Advocacy and expertise for over 1 million people living with #MultipleSclerosis and related disorders in Europe.https://bsky.app/profile/emspofficial.bsky.socialhttps://bsky.app/profile/emspofficial.bsky.social/post/3mwq7a4y5ms25"If real-world evidence excludes lived experience, it is only a partial view of the real world." Our CEO Elisabeth Kasilingam at #EFNA2026 IMSS data show people with MS face an average of 14 symptoms, yet many report limited access to personalised care. #PatientData30 Sep 2026 11:06 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mwq7a4y5ms25https://bsky.app/profile/emspofficial.bsky.social/post/3mw62tl2t2g2lOnly 48% of people with MS are in work across the European countries that report data. MS is usually diagnosed between 20 and 40 — peak career years. Our CEO @lili_ @eumsplatform speaks on brain health and employment today at #IFDM2026 in Edinburgh. #MultipleSclerosis23 Sep 2026 06:00 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mw62tl2t2g2lhttps://bsky.app/profile/emspofficial.bsky.social/post/3mw437gvgue2gRunning faster isn't only about training harder. It's about wasting less. Part two of coach Guillaume Lodini's #EMSPRun2026 series: technique — posture, stride and breathing. Register 👉️ https://emsp.org/events/emsprun26/22 Sep 2026 11:01 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mw437gvgue2ghttps://bsky.app/profile/emspofficial.bsky.social/post/3mvamc47xcc2nRunner spotlight: Meet Elodie Devos. A PhD student in Communication Sciences, passionate about amplifying diverse voices in research At 19, her legs went numb. After a long search and many visits to the doctor, the diagnosis came: Multiple Sclerosis.11 Sep 2026 12:52 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mvamc47xcc2nhttps://bsky.app/profile/emspofficial.bsky.social/post/3muz2fsdv3c2vThe hardest run of the year isn't the marathon. It's the first one back after summer. Join coach Guillaume Lodini for a three-part series to get you ready for #EMSPRun2026. Part one: the three pillars of marathon prep — consistency, intervals, strength. Register for the Run 👉️ bit.ly/4zSwukV08 Sep 2026 12:44 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3muz2fsdv3c2vhttps://bsky.app/profile/emspofficial.bsky.social/post/3mumhwksjsk2sMeet Eline-Sofie Lende Her first MS attack came working her shift on a hospital ward. She was 23. This October she runs the Antwerp Marathon with the EMSP Team, fundraising for young people living with MS, NMOSD and MOGAD. Join her: https://emsp.org/events/emsprun26/ #MSRun2026 #BrainHealth #RunforaCause03 Sep 2026 12:41 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mumhwksjsk2shttps://bsky.app/profile/emspofficial.bsky.social/post/3muhc2dlch22cEMSP is heading to @ACTRIMS in October! We'll be carrying the voices of people with MS, NMOSD and MOGAD into Patient Community Day on 23 Oct and you'll find us at our booth all week. Come talk MS Barometer, Research and capacity building for patient community. youtu.be/F1zn78q1iWc https://youtu.be/F1zn78q1iWc01 Sep 2026 11:13 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3muhc2dlch22chttps://bsky.app/profile/emspofficial.bsky.social/post/3mrwz4s3tri2mEMSP's first strategic meeting with our newly elected Executive Committee has wrapped up! 💙 Two days of meaningful discussions, shared vision, and renewed commitment to serving the MS, NMOSD & MOGAD communities across Europe #MS #NMOSD #MOGAD #StrongerTogether31 Jul 2026 13:00 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mrwz4s3tri2mhttps://bsky.app/profile/emspofficial.bsky.social/post/3mramy2nmkk2tTime matters in MS: early diagnosis + timely treatment prevent irreversible disability. Yet access across Europe remains a postcode lottery. This #WorldBrainDay, the 7th #MSBarometer is underway — now including NMO & MOGAD for the first time. 