Advocacy and expertise for over 1 million people living with #MultipleSclerosis and related disorders in Europe.https://bsky.app/profile/emspofficial.bsky.socialhttps://bsky.app/profile/emspofficial.bsky.social/post/3mramy2nmkk2tTime matters in MS: early diagnosis + timely treatment prevent irreversible disability. Yet access across Europe remains a postcode lottery. This #WorldBrainDay, the 7th #MSBarometer is underway — now including NMO & MOGAD for the first time. 📊https://emsp.org/projects/ms-barometer-2025-2027/22 Jul 2026 15:24 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mramy2nmkk2thttps://bsky.app/profile/emspofficial.bsky.social/post/3mr7uac5pml2e🧬 New insights into EBV and multiple sclerosis (MS) EBV-MS researchers found that MS is linked to stronger EBV-specific immune responses, reduced by anti-CD20 therapy. The findings support future EBV-targeted vaccines and antiviral approaches. Read the paper: buff.ly/LOEmoR0 https://buff.ly/LOEmoR022 Jul 2026 08:01 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mr7uac5pml2ehttps://bsky.app/profile/emspofficial.bsky.social/post/3mqqo2y5iw224🧬 New BEHIND-MS research: Family history of MS is linked to genetic risk and traits related to vitamin D and body weight, but not faster early disease progression. 📖 Van Luijn M. et al. (2026) #MultipleSclerosis #MSResearch #BEHINDMS #HaDEA16 Jul 2026 07:01 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mqqo2y5iw224https://bsky.app/profile/emspofficial.bsky.social/post/3mqmc7xgcuc2eThank you to our vibrant @eumsyouth community for their active participation, endless energy, and valuable contributions in making these monthly catch-ups so delightful! See you in the next one. #randomcoffee #ypn14 Jul 2026 13:18 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mqmc7xgcuc2ehttps://bsky.app/profile/emspofficial.bsky.social/post/3mqljqwdq6y2gNutrition can't cause MS. And it can't cure it. But it shapes fatigue, bowel symptoms, inflammation, cardiovascular risk — and quality of life. Dietitian Sophie Pratt and Marjolijn Oranje on what actually works, in the new Let's Talk MS. 🎧 bit.ly/3RuVUDS #LetsTalkMS #MSPodcast14 Jul 2026 06:00 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mqljqwdq6y2ghttps://bsky.app/profile/emspofficial.bsky.social/post/3mqj4p36al42yCan we prevent MS before symptoms appear? As part of the WISDOM project, Prof. Bernhard Hemmer explores how EBV, genetics and biomarkers could help identify risk earlier. Read more: buff.ly/AQDPzwW #WISDOM #HorizonEU https://buff.ly/AQDPzwW13 Jul 2026 07:01 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mqj4p36al42yhttps://bsky.app/profile/emspofficial.bsky.social/post/3mqa5t5qc6z2gYesterday EMSP presented the #MSBarometer at the European Charcot Foundation's MS Initiatives meeting. A first for 2025–2027: NMO & MOGAD join MS in the Barometer — long-missing pan-European data, finally in view. 📊 Thank you #EuropeanCharcot for the warm exchange! #MSBarometer202709 Jul 2026 17:28 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mqa5t5qc6z2ghttps://bsky.app/profile/emspofficial.bsky.social/post/3mq72s5gowe2i🧬 New EBV-MS study: rituximab shows comparable effectiveness and safety to ocrelizumab in early MS, supporting more affordable access to high-efficacy treatment. 📖 buff.ly/QxpQvis #MSResearch #EBVMS #HorizonEurope https://buff.ly/QxpQvis09 Jul 2026 07:01 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mq72s5gowe2ihttps://bsky.app/profile/emspofficial.bsky.social/post/3mpzzsi3cvg2m🎙️ New MedTalk: Why do only some people with EBV develop MS? Explore the roles of genetics, EBV strains, and AI in advancing MS research. 📖 buff.ly/THCgqaI ▶️ buff.ly/WBU4fZT #EBVMS #HorizonEurope #MSresearch https://buff.ly/THCgqaI07 Jul 2026 07:00 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mpzzsi3cvg2mhttps://bsky.app/profile/emspofficial.bsky.social/post/3mpxnn4twl226516 patients per nurse That's the average caseload MS nurses reported in our 2024 survey. Join our live webinar on smarter workload strategies for MS nurses, with Mavis Ayer (UK) & Francesco Pastore (Italy). 