Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.https://bsky.app/profile/coffeeandresearch.bsky.socialhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3myvelvyctk2qWho counts as disabled in Canada? 150+ orgs say it's time for a rights-based definition. Link to Letter: https://www.dipo.ca/updates/dtc-statement-oct202627 Oct 2026 23:16 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3myvelvyctk2qhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3myvbc3ihe225More than 150 Canadian organizations formed a coalition with a mandate to call for a new approach to defining disability in Canada. You can read their letter at the Disability Policy Research Program website. https://www.dipo.ca/updates/dtc-statement-oct202627 Oct 2026 22:17 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3myvbc3ihe225https://bsky.app/profile/coffeeandresearch.bsky.social/post/3myqrn7jh6s27B.C. quietly changes MSP two days after election was called, affecting 8,500 chronic illness patients https://cheknews.ca/b-c-quietly-changes-msp-two-days-after-election-was-called-affecting-8500-chronic-illness-patients-1355028/26 Oct 2026 03:26 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3myqrn7jh6s27https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mxu3fad3fc2cBuilding a Safer Emergency Response When People Go Missing, new report https://quoimedia.com/building-a-safer-emergency-response-when-people-go-missing-new-report/14 Oct 2026 17:34 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mxu3fad3fc2chttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mxprw6gdg22eEvery parent wants a full life for their kids, whether that’s through childcare, mental health support, or other services, Canada’s Bill S-212, the National Strategy for Children and Youth, is about connecting those supports. Consider talking to your MP and telling others about it.13 Oct 2026 00:33 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mxprw6gdg22ehttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mxb4sooi4s2xCanada has signed on to multiple conventions and covenants that recognize the right to education. https://www.cbc.ca/news/canada/edmonton/edmonton-public-schools-students-immigration-status-9.737003007 Oct 2026 04:38 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mxb4sooi4s2xhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mx6cg3wcfs24Technoference is the everyday interruption, intrusion, or disruption of face-to-face interpersonal relationships and shared activities caused by the use of digital devices. How ‘technoference’ can disrupt parent‑child connections https://theconversation.com/how-technoference-can-disrupt-parent-child-connections-29286306 Oct 2026 01:41 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mx6cg3wcfs24https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mwrjnzpnac2aPlay, recreation, leisure, culture and sport are human rights including for disabled children. Sometimes accessibility isn’t about making an activity educational, developmental, or therapeutic. Sometimes it’s simply about making sure a disabled kid can participate in the joy of being a kid. 💛30 Sep 2026 23:46 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mwrjnzpnac2ahttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mwfgaq7q5c2zIn this post you could swap almost any hot-button issue into this formula and get the same basic engagement strategy. You don't necessarily need a nuanced position to rage farm. You just need to know which words will make people react.26 Sep 2026 04:13 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mwfgaq7q5c2zhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mwffvam6kc2zSometimes people use very imprecise language when they spread misinformation to make it sound more impactful. When in reality precise language is so important in science.26 Sep 2026 04:06 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mwffvam6kc2zhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mvqnahhxxc2jBC Courts open the door to a class action lawsuit against Air Canada. https://money.ca/news/air-canada-class-action-lawsuit-wheelchair-accessibility17 Sep 2026 21:52 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mvqnahhxxc2jhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mvma7fhmyc25We spend our whole lives deciding who gets to know different parts of our story. But when it comes to our health data, those decisions can get a lot more complicated. /116 Sep 2026 03:48 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mvma7fhmyc25https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mvjj7grpec2zA new report examines inclusion policies in childcare settings in Alberta. https://policywise.blob.core.windows.net/files/Inclusion%20in%20Childcare%20Policy%20Scan%20Project%20Final%20Report.pdf?utm_source=chatgpt.com&fbclid=IwdGRleAUVgyNwZG9mBWZkaWQWUOfwnoXxwl0a_Oex_rTcsw7TiD9OC2V4dG4DYWVtAjExAHNydGMGYXBwX2lkCjY2Mjg1NjgzNzkAAR6a0U0qKuoY6oNaiEBluBhEn7OxvlypDjRFqUBy2WSnf1KJUj7rJQ6K1F1jFA_aem_gQz9N50IbIOSPvwztaQoGw15 Sep 2026 01:51 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mvjj7grpec2zhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mvd3ltsook2u@todmaffin.com recently made a video after their initiative to bring physicians to Canada, to (jokingly) bring hospital beds too. I made a joke on TikTok about bringing warm blankets straight from the dryer too. In reality warm blankets are a small sign of a healthy system12 Sep 2026 12:32 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mvd3ltsook2uhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mv6l7bulgk2qThe Mind Over Media project initiative will examine how digital spaces can affect the well-being of young