🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org 🔵 Pw/ #LongCOVID, #IACCS, #Disability 🔵 Fmr. Firefighter/Paramedic 🔵 Fmr. Educator, Coach, & Dir. of Athletics 🔵 B.S. (ex science & health promotion) 🔵 #StillCOVIDING #COVIDConscious #Maskhttps://bsky.app/profile/kbishof.bsky.socialhttps://bsky.app/profile/kbishof.bsky.social/post/3m6sahat66s2bC19LAP is ready to step in & lead a coordinated national response to #LongCOVID in the absence & abandonment of a federal response, but we cannot do it without your support. We launched a peer to peer fundraiser. Donate / start yours here: bit.ly/FR4LC26 Top 5 Fundraisers receive a TY package! [contains quote post or other embedded content]29 Nov 2025 20:29 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3m6sahat66s2bhttps://bsky.app/profile/kbishof.bsky.social/post/3m32eidtzak2hOn #IndigenousPeoplesDay, remember: the violence never stopped. Colonization just changed its form, from stolen land to stolen children, erased histories, and borders that criminalize the very people this land belongs to. We are still witnessing the same injustice.13 Oct 2025 04:22 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3m32eidtzak2hhttps://bsky.app/profile/kbishof.bsky.social/post/3m2wsphmphk2r@SecKennedy our community is dying from #LongCOVID. While its disabling impacts have fractured our national infrastructure, the deaths associated with Long COVID are far under represented & largely ignored. We need urgent leadership & action. We need solutions. We need to educate11 Oct 2025 18:26 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3m2wsphmphk2rhttps://bsky.app/profile/kbishof.bsky.social/post/3m2nfqhmcek2tREMINDER: 3pm est tomorrow 10/8 https://us06web.zoom.us/webinar/register/WN_kdFKSvMARIyR1w1Y7h498w#/registration08 Oct 2025 00:40 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3m2nfqhmcek2thttps://bsky.app/profile/kbishof.bsky.social/post/3m2adwvlui22oThe cost of #LongCOVID This is ONLY March - present of this year. Prior, Jan-Feb I paid $2,000+. My SSD is ~$1,400/mo. I have Medicare. I currently owe over $8,000. This is not sustainable with living. I am one of tens of millions with Long COVID.02 Oct 2025 20:03 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3m2adwvlui22ohttps://bsky.app/profile/kbishof.bsky.social/post/3ly2esw6krs2fThis is absolutely horrible news. Let’s bring the prey on vulnerable patients desperate for their lives back who will do anything, even pay their life savings, sell their homes, etc crowd to lead Long COVID research. Think supplement peddlers meets meets Fl surgeon general, meets cure offerer.05 Sep 2025 00:12 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3ly2esw6krs2fhttps://bsky.app/profile/kbishof.bsky.social/post/3lxe2edrhls2zYou know what worked… The collaboration and unity that was summer fall and winter 2020. Bring that back. Drop the ego’s. #LongCOVID solutions depend on it. OUR LIVES DEPEND ON IT. This 2023-present fighting and race to the top of the podium isn’t it.27 Aug 2025 03:06 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lxe2edrhls2zhttps://bsky.app/profile/kbishof.bsky.social/post/3lwzsh7ymf22pAfter two long years of fighting and advocating for myself, my port is in. Hopefully this gets me better access to medical care and quality of life. #LongCOVID #POTS #Gastroparesis23 Aug 2025 01:18 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lwzsh7ymf22phttps://bsky.app/profile/kbishof.bsky.social/post/3lwtzfwo5i22iNothing like pending a lymph node and bilaterally tonsillectomy next Friday, and being told the port I was waiting til January for is now being put in THIS Friday. Not mentally or physically prepared for this.20 Aug 2025 18:07 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lwtzfwo5i22ihttps://bsky.app/profile/kbishof.bsky.social/post/3lwphirrlps22Can I tell you that I really never thought I’d be in people’s inboxes and DMs like hey do you want my organs and tissues for Long COVID research, I’m having them out in two weeks. What a time.18 Aug 2025 22:36 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lwphirrlps22https://bsky.app/profile/kbishof.bsky.social/post/3lw3dx7ibgc27As school starts tomorrow for parts of Florida, this is a reminder, that when schools start back up after summer, winter, and spring break, transmission & cases take off. While you should ALWAYS protect yourself against COVID+, take the extra precautions the first few weeks. ⬇️10 Aug 2025 22:39 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lw3dx7ibgc27https://bsky.app/profile/kbishof.bsky.social/post/3luimbo3ocs27Me: submits a