📊https://emsp.org/projects/ms-barometer-2025-2027/22 Jul 2026 15:24 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mramy2nmkk2thttps://bsky.app/profile/emspofficial.bsky.social/post/3mr7uac5pml2e🧬 New insights into EBV and multiple sclerosis (MS) EBV-MS researchers found that MS is linked to stronger EBV-specific immune responses, reduced by anti-CD20 therapy. The findings support future EBV-targeted vaccines and antiviral approaches. Read the paper: buff.ly/LOEmoR0 https://buff.ly/LOEmoR022 Jul 2026 08:01 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mr7uac5pml2ehttps://bsky.app/profile/emspofficial.bsky.social/post/3mqqo2y5iw224🧬 New BEHIND-MS research: Family history of MS is linked to genetic risk and traits related to vitamin D and body weight, but not faster early disease progression. 📖 Van Luijn M. et al. (2026) #MultipleSclerosis #MSResearch #BEHINDMS #HaDEA16 Jul 2026 07:01 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mqqo2y5iw224https://bsky.app/profile/emspofficial.bsky.social/post/3mqmc7xgcuc2eThank you to our vibrant @eumsyouth community for their active participation, endless energy, and valuable contributions in making these monthly catch-ups so delightful! See you in the next one. #randomcoffee #ypn14 Jul 2026 13:18 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mqmc7xgcuc2ehttps://bsky.app/profile/emspofficial.bsky.social/post/3mqljqwdq6y2gNutrition can't cause MS. And it can't cure it. But it shapes fatigue, bowel symptoms, inflammation, cardiovascular risk — and quality of life. Dietitian Sophie Pratt and Marjolijn Oranje on what actually works, in the new Let's Talk MS. 🎧 bit.ly/3RuVUDS #LetsTalkMS #MSPodcast14 Jul 2026 06:00 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mqljqwdq6y2ghttps://bsky.app/profile/emspofficial.bsky.social/post/3mqj4p36al42yCan we prevent MS before symptoms appear? As part of the WISDOM project, Prof. Bernhard Hemmer explores how EBV, genetics and biomarkers could help identify risk earlier. Read more: buff.ly/AQDPzwW #WISDOM #HorizonEU https://buff.ly/AQDPzwW13 Jul 2026 07:01 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mqj4p36al42yhttps://bsky.app/profile/emspofficial.bsky.social/post/3mqa5t5qc6z2gYesterday EMSP presented the #MSBarometer at the European Charcot Foundation's MS Initiatives meeting. A first for 2025–2027: NMO & MOGAD join MS in the Barometer — long-missing pan-European data, finally in view. 📊 Thank you #EuropeanCharcot for the warm exchange! #MSBarometer202709 Jul 2026 17:28 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mqa5t5qc6z2ghttps://bsky.app/profile/emspofficial.bsky.social/post/3mq72s5gowe2i🧬 New EBV-MS study: rituximab shows comparable effectiveness and safety to ocrelizumab in early MS, supporting more affordable access to high-efficacy treatment. 📖 buff.ly/QxpQvis #MSResearch #EBVMS #HorizonEurope https://buff.ly/QxpQvis09 Jul 2026 07:01 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mq72s5gowe2ihttps://bsky.app/profile/emspofficial.bsky.social/post/3mpzzsi3cvg2m🎙️ New MedTalk: Why do only some people with EBV develop MS? Explore the roles of genetics, EBV strains, and AI in advancing MS research. 📖 buff.ly/THCgqaI ▶️ buff.ly/WBU4fZT #EBVMS #HorizonEurope #MSresearch https://buff.ly/THCgqaI07 Jul 2026 07:00 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mpzzsi3cvg2mhttps://bsky.app/profile/emspofficial.bsky.social/post/3mpxnn4twl226516 patients per nurse That's the average caseload MS nurses reported in our 2024 survey. Join our live webinar on smarter workload strategies for MS nurses, with Mavis Ayer (UK) & Francesco Pastore (Italy). 🗓 Wed 8 July, 4pm CEST Register: https://msnursepro.org/webinars/4278-live-webinar-smarter-workload-strategies-for-nurses06 Jul 2026 08:17 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mpxnn4twl226https://bsky.app/profile/emspofficial.bsky.social/post/3mpgm75iumk2iHow do we ease the workload on MS nurses without compromising care? Our upcoming webinar tackles one of MS care's most pressing challenges growing caseloads, admin burden & fragmented care—and what real change looks like. Join us. Register now 👇 bit.ly/4oWNzoX29 Jun 2026 13:36 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mpgm75iumk2ihttps://bsky.app/profile/emspofficial.bsky.social/post/3mowwkoc7tc2aNeed a reason to register for the EMSP Awareness Run 2026? Here are three. 