I’m a retired Associated Press broadcast journalist who writes about multiple sclerosis and has lived with MS for 45+ years.https://bsky.app/profile/themswire.bsky.socialhttps://bsky.app/profile/themswire.bsky.social/post/3mlo25mdd3s22Doctor Amazon wants your business. Is this for you? https://edtobias.substack.com/p/would-you-order-your-healthcare-from12 May 2026 14:53 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3mlo25mdd3s22https://bsky.app/profile/themswire.bsky.social/post/3mjg7icffus2xSometimes you have to wonder about an MS study. https://edtobias.substack.com/p/is-coffee-as-good-as-medication-to14 Apr 2026 01:17 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3mjg7icffus2xhttps://bsky.app/profile/themswire.bsky.social/post/3mgdjtrijc22iChecking your blood to check your MS https://open.substack.com/pub/edtobias/p/checking-your-blood-to-check-your?utm_campaign=post-expanded-share&utm_medium=web05 Mar 2026 19:29 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3mgdjtrijc22ihttps://bsky.app/profile/themswire.bsky.social/post/3mddjvffsqk2mI test walked the Cadense shoe. Did it help me walk better? https://edtobias.substack.com/p/is-cadense-the-shoe-that-will-help #MS #multiplesclerosis26 Jan 2026 15:14 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3mddjvffsqk2mhttps://bsky.app/profile/themswire.bsky.social/post/3mcfidyzp622bDoes it trouble you that the FDA has put the brakes on approval of tolebrutinib for treatment of multiple sclerosis? https://edtobias.substack.com/p/bad-news-for-the-ms-btk-inhibitor14 Jan 2026 16:27 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3mcfidyzp622bhttps://bsky.app/profile/themswire.bsky.social/post/3m4xvlvnrvs2lArtificial intelligence has been moving into healthcare. Can it used to make MRIs shorter and more descriptive? https://edtobias.substack.com/p/shorter-better-mris-possible-with #multiplesclerosis #disability #AI #healthcare06 Nov 2025 15:40 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3m4xvlvnrvs2lhttps://bsky.app/profile/themswire.bsky.social/post/3lzr424e2bc2dForty-five MS years and still counting! https://open.substack.com/pub/edtobias/p/still-hangin-in-after-all-these-years https://open.substack.com/pub/edtobias/p/still-hangin-in-after-all-these-years?r=o7x9l&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true26 Sep 2025 18:31 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lzr424e2bc2dhttps://bsky.app/profile/themswire.bsky.social/post/3lwieiq5nns22Is there an age at which there’s no point in using an #ms disease modifying treatment? Here’s my opinion. https://open.substack.com/pub/edtobias/p/when-is-it-time-to-say-when-for-an?r=o7x9l&utm_medium=ios #multiplesclerosis16 Aug 2025 02:53 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lwieiq5nns22https://bsky.app/profile/themswire.bsky.social/post/3lusl2f7lns2xA new study to measure MS fatigue using an app is looking for participants, and - get this - the upper age limit is 89! I wish other researchers would include multiples clerosis seniors. https://www.nationalmssociety.org/how-you-can-help/get-involved/participate-in-research-studies/rs-remote-exercise-tracking #MS #disability #multiplesclerosis25 Jul 2025 17:27 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lusl2f7lns2xhttps://bsky.app/profile/themswire.bsky.social/post/3lubhajth2s25A clinical trial of an oral med to counter #multiplesclerosis spasticity is recruiting. 