6a22qHappy Friday! You can make it through today. Run on caffeine, determination and whatever this look is.31 Jul 2026 14:55 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mrx7l2p6a22qhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mrwyx4c6n22qThe National Autism Network is a response to Canada’s federal National Autism Strategy. It seems there will be an opportunity for families to be engaged from what the article states. You can learn more about the organization here: nan-rna.ca https://www.theglobeandmail.com/canada/article-autism-advocates-call-for-alert-system-overhaul-after-calgary-boy/31 Jul 2026 12:57 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mrwyx4c6n22qhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mrse6tmtx222The more we recognize these actions people take, the slower our pace is online. That's not inherently a bad thing. It makes us more intentional. That makes social media suck just a little bit less.29 Jul 2026 16:35 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mrse6tmtx222https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mrpvsiq7622bStarting a new series called, “How to Make Social Media Suck Just a Little Bit Less”. The goal is to start talking about influencer quirks, sketchy habits and how to build better decision frameworks before we share.28 Jul 2026 17:12 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mrpvsiq7622bhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mrogp657js2pThis is pretty cool! Jim Pattison Centre for Health Systems Learning + Innovation is opening up for submissions for healthcare ideas and innovations. https://jpcentre.ca/submit-an-idea/28 Jul 2026 03:09 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mrogp657js2phttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mrn6phxk3k2kA B.C. woman's extreme battle to help her disabled brother Angela Clancy's brother, Alan, lives in a Victoria suburb with his stepdad. Two lawsuits raise concerns about his living situation. But his caregiver denies wrongdoing and officials refuse to move him https://vancouversun.com/news/exclusive-a-vancouver-womans-extreme-measures-to-rescue-her-disabled-brother27 Jul 2026 15:13 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mrn6phxk3k2khttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mrkvajextc2rOut of the whole of human anatomy and physiology, bones and brains fascinate me the most. So when Jimothy came on the scene, this was an opportunity to learn about something new through natural curiosity.26 Jul 2026 17:18 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mrkvajextc2rhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mriaio362s2oThe title to this article is cringeworthy, but there are a lot of key points the author circles around that resonate with me as a knowledge mobilization and implementation support specialist. Movements become influential because they’re easy to understand, easy to repeat, and easy to belong to.25 Jul 2026 16:02 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mriaio362s2ohttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mree24cxo22dChatGPT medical advice brought man 'to brink of death', lawsuit alleges https://www.bbc.com/news/articles/cwylp3nxp5yo?xtor=AL-71-%5Bpartner%5D-%25524 Jul 2026 02:55 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mree24cxo22dhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mre27dcru22yWhat makes someone say yes to getting involved as a partner in research? And maybe just as important, what makes them stick come back and do it again? It's DICES-L. This is something Kristina McGuire and I put together a few years ago from our learnings in/1 #familyengagement + #patientengagement23 Jul 2026 23:59 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mre27dcru22yhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mqzjjlz4hk2kAwhile back I shared a house analogy on sustainable #patientengagement and #familyengagement at a SKIP event. With KT and artsy brain inspired, I thought I would take my first crack at creating a zine on a more in depth version. /1 https://heyzine.com/flip-book/b0d08c4735.html19 Jul 2026 19:34 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mqzjjlz4hk2khttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mqpivadgrc2nhttps://give.redcross.ca/page/24CWFA?utm_id=97760_v0_s00_e0_tv415 Jul 2026 19:55 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mqpivadgrc2nhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mqp66fbog22q🧵 Thread Paper Overview: The Stigmatization of Caregivers of Children With Attention-Deficit/Hyperactivity Disorder: A Systematic Review #adhd When most people talk about the stigma around ADHD, they usually picture the experiences of the child. But there’s another side to the story:15 Jul 2026 16:44 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mqp66fbog22qhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mqcrax5mgk2jThis paper shares a rather fascinating best practice from Wales called the Well-being of Future Generations Act 2015 where policy makers are asked to think of the long term implications of their developed policies. /110 Jul 2026 18:21 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mqcrax5mgk2jhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mq5fsc45m22rIntriguing policy brief on the Canadian Disability Tax Credit. Some morning coffee reading. https://maytree.com/publications/from-screening-out-to-welcoming-in-promoting-access-to-federal-disability-benefits/08 Jul 2026 15:12 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mq5fsc45m22r