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Profile
Marfan Trust
marfantrust.bsky.social
did:plc:i73v6gswhhl5ajj3me4ewxdr
The Marfan Trust is the sole charity in the United Kingdom dedicated to improving and saving the lives of people with Marfan & Loeys-Dietz syndromes. We support those with the condition, provide educational information, and undertake cutting-edge research.