modification request for my home for my disabilities. HOA: no, doesn’t align with bylaws. Me: ada/ fair housing request supersede HOA: no Me: your fines for not complying at astronomical plus my civil suit. HOA: no Me: ask the HOA attorney. HOA: approved21 Jul 2025 18:22 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3luimbo3ocs27https://bsky.app/profile/kbishof.bsky.social/post/3lszswl6ae22uThe comments …chefs kiss www.tiktok.com/t/ZTjEvgBVW/ https://www.tiktok.com/t/ZTjEvgBVW/03 Jul 2025 03:46 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lszswl6ae22uhttps://bsky.app/profile/kbishof.bsky.social/post/3lrz7likazs2uReport or find ICE spotting here: https://padlet.com/PeopleoverPapers/people-over-papers-anonymous-anonimo-lf0l47ljszbto2uj Spread the word!20 Jun 2025 04:35 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lrz7likazs2uhttps://bsky.app/profile/kbishof.bsky.social/post/3lrypnwomwk2dI better see all the white + families helping carpool and get these kids to their games and tournaments for their parents who may be afraid to go.19 Jun 2025 23:50 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lrypnwomwk2dhttps://bsky.app/profile/kbishof.bsky.social/post/3lrvpz7vjsc2lFrom our friend Allison, from what was once the Office for Long COVID. 💜 https://open.substack.com/pub/innerunion/p/a-love-letter-to-long-covid?r=2c4qii&utm_campaign=post&utm_medium=web&showWelcomeOnShare=false18 Jun 2025 19:18 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lrvpz7vjsc2lhttps://bsky.app/profile/kbishof.bsky.social/post/3lrv6unipqk2gFlorida: Sooooo where are we all getting our saline from? What insurance / manufacturing companies are back up and running and able to supply post hurricane that took out facility? I need a port but that comes with fluids and apparently it’s still an issue. Honestly at about life or death point.18 Jun 2025 14:11 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lrv6unipqk2ghttps://bsky.app/profile/kbishof.bsky.social/post/3lrqjx4abis2sAnnnnd I’m getting a port and home heath services. 😔16 Jun 2025 17:46 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lrqjx4abis2shttps://bsky.app/profile/kbishof.bsky.social/post/3lpr6idu5wc2yExtremly bad news today folks. 🧵 https://www.msnbc.com/opinion/msnbc-opinion/republican-house-bill-medicaid-snap-cuts-tax-cut-trump-rcna208380 The “One Big Beautiful Bill,” passed by the U.S. House of Representatives on May 22, 2025, includes significant reductions to major social programs:22 May 2025 13:03 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lpr6idu5wc2yhttps://bsky.app/profile/kbishof.bsky.social/post/3lpmkyw4wu22f20 May 2025 17:04 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lpmkyw4wu22fhttps://bsky.app/profile/kbishof.bsky.social/post/3lpdkjucpek2bI tried to watch the Polybio today but after about 2hrs my fractured nose & concussion said no more 😔 I’m pretty disappointed! But, I look fwd to the recording & going back through things. Staying up to date is essential yet limited opps exist. Ty participants.17 May 2025 03:02 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lpdkjucpek2bhttps://bsky.app/profile/kbishof.bsky.social/post/3lp5bichqw22pSenate Committee on Indian Affairs Leaders Warn RFK, Jr. Against Reorganization That Threatens Native Health Programs https://nativenewsonline.net/health/senate-committee-on-indian-affairs-leaders-warn-rfk-jr-against-reorganization-that-threatens-native-health-programs14 May 2025 15:04 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lp5bichqw22phttps://bsky.app/profile/kbishof.bsky.social/post/3lnnogwbc6c2dHI! am looking for assistance programs/ grants that help people with disabilities with the costs to make their homes accessible. My main issue is my home is in a trust and I do not qualify for many programs as technically the “trust is the homeowner” which is insane. TIA25 Apr 2025 16:48 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lnnogwbc6c2dhttps://bsky.app/profile/kbishof.bsky.social/post/3lnhxx3y6ls2lIf you have social security and owe student loans, this is a very important piece of info to have and know. Just another way the disabled and chronically ill will be harmed. https://www.businessinsider.com/student-loan-borrowers-default-repayment-wage-social-security-garnishment-2025-423 Apr 2025 10:22 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3lnhxx3y6ls2lhttps://bsky.app/profile/kbishof.bsky.social/post/3ln4di2v2lc27Buckle up: https://www.whitehouse.gov/lab-leak-true-origins-of-covid-19/18 Apr 2025 19:16 +0000at://did:plc:xxlo3ffiuoncaogdps2ribnf/app.bsky.feed.post/3ln4di2v2lc27