Sharing insights, resources, and experiences on Long COVID recovery and research. Visit www.longcovidjourney.com for more. #cleanair, #covid #LongCovid #ChronicIllness #HealthResearch #PatientAdvocacyhttps://bsky.app/profile/longcovidjourney.bsky.socialhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mtwigflahs2rWhat happens to your heart rate when you stand up? For some people with Long Covid, the change can be surprisingly big. A simple sit-to-stand test can help you spot the pattern. We explain what to look for and when to stop. 👇 https://longcovidjourney.com/sit-and-stand-test-long-covid/25 Aug 2026 18:51 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mtwigflahs2rhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mttvmzs4hs2yHow many people have Long Covid? We don’t actually know. And that’s a problem. If countries can’t reliably measure Long Covid, how can they plan healthcare, research or support for the people living with it? Here why and what needs to change. 👇 https://longcovidjourney.com/why-many-countries-cannot-measure-long-covid-nationally-and-what-needs-to-change-2/ #LongCovid24 Aug 2026 18:10 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mttvmzs4hs2yhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mtrhs4o7ts2jWhat can Google searches reveal about Long Covid? More than you might think. Behind every search is someone looking for answers about fatigue, brain fog, PEM, POTS, palpitations and more. We looked at the patterns 👇 https://longcovidjourney.com/what-google-searches-reveal-about-long-covid-symptoms/ #LongCovid23 Aug 2026 18:57 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mtrhs4o7ts2jhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mtovcbgyyc2tWhat if “I’m out of breath” isn’t a fitness problem? After COVID, breathlessness can be an early warning that you’ve exceeded what your body can currently handle. Pushing harder isn’t always the answer. 👇 https://longcovidjourney.com/why-shortness-of-breath-after-covid-is-often-a-warning-signal-not-a-fitness-issue/22 Aug 2026 18:20 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mtovcbgyyc2thttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mtjxnmqht22bYou’ve eaten the same food for years. Then one day… it doesn’t agree with you anymore. Why does this happen? And why are so many people noticing it after COVID? 👇 https://longcovidjourney.com/food-intolerance-long-covid/ #MCAS #histamine #longcovid20 Aug 2026 19:19 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mtjxnmqht22bhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mtip333ank2qYou feel better. You do more. Then your body sends the bill tomorrow. That’s Long COVID. Why the crash happens →⁠ https://longcovidjourney.com/long-covid-fatigue-immune-system-mitochondria/20 Aug 2026 07:13 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mtip333ank2qhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mtfwd6my6k2sYou didn’t catch EBV again. It may have been there all along quietly contained by your immune system. Then COVID changed the equation. Could dormant viruses help explain why some people don’t recover? The science is getting interesting ↓ longcovidjourney.com/viral-reacti... https://longcovidjourney.com/viral-reacti..19 Aug 2026 04:45 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mtfwd6my6k2shttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mtcen4xkt225You slept 9 hours. So why do you feel like you didn’t sleep at all? Long Covid can turn sleep into something strangely unrefreshing and “just get more rest” misses the point. What’s actually happening ↓ https://longcovidjourney.com/long-covid-sleep-problems-2/17 Aug 2026 18:50 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mtcen4xkt225https://bsky.app/profile/longcovidjourney.bsky.social/post/3mtcebmv3os25You slept 9 hours. So why do you feel like you didn’t sleep at all? Long Covid can turn sleep into something strangely unrefreshing and “just get more rest” misses the point. What’s actually happening ↓ https://longcovidjourney.com/long-covid-sleep-problems-2/17 Aug 2026 18:44 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mtcebmv3os25https://bsky.app/profile/longcovidjourney.bsky.social/post/3mt7khflcsc2jMedicine has a perfectly respectable phrase: “I don’t know yet.” Patients can live with that. What’s much harder to live with is: “I don’t know, therefore nothing is wrong.” Long Covid exposes the difference. https://longcovidjourney.com/dealing-with-dismissive-doctors-long-covid-guide/16 Aug 