48 centers spanning half a dozen countries. https://edtobias.substack.com/publish/posts/detail/16867462518 Jul 2025 22:03 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lubhajth2s25https://bsky.app/profile/themswire.bsky.social/post/3lu3w4fvp7k2dBrainHQ is a web-based program designed to improve the brain's processing speed. I gave it a test to see if it might help some of my #multiplesclerosis symptoms. #disability #cognition https://open.substack.com/pub/edtobias/p/using-brainhq-to-try-to-improve-my?r=o7x9l&utm_medium=ios16 Jul 2025 17:13 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lu3w4fvp7k2dhttps://bsky.app/profile/themswire.bsky.social/post/3lqfqrqt36s24The FDA is starting to replace lab animals with AI. Is it the right thing to do? #multiplesclerosis #disability #research https://open.substack.com/pub/edtobias/p/can-lab-animals-be-replaced-by-ai?r=o7x9l&utm_medium=ios30 May 2025 17:24 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lqfqrqt36s24https://bsky.app/profile/themswire.bsky.social/post/3loynaiivy22yThis MS research left me wondering "why?" https://open.substack.com/pub/edtobias/p/this-ms-research-left-me-wondering?r=o7x9l&utm_campaign=post&utm_medium=web&showWelcomeOnShare=false12 May 2025 18:51 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3loynaiivy22yhttps://bsky.app/profile/themswire.bsky.social/post/3lo5nz6uuos22Ham radio friends - I'm excited to report the second addition of my guide to Morse code operating, "DITS and DAHS," is now available on Amazon as both a paperback and an e-book. Lots of good info about learning the code and improving your CW operating. https://www.amazon.com/DITS-DAHS-ABCs-Morse-Operating/dp/B0F3V3TKP6/ #hamradio #morse02 May 2025 01:23 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lo5nz6uuos22https://bsky.app/profile/themswire.bsky.social/post/3lndcanely22nWant solid info about COVID-19? You can’t get it from the covid dot gov website anymore. https://www.nytimes.com/2025/04/18/science/trump-covid-website-lab-leak.html?smid=nytcore-ios-share&referringSource=articleShare21 Apr 2025 13:43 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lndcanely22nhttps://bsky.app/profile/themswire.bsky.social/post/3llalloxfhc2wZing, went some MS pain. #multiplesclerosis #pain https://open.substack.com/pub/edtobias/p/did-i-find-a-simple-solution-to-some?r=o7x9l&utm_medium=ios26 Mar 2025 01:02 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3llalloxfhc2whttps://bsky.app/profile/themswire.bsky.social/post/3lhom42nwts2fI have no doubt that #multiplesclerosis research will be among the research that will take a hit from this. If you are in the U.S. it’s time to call your members of Congress and tell them to put an end to this craziness. https://www.washingtonpost.com/health/2025/02/08/nih-cuts-billions-dollars-biomedical-funding-effective-immediately/08 Feb 2025 17:07 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lhom42nwts2fhttps://bsky.app/profile/themswire.bsky.social/post/3lggl65dqms2nFDA issues warning about rare, but serious allergic reaction to Copaxone, Glatopa (glatiramer acetate) #MS treatments #multiplesclerosis https://www.fda.gov/safety/medical-product-safety-information/copaxone-glatopa-glatiramer-acetate-drug-safety-communication-fda-adds-boxed-warning-about-rare#:~:text=ISSUE%3A%20The%20FDA%20is%20warning,with%20multiple%20sclerosis%20(MS).23 Jan 2025 19:04 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lggl65dqms2nhttps://bsky.app/profile/themswire.bsky.social/post/3lg7old4q2c2oI’m really sorry about fatigue spoiling things. I’ve been living with it for over 40 years with #ms. It impacted activities with our son and now our grandkids. Are you using any meds, such as modafinil? Have you considered a lightweight scooter for excursions ? #multiplesclerosis #disability [contains quote post or other embedded content]21 Jan 2025 01:17 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lg7old4q2c2ohttps://bsky.app/profile/themswire.bsky.social/post/3lg7hunehac26I didn't get past the initial screening for this survey - maybe I'm not anxious or nervous enough - but you might be interested. #multiplesclerosis #ms