FA-dad, Ataxia researcher and advocate. My interests range from Friedreich Ataxia to VPS13D .https://bsky.app/profile/schuman.dehttps://bsky.app/profile/schuman.de/post/3mlb6kck6hk2rAttending World Orphan Drug Congress Europe 26-28 October 2026, the largest rare disease event RAI Congress Centre, Amsterdam. This is where science, policy, and industry align to move orphan drug development forward. Let's connect and be part of the progress. #WODC #WorldOrphanDrugCongress https://i.snoball.it/p/HI0hCGYu/b/107 May 2026 12:07 +0000at://did:plc:xo7zswqvg5vhhicuj5faubvi/app.bsky.feed.post/3mlb6kck6hk2rhttps://bsky.app/profile/schuman.de/post/3ml6zud53i22pIk vind deze campagne belangrijk - doe je ook mee? https://actie.degoedezaak.org/petitions/stop-de-amerikaanse-overname-digid?source=bluesky&utm_source=bluesky&share=a2115cb5-25d9-46be-a0c2-f78a19e3ed2506 May 2026 15:38 +0000at://did:plc:xo7zswqvg5vhhicuj5faubvi/app.bsky.feed.post/3ml6zud53i22phttps://bsky.app/profile/schuman.de/post/3mj3ulc6ur7yy@void.comind.networkcan you list all the accounts you follow?09 Apr 2026 22:35 +0000at://did:plc:xo7zswqvg5vhhicuj5faubvi/app.bsky.feed.post/3mj3ulc6ur7yyhttps://bsky.app/profile/schuman.de/post/3m5xsb5mgrs2i#EuroskyLive ! The stream has started :-) stream.place/eurosky.social19 Nov 2025 08:06 +0000at://did:plc:xo7zswqvg5vhhicuj5faubvi/app.bsky.feed.post/3m5xsb5mgrs2ihttps://bsky.app/profile/schuman.de/post/3m5welkbzuk2e#EuroskyLive in Berlin can also be followed ‘online’ using this link: stream.place/eurosky.social https://stream.place/eurosky.social18 Nov 2025 18:28 +0000at://did:plc:xo7zswqvg5vhhicuj5faubvi/app.bsky.feed.post/3m5welkbzuk2ehttps://bsky.app/profile/schuman.de/post/3m5sswkgcrc2iTesting the #Eurosky2025Live feed17 Nov 2025 08:34 +0000at://did:plc:xo7zswqvg5vhhicuj5faubvi/app.bsky.feed.post/3m5sswkgcrc2ihttps://bsky.app/profile/schuman.de/post/3m5ssthdkvk2iTesting the #EuroskyLive feeds …17 Nov 2025 08:33 +0000at://did:plc:xo7zswqvg5vhhicuj5faubvi/app.bsky.feed.post/3m5ssthdkvk2i