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ERN-RND
ern-rnd.bsky.social
did:plc:dssgovaculvmzxdipqrbcfpa
"Having a #PatientJourney that shows the progress of the disease and the challenges that come up could help other families to prepare better for the future", so Juliane Krabath, who has a daughter with #HereditarySpasticParaplegia.
Learn more about challenges here:
https://www.youtube.com/watch?v=nYSy99xYoZA
2025-05-14T14:40:46.755Z