Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.https://bsky.app/profile/coffeeandresearch.bsky.socialhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mriaio362s2oThe title to this article is cringeworthy, but there are a lot of key points the author circles around that resonate with me as a knowledge mobilization and implementation support specialist. Movements become influential because they’re easy to understand, easy to repeat, and easy to belong to.25 Jul 2026 16:02 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mriaio362s2ohttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mree24cxo22dChatGPT medical advice brought man 'to brink of death', lawsuit alleges https://www.bbc.com/news/articles/cwylp3nxp5yo?xtor=AL-71-%5Bpartner%5D-%25524 Jul 2026 02:55 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mree24cxo22dhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mre27dcru22yWhat makes someone say yes to getting involved as a partner in research? And maybe just as important, what makes them stick come back and do it again? It's DICES-L. This is something Kristina McGuire and I put together a few years ago from our learnings in/1 #familyengagement + #patientengagement23 Jul 2026 23:59 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mre27dcru22yhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mqzjjlz4hk2kAwhile back I shared a house analogy on sustainable #patientengagement and #familyengagement at a SKIP event. With KT and artsy brain inspired, I thought I would take my first crack at creating a zine on a more in depth version. /1 https://heyzine.com/flip-book/b0d08c4735.html19 Jul 2026 19:34 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mqzjjlz4hk2khttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mqpivadgrc2nhttps://give.redcross.ca/page/24CWFA?utm_id=97760_v0_s00_e0_tv415 Jul 2026 19:55 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mqpivadgrc2nhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mqp66fbog22q🧵 Thread Paper Overview: The Stigmatization of Caregivers of Children With Attention-Deficit/Hyperactivity Disorder: A Systematic Review #adhd When most people talk about the stigma around ADHD, they usually picture the experiences of the child. But there’s another side to the story:15 Jul 2026 16:44 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mqp66fbog22qhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mqcrax5mgk2jThis paper shares a rather fascinating best practice from Wales called the Well-being of Future Generations Act 2015 where policy makers are asked to think of the long term implications of their developed policies. /110 Jul 2026 18:21 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mqcrax5mgk2jhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mq5fsc45m22rIntriguing policy brief on the Canadian Disability Tax Credit. Some morning coffee reading. https://maytree.com/publications/from-screening-out-to-welcoming-in-promoting-access-to-federal-disability-benefits/08 Jul 2026 15:12 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mq5fsc45m22rhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mq3ajocwac2eOp-Ed: At $6.71 a day, the Canada Disability Benefit falls short The Canada Disability Benefit was meant to reduce poverty. Instead, its forces many people with disabilities to make harmful tradeoffs. https://www.canadianaffairs.news/2026/07/06/op-ed-at-6-71-a-day-the-canada-disability-benefit-falls-short/07 Jul 2026 18:33 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mq3ajocwac2ehttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mq2vgcgbwc2pThe Canadian Women's Chamber of Commerce (CanWCC), are calling on the Federal Government to recognize the Care Economy (caregiving) as Critical Nation-Building Infrastructure. https://www.ourcommons.ca/petitions/en/Petition/Details?Petition07 Jul 2026 15:14 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mq2vgcgbwc2phttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mpe3xptrb22pWith a provincial election somewhat down the road, I’m reminded of one thing. Disabled people aren’t just affected by elections. We help decide them. Disabled people vote. So do parents whose children depend on disability supports. Parties should be asking how to earn that vote. #abpoli28 Jun 2026 13:40 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mpe3xptrb22phttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mpe3w3lfn22pDisability isn’t a niche topic in policy. It’s housing, healthcare, employment and more. It’s the classroom and the wait list. Every party platform asks for their vote. The disability community knows what good policy looks like because they know when they’ve lived inside it. /128 Jun 2026 13:39 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mpe3w3lfn22phttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mp5kzn7bis24Hey folks! If you’re looking to do some patient and family engagement in your healthcare system design or in research. If you’re not sure where to start or how to begin to imagine it, I put some stuff together from 10 years of experience and a recent publication. Free to download. www.raemartens.ca https://www.raemartens.ca25 Jun 2026 23:21 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mp5kzn7bis24https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mofy6qjdyk2dAlberta urged to follow federal guidance as it develops