I write about shrinking reserves from #LongCOVID and #MECFS with brutal honesty and zero fluff. Also: Star Wars, comics, cats, and Penguins goals. 🚨 #LetsGoPens #PwME https://darthfoo.substack.comhttps://bsky.app/profile/darthfoo.bsky.socialhttps://bsky.app/profile/darthfoo.bsky.social/post/3mlizngkcwk2s“The worst grief in a crash is not being unable to move. It is being unable to be who you are.” From my latest essay, The Inventory of Loss. #LongCOVID #MECFS #PwME #ChronicIllness #ChronicPain #InvisibleIllness #Grief #Disability #Spoonie https://darthfoo.substack.com/p/the-inventory-of-loss10 May 2026 15:01 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mlizngkcwk2shttps://bsky.app/profile/darthfoo.bsky.social/post/3mlabf5zlks27#FuckCancer07 May 2026 03:25 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mlabf5zlks27https://bsky.app/profile/darthfoo.bsky.social/post/3mkykx6unjs26A quote from my new piece, The Inventory of Loss. “The grief is ongoing because the illness is ongoing, and new losses arrive as old ones calcify into something you have learned to carry.” https://darthfoo.substack.com/p/the-inventory-of-loss #LongCOVID #MECFS #PwME04 May 2026 01:55 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mkykx6unjs26https://bsky.app/profile/darthfoo.bsky.social/post/3mkuu5rms3k2wSome debts are financial. Some are physical. This one is about what chronic illness actually takes, catalogued honestly, without softening it. “You grieve the ability to just feel things without doing math first.” #LongCOVID #MECFS #PwME https://darthfoo.substack.com/p/the-inventory-of-loss02 May 2026 14:29 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mkuu5rms3k2whttps://bsky.app/profile/darthfoo.bsky.social/post/3mkji7nbmzs2zHUGE win tonight boys. Let’s win another one in Philly on Wednesday. When we play our game, we’re hard to play against. #LetsGoPens @pittsburghpenguins.bsky.social28 Apr 2026 01:56 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mkji7nbmzs2zhttps://bsky.app/profile/darthfoo.bsky.social/post/3mkbizb72n223You know that feeling when you didn’t hear what you wanted to hear from your doctor? 🙋‍♂️ #LongCOVID #MECFS #PwME24 Apr 2026 21:49 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mkbizb72n223https://bsky.app/profile/darthfoo.bsky.social/post/3mk533jj5gc2h#ChronicIllness, being confined to a bed, and my #PittsburghPenguins losing to the hated #Flyers. I’m depressed. #LongCOVID #MECFS #PwME23 Apr 2026 03:29 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mk533jj5gc2hhttps://bsky.app/profile/darthfoo.bsky.social/post/3mk4yuvm7t22qThe @penguinsnhl.bsky.social have looked terrible. They’re are being out played & out coached. The Flyers have us playing their game. They deserve to win. Tocchet deserves the Jack Adams. Dubas needs to get us faster & younger. I fear that means Geno has to go. We better have an active offseason.23 Apr 2026 02:50 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mk4yuvm7t22qhttps://bsky.app/profile/darthfoo.bsky.social/post/3mjzdyo4qgc2dA quote from my piece, The Debt Came Due, about navigating #PEM. “I want to be honest about this because the people who read what I write deserve honesty more than they deserve a tidy narrative about resilience. I am depressed.” #LongCOVID #MECFS #PwME #Depressed https://substack.com/@darthfoo/p-19257227421 Apr 2026 15:58 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mjzdyo4qgc2dhttps://bsky.app/profile/darthfoo.bsky.social/post/3mjt6l4rnoc2uCan’t wait for Monday!! #LetsGoPens19 Apr 2026 05:05 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mjt6l4rnoc2uhttps://bsky.app/profile/darthfoo.bsky.social/post/3mjlt6is3ok25My pain is bad tonight, I can’t sleep. I’m thinking back to my essay about long term #MECFS patients, Those Who Were Already Here. I’m grateful to and devastated for those I’ve encountered from this community. #LongCOVID #PwME #ChronicIllness https://substack.com/@darthfoo/p-18251894116 Apr 2026 06:53 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mjlt6is3ok25https://bsky.app/profile/darthfoo.bsky.social/post/3miaqowm3mc2iA quote from my piece, The Debt Came Due. “There is a version of my life that exists in my memory like a photograph from a trip I’ll never take again. In that version, I wake up and get out of bed without negotiating with my body first.” #LongCOVID #MECFS #PEM #PwME https://substack.com/home/post/p-19257227430 Mar 2026 03:44 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3miaqowm3mc2ihttps://bsky.app/profile/darthfoo.bsky.social/post/3mjgu6p5v6k2uI’m with #DonaldTrump on this one. Every one of my doctors use this treatment method. #DrTrump14 Apr 2026 07:27 