🧵 #MSAwareness #EMSPRun2623 Jun 2026 07:58 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mowwkoc7tc2ahttps://bsky.app/profile/emspofficial.bsky.social/post/3momzwk534c2wLace up! 🏃‍♀️🦽 The EMSP Awareness Run is back. Run, roll, or walk for people living with MS, NMO & MOGAD. 📍 Antwerp Marathon, 18 Oct 2026 🌍 Or fundraise from anywhere 👉 Register: https://emsp.org/events/emsprun26/ 💙 #AwarenessRun #MultipleSclerosis #EmspRun19 Jun 2026 09:32 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3momzwk534c2whttps://bsky.app/profile/emspofficial.bsky.social/post/3mnz7dlmaj226Our Community Coordinator Anna Revilla Bruñol was in Seville for PEOF 2026, bringing the voices of young people with MS, NMOSD & MOGAD into discussions on patient engagement. Read her takeaways: bit.ly/3S4Ktme 18–35? Join the YPN 👉 bit.ly/4utxYy811 Jun 2026 12:16 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mnz7dlmaj226https://bsky.app/profile/emspofficial.bsky.social/post/3mneo77oaxs2hWelcome to the team, Delphine Sartiaux — our new Fundraising & Development Manager! Delphine brings rich experience in fundraising, strategic partnerships & international stakeholder engagement across global health NGOs. Delighted to have her on board 👋03 Jun 2026 08:16 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mneo77oaxs2hhttps://bsky.app/profile/emspofficial.bsky.social/post/3mmy2zdpbko2iEMSP highlights its EU-funded projects this #WorldMSDay: 🔹 #WISDOM: secure data + AI for MS insights 🔹 #MoreEUROPA: better use of registry data for patient-centred care 🔹 #BEHINDMS: EBV’s role in MS via immune interactions 🔹 #EBVMS: why EBV leads to MS & antiviral approaches29 May 2026 08:00 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mmy2zdpbko2ihttps://bsky.app/profile/emspofficial.bsky.social/post/3mmqmmogauk2vProgress on a new MS therapy — shaped by the people it's for. At IMMUTOL's 3rd Annual Meeting in Siena 🇮🇹, EMSP brought expert patients Rebecca Maguire & Anna Revilla into the room as the consortium advanced its vitamin D3 dendritic cell therapy for MS. 🧠26 May 2026 08:54 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mmqmmogauk2vhttps://bsky.app/profile/emspofficial.bsky.social/post/3mlq337hzbs22📍 RiMS 2026 | 11–13 June | Prague The leading European gathering on MS rehabilitation — from neuroplasticity to real-world outcomes that matter most for people with MS. "Coping with MS" panel, chaired by EMSP CEO Elisabeth Kasilingam 🔗 https://rehabinms.org/meetings-detail-page/24/31st-annual-rims-conference #RiMS202613 May 2026 10:15 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mlq337hzbs22https://bsky.app/profile/emspofficial.bsky.social/post/3mlnpxooo2s2z516 patients per nurse. That's the average caseload uncovered by our survey of 108 MS nurses across 15 countries. Clinical trials, psychological support and benefits advice routinely left undone Systemic change is overdue #InternationalNursesDay Learm more bit.ly/4fghEwG12 May 2026 11:51 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mlnpxooo2s2zhttps://bsky.app/profile/emspofficial.bsky.social/post/3mlkucuaw7s2w1.2M people live with MS in Europe and access to treatment still depends on where you live. This May, our members DMSG & MS Ireland are taking on #TheMay50K, led by MSIF. Every kilometre moves research and equity forward. Register- bit.ly/4tYB8ul11 May 2026 08:31 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mlkucuaw7s2whttps://bsky.app/profile/emspofficial.bsky.social/post/3mldg2puqh22f1/ Final day of European Public Health Week 🇪🇺 — today's theme: the healthcare workforce. Specialised MS nurses are the backbone of modern MS care. Without them, no therapy reaches its full potential. 🧵08 May 2026 09:27 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mldg2puqh22fhttps://bsky.app/profile/emspofficial.bsky.social/post/3mlbbmis6jk221/ Day 2 of European Public Health Week 🇪🇺 — today's theme: disinformation. For people living with MS, NMOSD, and MOGAD, sorting fact from fiction online is a daily challenge. Misinformation isn't just confusing — it can be harmful. 🧵 @eupha.bsky.social07 May 2026 13:02 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mlbbmis6jk22