https://www.nationalmssociety.org/how-you-can-help/get-involved/participate-in-research-studies/rs-physical-activity-and-anxiety? https://www.nationalmssociety.org/how-you-can-help/get-involved/participate-in-research-studies/rs-physical-activity-and-anxiety?utm_source=imt&utm_medium=email&utm_campaign=fy25_research_surveyillinois_fy2520 Jan 2025 23:17 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lg7hunehac26https://bsky.app/profile/themswire.bsky.social/post/3lfxfqzpwt227There are some very good tips, here. Even though I just use a scooter, there have certainly been times when the chatter and activity has been “over my head.” And don’t get me started on the people glued to their mobile devices while walking on a sidewalk. #multiplesclerosis [contains quote post or other embedded content]17 Jan 2025 18:17 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lfxfqzpwt227https://bsky.app/profile/themswire.bsky.social/post/3lfuxishjzs2cTolebrutinib on a fast track towards final FDA approval to treat #SPMS. #MS https://themswire.com/tolebrutinib-nears-the-ms-approval-finish-line/16 Jan 2025 18:57 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lfuxishjzs2chttps://bsky.app/profile/themswire.bsky.social/post/3lfuxaqwoys2cMS study of potential SPMS treatment seeking participants in US. https://www.nationalmssociety.org/how-you-can-help/get-involved/participate-in-research-studies/participate-in-clinical-trials/ct-frexalimab-in-sp-ms? https://www.nationalmssociety.org/how-you-can-help/get-involved/participate-in-research-studies/participate-in-clinical-trials/ct-frexalimab-in-sp-ms?utm_source=imt&utm_medium=email&utm_campaign=fy25_research_frexalimab_sp_fy2516 Jan 2025 18:52 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lfuxaqwoys2chttps://bsky.app/profile/themswire.bsky.social/post/3ldjpqxerys2mAnyone with #ms who rides a scooter tried a do-it-yourself check-out lately? https://themswire.com/real-people-at-the-check-out-make-things-easier-for-me/17 Dec 2024 20:49 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3ldjpqxerys2mhttps://bsky.app/profile/themswire.bsky.social/post/3lddvbm4x422aTolebrutinib, an experimental BTK inhibitor, gets FDA’s Breakthrough designation to treat non-relapsing Secondary Progressive #MS https://www.sanofi.com/en/media-room/press-releases/2024/2024-12-13-06-00-00-299660915 Dec 2024 13:11 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lddvbm4x422ahttps://bsky.app/profile/themswire.bsky.social/post/3ld5lq2jevc2tA vaccine to protect against norovirus? A Phase 3 clinical trial is seeking volunteers and, for a change, the researchers including older folks. https://connect.trialscope.com/studies/1f82c13e-f677-464f-be26-b55179e1e0e8? https://connect.trialscope.com/studies/1f82c13e-f677-464f-be26-b55179e1e0e8?pv=1&utm_locale=en&utm_source=ReminderText13 Dec 2024 01:05 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3ld5lq2jevc2thttps://bsky.app/profile/themswire.bsky.social/post/3lcfmgtvemc2tThis is why EXPERTS are needed to lead the FDA, CDC, NIH, and HHS. https://www.nytimes.com/2024/11/26/opinion/vaccine-bird-flu-pandemic.html?smid=nytcore-ios-share&referringSource=articleShare03 Dec 2024 12:13 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lcfmgtvemc2thttps://bsky.app/profile/themswire.bsky.social/post/3lbhvt6453s2pSign up for a webinar discussing three #MS clinical trials that were presented at last September’s ECTRIMS conference. https://www.msif.org/webcast-clinical-trials/ https://www.msif.org/webcast-clinical-trials/?utm_source=imt&utm_medium=email&utm_campaign=fy25_newsletter_nov_2_fy2521 Nov 2024 16:42 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lbhvt6453s2phttps://bsky.app/profile/themswire.bsky.social/post/3lbar4jewsk2aTwo new products to help folks with #MS and other #disabilities get around. https://themswire.com/a-new-scooter-and-chair-help-ms-mobility/18 Nov 2024 20:29 +0000at://did:plc:rgemtlwavyqmmp3qhdw2ftz4/app.bsky.feed.post/3lbar4jewsk2a