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  Roz Scourse
  rozscourse.bsky.social
  did:plc:dqi3aa7iqf6glxx44ufhesxn
  One of the most powerful panel discussions I have seen in a long time; deep anger and outrage that parents are watching their children dying from rare diseases when treatments exist that could save their lives.
@justtreatment.org @3rdworldnetwork.bsky.social
  2025-05-21T12:36:45.753Z