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mjgu6p5v6k2uhttps://bsky.app/profile/darthfoo.bsky.social/post/3mj4m2d222c2jIt takes nearly 4 hours round trip to see my #LongCOVID & #MECFS specialist. Beth moves her patients around to make it happen. Yesterday, my doctor was frustrated with me, and she earned it. I’ve been selective about her recommendations. She reminded me why that’s dangerous. I won’t forget it. #PwME10 Apr 2026 05:35 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mj4m2d222c2jhttps://bsky.app/profile/darthfoo.bsky.social/post/3mj4ezt5ggk24Boys showed up HUGE tonight. When this team plays its game, nobody can stop us. Let’s lock in, finish strong, and own Round 1. Only downside? My ugly, patchy as fuck beard is coming back. #LetsGoPens @pittsburghpenguins.bsky.social10 Apr 2026 03:30 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mj4ezt5ggk24https://bsky.app/profile/darthfoo.bsky.social/post/3misaqc52es2e😏 [contains quote post or other embedded content]06 Apr 2026 02:46 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3misaqc52es2ehttps://bsky.app/profile/darthfoo.bsky.social/post/3mipvpmwdgk2iA quote from my piece, The Debt Came Due, about the current #PEM crash I’m navigating. “I find purpose in helping others. It is the through-line of my entire professional life, from child protective work to retail management.” #LongCOVID #MECFS #PwME https://substack.com/home/post/p-19257227405 Apr 2026 04:23 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mipvpmwdgk2ihttps://bsky.app/profile/darthfoo.bsky.social/post/3midhm5e5c22r“There is a particular cruelty in being too sick from a disease to advocate for awareness of that disease on the day set aside for exactly that purpose.” https://substack.com/home/post/p-19257227431 Mar 2026 05:39 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3midhm5e5c22rhttps://bsky.app/profile/darthfoo.bsky.social/post/3miaqowm3mc2iA quote from my piece, The Debt Came Due. “There is a version of my life that exists in my memory like a photograph from a trip I’ll never take again. In that version, I wake up and get out of bed without negotiating with my body first.” #LongCOVID #MECFS #PEM #PwME https://substack.com/home/post/p-19257227430 Mar 2026 03:44 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3miaqowm3mc2ihttps://bsky.app/profile/darthfoo.bsky.social/post/3mi6fn7c6p22iMigraine. Burning nerves. Can’t be upright. Moving feels like fighting double gravity. This is a normal Sunday with Long COVID and ME/CFS. There is nothing inspiring about it. It just hurts. #LongCOVID #MECFS #ChronicIllness #InvisibleIllness #PwME29 Mar 2026 05:21 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mi6fn7c6p22ihttps://bsky.app/profile/darthfoo.bsky.social/post/3mi5ugsuips2zDeep in a #PEM crash at the moment. Not upright, barely eating, flat on my back resting and recovering. Will this ever get better? #LongCOVID #MECFS #PwME29 Mar 2026 00:13 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mi5ugsuips2zhttps://bsky.app/profile/darthfoo.bsky.social/post/3mhr2er6vlk2thttps://open.substack.com/pub/johndupuis/p/covid-at-6-long-covid-mass-death?r=9eu5w&utm_medium=ios23 Mar 2026 21:54 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mhr2er6vlk2thttps://bsky.app/profile/darthfoo.bsky.social/post/3mhr2adh7yc2jCrashed after some activity last week. Since Saturday can't get out of bed, can't stay upright, can't stay awake. It's been days. I know everyone is different but I just need to hear from people who've been through this. How long? #LongCOVID #MECFS #PEM #PwME23 Mar 2026 21:52 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mhr2adh7yc2jhttps://bsky.app/profile/darthfoo.bsky.social/post/3mhiybbn4rc2kAm I the only person who clicks to the original source when seeing a recap article on news aggregators? #Media20 Mar 2026 16:55 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mhiybbn4rc2khttps://bsky.app/profile/darthfoo.bsky.social/post/3mh5na4zshc2dSpent #LongCovidAwarenessDay in bed, unable to stay upright. Missed the moment, but not the meaning. To every patient navigating this illness, and especially to our caregivers: I see you. All of you. Be well. #LongCOVID @longcovidsos.bsky.social @longcovidadvoc.com @longcovidsupport.bsky.social16 Mar 2026 04:39 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mh5na4zshc2dhttps://bsky.app/profile/darthfoo.bsky.social/post/3mgxtbu6occ2uCrashed hard, been gone weeks. Severe post-exertional malaise. Not resting by choice, resting because the alternative is worse. “Why I Can’t Just Meet You for Dinner” explains the economics of it. #PEM #LongCOVID #MECFS #PwME https://substack.com/@darthfoo/p-17829303613 Mar 2026 21:11 +0000at://did:plc:pl44utaze45iam2p5ynpfak5/app.bsky.feed.post/3mgxtbu6occ2u