2026 15:57 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mt7khflcsc2jhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mt53kcxqrk2hThe cruelest Long Covid trap? You finally feel better. So you do all the things you’ve been waiting to do. Then 24-72 hours later, your body sends the bill. A good day isn’t always a green light. Sometimes, it’s a warning to pace. → https://longcovidjourney.com/how-to-stop-long-covid-getting-worse/15 Aug 2026 16:24 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mt53kcxqrk2hhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mt2vwjvf2k2l“Just rest.” For some with Long Covid, rest means being housebound or bedbound. A shower can be too much. A conversation can trigger a crash. Leaving the house may be impossible. This is severe illness and disability not simply tiredness. Read: https://longcovidjourney.com/severe-long-covid-housebound-bedbound/ #LongCovid14 Aug 2026 19:39 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mt2vwjvf2k2lhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3msye7m2sgc2oDizzy? Spinning? About to faint? Feeling like the floor has quietly betrayed you? Long Covid dizziness isn’t necessarily “just dizziness.” It can involve POTS/autonomic dysfunction, vestibular problems, cerebral blood-flow changes. https://longcovidjourney.com/long-covid-dizziness-vertigo/13 Aug 2026 19:16 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3msye7m2sgc2ohttps://bsky.app/profile/longcovidjourney.bsky.social/post/3msvvb4zzv22uTinnitus. Blurry vision. Ear pressure. Light sensitivity. That weird “something is wrong with my eyes” feeling. And then the tests come back normal. You’re left wondering: if nothing is wrong, why does it feel so wrong? #LongCovid. 👀👂 https://longcovidjourney.com/when-the-eyes-and-ears-are-normal-but-the-symptoms-persist/12 Aug 2026 19:43 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3msvvb4zzv22uhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3msthpvtvgc2oLow amino acids. More supplements. Problem solved? Not so fast. In #LongCovid, altered amino-acid levels may reflect what the body is doing, not simply what it needs more of. We looked at creatine, taurine, arginine, NAC & more. 👇 https://longcovidjourney.com/amino-acids-for-long-covid-what-the-evidence-actually-shows/11 Aug 2026 20:36 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3msthpvtvgc2ohttps://bsky.app/profile/longcovidjourney.bsky.social/post/3msqrucjvqk2mYour gut might be involved in #LongCovid. But before you buy the 17 supplements, kill Candida, ban half your diet and panic about “leaky gut”… What does the science actually show? We went down the rabbit hole so you don’t have to. 👇 https://longcovidjourney.com/slug-long-covid-gut-microbiome/10 Aug 2026 18:59 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3msqrucjvqk2mhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3msnzidobj223What if your afternoon nap isn’t a weakness but a pacing tool? For #LongCovid, rest can mean more than sleep. Even quiet wakeful rest may help when your brain and body are overloaded. But when you nap matters. 👀 https://longcovidjourney.com/power-nap-benefits/09 Aug 2026 16:38 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3msnzidobj223https://bsky.app/profile/longcovidjourney.bsky.social/post/3mslxa6mjl22fNormal tests. Abnormal life. You can have “normal” blood tests and still struggle to walk, think, work or function with #LongCovid. So what are routine tests actually telling you? We break it down. 👇 https://longcovidjourney.com/long-covid-normal-tests/08 Aug 2026 20:52 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mslxa6mjl22fhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3msizrazsdk2mPeople with #LongCovid are so desperate for answers that many become their own clinical trial. We reviewed some of the most talked-about experimental treatments discussed on Reddit rating science & risks How many are actually worth trying? https://longcovidjourney.com/experimental-treatments-for-long-covid/ #mecfs#treatments07 Aug 2026 16:59 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3msizrazsdk2mhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3msgpowdlyc2rEver stopped mid-sentence because the word just… disappeared? 