fall COVID-19 vaccine plan https://www.cbc.ca/news/canada/calgary/alberta-fall-2026-covid-vaccine-plan-9.723639316 Jun 2026 14:12 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mofy6qjdyk2dhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mmw67yypuk2fCanada Needs to Invest in Children and Youth Federal Policy, Recognizing Kids as Individuals with Their Own Rights As Bill S-212, a National Strategy for Children and Youth Act awaits further assessment in the House of Commons, now is the time to continue to advocate for its passing. /128 May 2026 13:53 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mmw67yypuk2fhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mlwvjlrqa22qThere’s a national kangaroo-a-thon announced here in Canada. The first national Kangaroo Care initiative will track skin-to-skin hours in neonatal intensive care units across Canada throughout May. https://www.todaysparent.com/baby/national-skin-to-skin-challenge/16 May 2026 03:24 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mlwvjlrqa22qhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mlqh7nqh4s2cUNICEF's Report Card 20 ranks Canada 22nd out of 37 wealthy nations on child well-being and the data is alarming. Child poverty has nearly doubled since 2020, child mortality is rising, and Canada holds one of the highest adolescent suicide rates among peer countries. /113 May 2026 13:52 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mlqh7nqh4s2chttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mlkbx6ynb22xNew safety product in the works for Energizer. Given the issue of the harm button batteries can play on children, such a change is nice to finally see. https://abcnews.com/amp/GMA/Family/new-battery-aims-prevent-child-deaths-solution/story?id=13267077011 May 2026 03:02 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mlkbx6ynb22xhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mjxmbr62wk2s“Canada is propping up its disability system on the unpaid labour of siblings, and pretending this is not a crisis.” “As people with intellectual disabilities and autism live longer, families are expected to absorb the gap between need and support.” https://www.sasktoday.ca/opinion/opinion-siblings-are-holding-up-a-broken-disability-system-1215100720 Apr 2026 23:21 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mjxmbr62wk2shttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3miflei3xns2aI’ve been writing something for the FER Training Program (ferprogram.ca) for everyone who knows that feeling shared below and keeps showing up anyway. Stay tuned. 🌈 I’ve been thinking a lot about #patientengagement and #familyengagement and where a desire for perfection can seep in. /101 Apr 2026 01:52 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3miflei3xns2ahttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3miari5a5ws27New publication alert! “Does the healthcare system support family-centred service?: linking structural issues in healthcare service delivery to parents’ relational experiences of care” https://www.tandfonline.com/doi/full/10.1080/09638288.2026.264761930 Mar 2026 03:58 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3miari5a5ws27https://bsky.app/profile/coffeeandresearch.bsky.social/post/3miaq6pjjjk27Canada has a seat at the UN table but do disabled Canadians know what it’s about and why it matters? COSP19 is the biggest international meeting on disability rights and it’s happening June 2026. #cdnpolitics #COSP19 #NothingAboutUsWithoutUs #CripLeVote https://substack.com/home/post/p-19256977230 Mar 2026 03:35 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3miaq6pjjjk27https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mhv7sdo7b22dHey Canada! Let’s talk about disability and voting power. On the heels of Alberta voting down a potential accessibility legislation, it gets me thinking about where there has been precedent for community action. /125 Mar 2026 13:42 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mhv7sdo7b22dhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mhhewyoias2bPublic review now open: Help shape Canada’s standard for accessible childcare centres Today, Accessibility Standards Canada is launching the public review of its draft standard on Accessible Childcare Centres. /1 https://accessible.canada.ca/creating-accessibility-standards/can-asc-29-accessible-childcare-centres?utm_source=newsletter&utm_medium=email&utm_campaign=ACC_public_review_Mar202620 Mar 2026 01:37 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mhhewyoias2bhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mgykwjw6kk2wLet’s go! Fingers crossed this keeps moving forward. Bill S-212, An Act respecting a national strategy for children and youth in Canada, has now reached 2nd reading in the House of Commons, after having been adopted by the Senate of Canada.14 Mar 2026 04:14 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mgykwjw6kk2whttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mguugtqchc2sCanada is subject to a four year reporting cycle with UN Conventions like the Convention on the Rights of Persons with Disabilities. There is a lot of misunderstanding of what it is, but it’s a culture of accountability. Rights frameworks don’t create change by themselves. People using them do.12 Mar 2026 16:54 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mguugtqchc2s