🗓 Wed 8 July, 4pm CEST Register: https://msnursepro.org/webinars/4278-live-webinar-smarter-workload-strategies-for-nurses06 Jul 2026 08:17 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mpxnn4twl226https://bsky.app/profile/emspofficial.bsky.social/post/3mpgm75iumk2iHow do we ease the workload on MS nurses without compromising care? Our upcoming webinar tackles one of MS care's most pressing challenges growing caseloads, admin burden & fragmented care—and what real change looks like. Join us. Register now 👇 bit.ly/4oWNzoX29 Jun 2026 13:36 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mpgm75iumk2ihttps://bsky.app/profile/emspofficial.bsky.social/post/3mowwkoc7tc2aNeed a reason to register for the EMSP Awareness Run 2026? Here are three. 🧵 #MSAwareness #EMSPRun2623 Jun 2026 07:58 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mowwkoc7tc2ahttps://bsky.app/profile/emspofficial.bsky.social/post/3momzwk534c2wLace up! 🏃‍♀️🦽 The EMSP Awareness Run is back. Run, roll, or walk for people living with MS, NMO & MOGAD. 📍 Antwerp Marathon, 18 Oct 2026 🌍 Or fundraise from anywhere 👉 Register: https://emsp.org/events/emsprun26/ 💙 #AwarenessRun #MultipleSclerosis #EmspRun19 Jun 2026 09:32 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3momzwk534c2whttps://bsky.app/profile/emspofficial.bsky.social/post/3mnz7dlmaj226Our Community Coordinator Anna Revilla Bruñol was in Seville for PEOF 2026, bringing the voices of young people with MS, NMOSD & MOGAD into discussions on patient engagement. Read her takeaways: bit.ly/3S4Ktme 18–35? Join the YPN 👉 bit.ly/4utxYy811 Jun 2026 12:16 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mnz7dlmaj226https://bsky.app/profile/emspofficial.bsky.social/post/3mneo77oaxs2hWelcome to the team, Delphine Sartiaux — our new Fundraising & Development Manager! Delphine brings rich experience in fundraising, strategic partnerships & international stakeholder engagement across global health NGOs. Delighted to have her on board 👋03 Jun 2026 08:16 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mneo77oaxs2hhttps://bsky.app/profile/emspofficial.bsky.social/post/3mmy2zdpbko2iEMSP highlights its EU-funded projects this #WorldMSDay: 🔹 #WISDOM: secure data + AI for MS insights 🔹 #MoreEUROPA: better use of registry data for patient-centred care 🔹 #BEHINDMS: EBV’s role in MS via immune interactions 🔹 #EBVMS: why EBV leads to MS & antiviral approaches29 May 2026 08:00 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mmy2zdpbko2ihttps://bsky.app/profile/emspofficial.bsky.social/post/3mmqmmogauk2vProgress on a new MS therapy — shaped by the people it's for. At IMMUTOL's 3rd Annual Meeting in Siena 🇮🇹, EMSP brought expert patients Rebecca Maguire & Anna Revilla into the room as the consortium advanced its vitamin D3 dendritic cell therapy for MS. 🧠26 May 2026 08:54 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mmqmmogauk2vhttps://bsky.app/profile/emspofficial.bsky.social/post/3mlq337hzbs22📍 RiMS 2026 | 11–13 June | Prague The leading European gathering on MS rehabilitation — from neuroplasticity to real-world outcomes that matter most for people with MS. "Coping with MS" panel, chaired by EMSP CEO Elisabeth Kasilingam 🔗 https://rehabinms.org/meetings-detail-page/24/31st-annual-rims-conference #RiMS202613 May 2026 10:15 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mlq337hzbs22https://bsky.app/profile/emspofficial.bsky.social/post/3mlnpxooo2s2z516 patients per nurse. That's the average caseload uncovered by our survey of 108 MS nurses across 15 countries. Clinical trials, psychological support and benefits advice routinely left undone Systemic change is overdue #InternationalNursesDay Learm more bit.ly/4fghEwG12 May 2026 11:51 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mlnpxooo2s2zhttps://bsky.app/profile/emspofficial.bsky.social/post/3mlkucuaw7s2w1.2M people live with MS in Europe and access to treatment still depends on where you live. This May, our members DMSG & MS Ireland are taking on #TheMay50K, led by MSIF. Every kilometre moves research and equity forward. Register- bit.ly/4tYB8ul11 May 2026 08:31 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mlkucuaw7s2whttps://bsky.app/profile/emspofficial.bsky.social/post/3mldg2puqh22f1/ Final day of European Public Health Week 🇪🇺 — today's theme: the healthcare workforce. Specialised MS nurses are the backbone of modern MS care. Without them, no therapy reaches its full potential. 