people. https://www.childrenshealthcarecanada.ca/en/news/posts/government-of-canada-invests-in-youth-online-safety-and-well-being?utm_source10 Sep 2026 17:28 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mv6l7bulgk2qhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mv2i3trxqk2gOne of the biggest challenges with educating policy makers in Canada is a common attitude elsewhere as well. This false idea that the only goal to support people is so that people can contribute to the economy. Not everyone can. And that shouldn’t determine whether someone is entitled to support09 Sep 2026 02:21 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mv2i3trxqk2ghttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mupclqtlcs24Why access to assistive technology is a policy issue when it comes to access. #AssistiveTechnology #Disability #Accessibility #DisabilityRights04 Sep 2026 15:44 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mupclqtlcs24https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mupclqtlcs24Why access to assistive technology is a policy issue when it comes to access. #AssistiveTechnology #Disability #Accessibility #DisabilityRights04 Sep 2026 15:44 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mupclqtlcs24https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mulk3ti65c2mRelational Capital is the accumulated trust, empathy, self-awareness, and relationship-building capacity that exists between researchers and patient or family partners. It's built through sustained investment in the support system that makes engagement capable. https://www.linkedin.com/pulse/case-patient-family-engagement-infrastructure-rae-martens-uppac?utm_source=share&utm_medium=member_ios&utm_campaign=share_via03 Sep 2026 03:47 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mulk3ti65c2mhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3muffaqqcrs2wBill S-212 could shape federal policy on child and youth wellbeing in Canada here’s what’s actually in it. #youth #cdnpoli #cdnpolitics #bills21231 Aug 2026 17:05 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3muffaqqcrs2whttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mufcbeygis2lKids and youth have a human right to be a part of the conversation when it comes to legislation meant for them and their future. #CanadianYouth #YoungCanadians #BillS212 #YouthWellbeing31 Aug 2026 16:11 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mufcbeygis2lhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtyms43w7c2tBill S-212 is the National Strategy for Children and Youth Act. It would require the federal government to develop a coordinated national strategy for the well-being of children and youth, including measurable outcomes, consultation with children and youth, and parliamentary oversight. /126 Aug 2026 15:15 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtyms43w7c2thttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtuyqvo6ac2bThere have been a number of petitions going around about an Indigo Alert. This one has a pretty solid foundation. Please share and consider signing. https://www.ourcommons.ca/petitions/en/Petition/Details?Petition=e-7703&fbclid=IwdGRjcAT5-iVwZG9mBWZkaWQWUNJ2uSJ9zZjYurHDGdsTh3UIWJyp7GV4dG4DYWVtAjExAHNydGMGYXBwX2lkCjY2Mjg1NjgzNzkAAR5MCQDgu2vQSzeAiA2sv9i6Juqq85NFRfDT-i1jkdE-HBMX6Ty-ooDBsD-wrw_aem_qmatyFAp7_I4ZNKkyb7dcg25 Aug 2026 04:38 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtuyqvo6ac2bhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtu2ti4sic2qJust a casual reminder in an era of ai with all the current dealings going on between Canada and the US. That and an upcoming referendum vote in Alberta. There is no social media platform that has your back when it comes to algorithms that feed you information. /124 Aug 2026 19:43 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtu2ti4sic2qhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mttndv4mr22gOne argument worth considering amidst all the current buy Canadian sentiment is the fact that Canada has a real shot at becoming a global leader in mobility and accessibility tech, resources and tools. Infrastructure alone however doesn't build a strong potential economic sector, visibility /124 Aug 2026 15:42 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mttndv4mr22ghttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtti4cahvc23Dads of disabled and neurodivergent kids are a very under supported population. New support opportunity thread 🧵: Fathers of children with disabilities are often left out of the caregiving narrative, leading many to feel isolated and unseen in their role. /124 Aug 2026 14:08 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtti4cahvc23https://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtmtljx2kc2lBuilt By Deaf People, For Deaf People, Google's New Technology https://www.forbes.com/sites/keelycatwells/2026/08/20/built-by-deaf-people-for-deaf-people-the-new-era-of-american-sign-language-technology/?21 Aug 2026 22:45 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtmtljx2kc2lhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mtkexmj6fc2lOBI Public Talk — Beyond the Diagnosis: The Future of Neurodiversity https://braininstitute.ca/news-events/2026/future-of-neurodiversity20 Aug 2026 23:18 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mtkexmj6fc2lhttps://bsky.app/profile/coffeeandresearch.bsky.social/post/3mt67ewftwk2tOld video but an entertaining story. Awhile back, I saw a post from @dr_jonathan_stea about the University of Alberta’s free science literacy course. People kept commenting things like, “NDP voters should take this course but of course they won’t.”16 Aug 2026 03:06 +0000at://did:plc:oyffnyomwezffmphbvydhrdb/app.bsky.feed.post/3mt67ewftwk2t