🤯 Not forgetting. Not dementia. Not “just stress.” For many word-finding difficulty is one of the most frightening symptoms of brain fog. https://longcovidjourney.com/word-finding-difficulty-long-covid/ Ever happen to you? #BrainFog #MECFS #longcovid06 Aug 2026 18:54 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3msgpowdlyc2rhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3msdy4apotk2cThe most interesting virus in Long COVID research… …may not be SARS-CoV-2. It may be the one that was already inside us. Why Epstein-Barr virus keeps appearing in Long COVID studies: https://longcovidjourney.com/exploring-the-link-between-ebv-reactivation-and-long-covid-symptoms-and-treatments/05 Aug 2026 16:46 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3msdy4apotk2chttps://bsky.app/profile/longcovidjourney.bsky.social/post/3msbpdobayc2pYour mouth is not just where food enters. It is an immune, nervous and sensory system. So what happens when a virus leaves behind changes in taste, saliva and oral sensations? Long COVID may be affecting more than we realise. https://longcovidjourney.com/oral-and-eye-changes-when-covid-wants-to-change-your-smile-and-stare/04 Aug 2026 19:04 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3msbpdobayc2phttps://bsky.app/profile/longcovidjourney.bsky.social/post/3msaecijlvk2oYour phone has a battery percentage. Your body doesn’t. By the time many people with Long COVID realise they’re running on empty, they’ve already gone too far. Maybe the problem isn’t “running out” of energy. Maybe it’s how energy is made in the first place. https://longcovidjourney.com/energy-long-covid/04 Aug 2026 06:14 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3msaecijlvk2ohttps://bsky.app/profile/longcovidjourney.bsky.social/post/3ms4qnkiejk2hWhat if you’re not “low” in electrolytes… …your body just isn’t managing them properly? Long COVID may be less about what’s in your blood and more about how your body regulates it. Why that matters: https://longcovidjourney.com/long-covid-electrolyte-imbalance/02 Aug 2026 19:44 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3ms4qnkiejk2hhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3ms24t7qq2s2wLong COVID doesn’t just make activities harder. It quietly rewrites what your body considers “possible.” One day it’s a walk. The next it’s a shower. The loss isn’t just physical,it’s your functional capacity. Understanding why matters. https://longcovidjourney.com/functional-capacity-long-covid/01 Aug 2026 18:44 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3ms24t7qq2s2whttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mruxqlmins2dThe virus may have left. The immune system may still be arguing about it. That’s one reason Long COVID has become such a scientific puzzle. https://longcovidjourney.com/long-covid-immune-system/ #longcovid30 Jul 2026 17:30 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mruxqlmins2dhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mrsmpifpt22qIf Long COVID were just deconditioning… Why do so many people get worse after exercise instead of gradually improving? It’s one of the biggest misconceptions surrounding Long COVID and understanding the difference could prevent harm. New article ↓ https://longcovidjourney.com/long-covid-vs-deconditioning/29 Jul 2026 19:07 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mrsmpifpt22qhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mrpvczbz6k2hLong COVID cures according to the internet: 🧘 Yoga. 😊 Positivity. 🥩 Carnivore. 🌱 Vegan. ❄️ Ice baths. 💊 Supplements. 🏃 “Just exercise.” At this point, the only thing everyone agrees on is that everyone disagrees. So what does the science actually say? https://longcovidjourney.com/cure-for-long-covid/28 Jul 2026 17:03 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mrpvczbz6k2hhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mrnivkxdok2mWhat if your body had enough energy to start an activity but not enough to recover afterwards? That’s one of the biggest misconceptions about Long COVID. The problem isn’t simply fatigue. It’s what happens after exertion. https://longcovidjourney.com/energy-long-covid/ #longcovid #pem #crash27 Jul 2026 18:16 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mrnivkxdok2mhttps://bsky.app/profile/longcovidjourney.bsky.social/post/3mrkmppsb422pWhy aren’t people with Long COVID simply going back to work? Because for many, the problem is not motivation. It is a condition where even small physical or cognitive effort can trigger a delayed crash. Ignoring this reality has a cost human and economic. https://longcovidjourney.com/the-economic-costs-of-ignoring-covid-in-britain/26 Jul 2026 14:46 +0000at://did:plc:uborg4ybcfewvtlfvbr77svm/app.bsky.feed.post/3mrkmppsb422p