🧵08 May 2026 09:27 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mldg2puqh22fhttps://bsky.app/profile/emspofficial.bsky.social/post/3mlbbmis6jk221/ Day 2 of European Public Health Week 🇪🇺 — today's theme: disinformation. For people living with MS, NMOSD, and MOGAD, sorting fact from fiction online is a daily challenge. Misinformation isn't just confusing — it can be harmful. 🧵 @eupha.bsky.social07 May 2026 13:02 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mlbbmis6jk22https://bsky.app/profile/emspofficial.bsky.social/post/3ml3nyew4wk2b📘 Our 2025 Annual Report is out. A year of impact for the MS, NMOSD & MOGAD community: 🩺 1,729 MS nurses trained in 56 countries Over 140 participants at #EMSP2025 📊IMSS Survey: 28 societies, 26 countries Read the report👉 bit.ly/4nauP4i https://bit.ly/4nauP4i05 May 2026 07:28 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3ml3nyew4wk2bhttps://bsky.app/profile/emspofficial.bsky.social/post/3mkcwvbisxk2uLast session of #EMSP2026 conference in progress- Shaping the future of MS and related disorders.25 Apr 2026 11:30 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mkcwvbisxk2uhttps://bsky.app/profile/emspofficial.bsky.social/post/3mkcv6hywv22uThere is a direct co-relation between menopausal symptoms and the quality of life of people with MS- reveals Prof Ruth Dobson #EMSP2026 Watch the livestream- https://eu-admin.eventscloud.com/website/19094/live-stream25 Apr 2026 11:00 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mkcv6hywv22uhttps://bsky.app/profile/emspofficial.bsky.social/post/3mkcteevn7c2h"It's crucial to include MS nurses in patient care. " Dr. Wolfgang Köhler, and Anna Arellanesová, @eurordis make a case for specialised care for people with MS and related disorders. Streaming now: https://eu.eventscloud.com/website/19094/home/25 Apr 2026 10:27 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mkcteevn7c2hhttps://bsky.app/profile/emspofficial.bsky.social/post/3mkcmywmsqk2nWe need to go further than biomarkers when it comes to monitoring the disease" Interesting session on looking beyond biology. Streaming now- https://eu-admin.eventscloud.com/website/19094/live-stream25 Apr 2026 08:33 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mkcmywmsqk2nhttps://bsky.app/profile/emspofficial.bsky.social/post/3mkcldstzfs2n"I wondered if can I do a news broadcast on a wheelchair? And then I said why not?" Inpisiring testimony by journalist and MS patient advocate Mirijam Kottoman at #emsp2026 Watch the livstream https://eu-admin.eventscloud.com/website/19094/live-stream25 Apr 2026 08:04 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mkcldstzfs2nhttps://bsky.app/profile/emspofficial.bsky.social/post/3mkci47nmr22n#EMSP2026 Day 2 is here🚀 Mirjam Kottmann kicks us off with "Just Do It!" Biology-driven care panel CAR-T, stem cells & menopause + MS Another Move It! moment The future of MS in Europe Watch online-https://bit.ly/4cMFcXm25 Apr 2026 07:06 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mkci47nmr22nhttps://bsky.app/profile/emspofficial.bsky.social/post/3mkamzpube22g#EMSP2026 “Patient registries must reflect patients’ preferences — it all comes down to trust.” A powerful takeaway from @denolmo.bsky.social at the #EMSP2026 Conference. Watch the livestream- https://eu-admin.eventscloud.com/website/19094/live-stream24 Apr 2026 13:28 +0000at://did:plc:umyohlmbnc5vwhwc5lbnnao7/app.bsky.feed.post/3mkamzpube22g