Kidney cancer 24 years (lots of surgery inc. a Whipple’s). Patient Co-chair for Cambridge Cancer Research Hospital. 12 yrs improving the patient experience. Love wheelchair basketball ❤️👩‍🦽‍➡️🏀. Omnipod 5 user. Happy place: Nana-ing #oncosky #canskyhttps://bsky.app/profile/fionacarey.bsky.socialhttps://bsky.app/profile/fionacarey.bsky.social/post/3lypzo5d4f224Been at the Cambridge Dragonboat Festival today rowing to raise funds for the Cambridge Cancer Research Hospital. Brilliant fun with amazing colleagues from the project team. Any support vastly (and personally) appreciated: orlo.uk/jhQr6 And thanks in anticipation. X13 Sep 2025 14:51 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lypzo5d4f224https://bsky.app/profile/fionacarey.bsky.social/post/3lmznqhlhuc2n@nkca-natcan.bsky.social How weird is it that I’ve never been offered a Cancer Care Review? I was diagnosed nearly 24 years ago and have had numerous hiccups and diagnoses for mets over the years. Not once has my GP offered a CCR.17 Apr 2025 17:42 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lmznqhlhuc2nhttps://bsky.app/profile/fionacarey.bsky.social/post/3lltb42agds2o‘Appendix B’ is a get-out clause allowing Network Rail to avoid providing accessibility in the vast majority of station refurbs. If there’s a step-free station within 50 km (!!) they only have to create ‘passive provision’ for lifts to be fitted in the future. I think we know how that’ll work out. [contains quote post or other embedded content]02 Apr 2025 11:15 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lltb42agds2ohttps://bsky.app/profile/fionacarey.bsky.social/post/3liehi26ngk2gTurns out that last night’s aloo gobi on a crumpet is VERY tasty.17 Feb 2025 09:43 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3liehi26ngk2ghttps://bsky.app/profile/fionacarey.bsky.social/post/3lickipyqkk2rMore lovely stuff from @poorfrankraw.co.uk [contains quote post or other embedded content]16 Feb 2025 15:32 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lickipyqkk2rhttps://bsky.app/profile/fionacarey.bsky.social/post/3lickfjebzc2rMarvellous stuff from @nancynibs.bsky.social [contains quote post or other embedded content]16 Feb 2025 15:30 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lickfjebzc2rhttps://bsky.app/profile/fionacarey.bsky.social/post/3licjrk54lk2rNot the sea! These are the raw hoardings going up at the site of the new Cambridge Cancer Research Hospital. A wonderful sign that this amazing project is starting to become a reality! So exciting. We are confident that this building, #coproduced by staff and patients, will #ChangeTheStoryOfCancer,16 Feb 2025 15:19 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3licjrk54lk2rhttps://bsky.app/profile/fionacarey.bsky.social/post/3lhc6hivn322dExactly halfway through 3 months of Nivolumab immunotherapy. People ask how I’m managing side-effects. So far there are none. I am slightly afraid that this means nowt is happening… #oncobsky #canbsky03 Feb 2025 18:31 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lhc6hivn322dhttps://bsky.app/profile/fionacarey.bsky.social/post/3lhc5dzitns2dWHAT on earth are these ‘tech bros’ scared of? They’ve got, yer know, BILLIONS of dollars, jets, properties all over the world. What do they think this horrible man can do to them?? They [contains quote post or other embedded content]03 Feb 2025 18:11 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lhc5dzitns2dhttps://bsky.app/profile/fionacarey.bsky.social/post/3lhc4wynr322dA harrowing account of the devastated system of ‘care’ for some of the most vulnerable people. Rosy’s predicament is unconscionable. #CHC @SocialCareFuture [contains quote post or other embedded content]03 Feb 2025 18:04 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lhc4wynr322dhttps://bsky.app/profile/fionacarey.bsky.social/post/3lhc37seghc2xAI has lots of brilliant uses, not least in speeding up medical diagnoses. What worries me about AI is the kinds of ‘worlds’ it will create based on historical data sets (science, arts, culture, history etc) that assume that only MEN have ever done anything of note.03 Feb 2025 17:33 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lhc37seghc2xhttps://bsky.app/profile/fionacarey.bsky.social/post/3lhc2hbmr7k2xAnother incredible development. Let’s hope that more and more people not only leak this stuff, but stand up against it. [contains quote post or other embedded content]03 Feb 2025 17:20 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lhc2hbmr7k2xhttps://bsky.app/profile/fionacarey.bsky.social/post/3lelz4orxx22pFor info, in case you’re visiting someone at #Addenbrooke’s. [contains quote post or other embedded content]31 Dec 2024 12:07 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3lelz4orxx22phttps://bsky.app/profile/fionacarey.bsky.social/post/3ldr47lxwbk2sLiver ALT is good at last. I’m starting immunotherapy for my advanced kidney cancer on Monday. #oncobsky #canbsky The timing could be better, but best crack on.20 Dec 2024 19:20 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3ldr47lxwbk2shttps://bsky.app/profile/fionacarey.bsky.social/post/3ldnngn7u2c2kWe did a photoshoot for the hoardings that will surround the first groundworks at Cambridge Cancer Research Hospital. #CamCancer is starting to feel real..19 Dec 2024 10:18 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3ldnngn7u2c2khttps://bsky.app/profile/fionacarey.bsky.social/post/3ldnn7o363s2kBlood test on Tuesday at the GP. Another blood test yesterday (at the Park & Ride ‘drive through’ clinic, in a big marquee in HUGE blustery wind), to see if I can start immunotherapy on Monday. Not sure if I want to…19 Dec 2024 10:14 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3ldnn7o363s2khttps://bsky.app/profile/fionacarey.bsky.social/post/3ldlbxfiefk2yThey’ll be shaking their heads and asking ‘WHAT? WHAT were they thinking?’ [contains quote post or other embedded content]18 Dec 2024 11:47 +0000at://did:plc:pcmykp5yktlsu45f3smqjeo7/app.bsky.feed.post/3ldlbxfiefk2y